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I Have Limb Girdle Md Is It Safe to Get Pregnant?

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I have been diagnosed with limb girdle muscular dystrophy and i'm not sure if it would be safe to get pregnant being as the most affected area is my hips and the muscles in that area. I'm not sure if I would have the strength to give birth vaginaly or if I should have a c-section. I want to have kids so bad but my boyfriend is afraid of something happening to me during labor. I wadel when I walk and have lots of back pain but I didn't know if I would even be strong enough to carry a baby. Can anyone help me?
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First Helper Lilpaskittle01
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replied September 17th, 2005
Extremely eHealthy
Hi there! My feeling is the best thing you can do is to both go in and talk to either your regular Dr., or gyno. If not you can always adopt, there are a lot of sweet children out there that needs a loving home. Good luck, keep us posted, I am very sorry about your md, I have a lot of medical problems too so I do understand the pain, but I am a lot older than you. My heart goes out to you!!
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replied September 18th, 2005
Experienced User
Unsure....
I don't know really- you'd have to ask a specialist I think.
I always thought only males get muscular dystrophy? I thought woman carry it, but pass it to their sons?
My mother's brother died of ducene's muscular dystrophy (i think that's how it's spelled) when he was about 13. Some of his sisters have had healty boys, but all of the girls inmy generation have only had girls (14 of them !!!) so there's really no way of knowing whether we are still carrying it in the family without genetic testing.

If it's just the birth you are worried about, you probably wouldn't need to decide which way you'd try to do it, an emergency c-section can always be done if need be. You should find out about the likelyhood of passing the condition on, in the event you conceive a boy.

Good luck.
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replied September 18th, 2011
There are a lot of different types of MD, and they are not all inherited in the same way. Duchene and some other types are sex-linked, meaning that if a woman is a carrier, she will most likely have one X chromosome that will pass it on and one X chromosome that won't. Because women only have X chromosomes, we only pass on X chromosomes. Men have an X and a Y, and can pass on either. This determines the sex of the baby. An X from the mother and an X from the father (XX) means a daughter, and an X from the mother and a Y from the father (XY) means a son. If a woman has 1 affected X chromosome and 1 that is not, she will not exhibit traits of the disease herself, because the unaffected X chromosome will "block" the affected one. If she has a child, she has a 50% chance of passing on the unaffected X chromosome (meaning that her child will not have inherited either the disease or the ability to pass it on as a carrier from her), and a 50% chance of passing on the affected chromosome (meaning that if she has a male child, he will exhibit the disease since he will have a Y chromosome, not another [unaffected] X chromosome to block it; and if she has a female child, her female child will inherit her "carrier" status and will have the ability to pass on the affected X chromosome to her children. Typically, a father does not pass on Duchene because most boys with this type of MD until recently have not lived long enough to father children. However, now that males with Duchene are living longer, it would be possible for some of them to pass on the disease to their daughters, by passing on an affected X chromosome. In order for the daughter to exhibit the disease instead of just being a carrier, she would also have to inherit an affected X chromosome from her mother (her mother would have to be a carrier and would have to pass on the affected X chromosome). The biological daughter of a male with DMD and a female who is a carrier of it would have a 50% chance of having DMD, and a 50% chance of being a carrier. There would be a 0% chance of her not inheriting either the disease or the carrier status. The son of a male with DMD would not inherit it from his father, but would have the same chance of inheriting the disease from a mother who was a carrier as would the son of a mother who is a carrier and a father who is unaffected. I hope this little biology lesson cleared some of that up...
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replied October 13th, 2009
I have two children.One 22 and the other is 30.Both are fine though neither have been tested for MD.I had no trouble having my kids.This is something to discuss with your doctor.My doctors told me not to have any but my faith in God helped me to feel comfortable enough to go ahead and have mine.No one else in my family has MD.I've always been the lucky one...LOL.I don't catch the common cold.I only get the things for a more likely to kill me..lol So far I've lived through being born without a doctor in the room when my mother had me.Was turning blue from not breathing.My mother almost lost me when she was pregnant because her father had died. I had double pneumonia a the age of five(nearly died from that).Diagnosed with LGMD AT 13.Hepatitis when I was 19.I've been fighting a war since day one..lol

I pray that when and if I do have grandkids that this god awful disease doesn't rear it's ugly head again.My daughter has been unable to have kids thus far.I feel sometimes as though god may be trying to spare us. Sad

I wish you well friend..
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replied September 18th, 2011
Re: I Have Limb Girdle Md Is It Safe to Get Pregnant?
Lilpaskittle01 wrote:
I have been diagnosed with limb girdle muscular dystrophy and i'm not sure if it would be safe to get pregnant being as the most affected area is my hips and the muscles in that area. I'm not sure if I would have the strength to give birth vaginaly or if I should have a c-section. I want to have kids so bad but my boyfriend is afraid of something happening to me during labor. I wadel when I walk and have lots of back pain but I didn't know if I would even be strong enough to carry a baby. Can anyone help me?


Limb Girdle MD and some other types are not sex-linked. Limb Girdle in particular (which is actually a whole collection of related disorders that are very similar in manifestation) is a dominant but not sex-linked trait. This means that it is not carried on the X chromosome, but is carried on another chromosome that is not related to the sex of the child. So there is really no such thing as being a "carrier" of LGMD - and if you have it, you have a 50% chance of passing it on to any child you have, regardless of sex, but an unaffected child will not be a "carrier." I am an only child who inherited LGMD from my father who had it, and he had 1 brother who didn't have it, 1 sister who didn't have it, and 1 sister who did have it - a perfect representation of the odds! And yes, their mother had it, and she delivered 4 children vaginally, at home, without the benefit of a hospital, in the late 1920s and early 1930s, without complications. The smooth muscles of the uterus and birth canal are not affected by LGMD, so you should be able to push just fine, although you may have to experiment with positions to be in because of your back pain. And during later pregnancy, the belly may throw off your balance and fatigue may also affect you - so don't be opposed to using a wheelchair at least part time. And yes, by all means, consult your doctor about the specific risks you may have, but please take heart and know that it is possible to have babies if you have LGMD. I have it, and I hope to start a family within the next year or so. Smile
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replied May 28th, 2013
I have muscular dystrophy never been properly diagnosed they say its lgmd them edmd!
I'm now 28 female, still very active, but have a few difgiculties in life and im thinking about starting family, just not sure.
nobody in my family has it. I'm one of 4 the youngest I was the 1 who got the illness.
Would love to know if I started a family if my children would get the illness???
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