Teenager With Cystic Fibrosis Posted: 09-14-05 18:36pm
Hello! I was wondering if there is
anyone with a teenager with cf. My son
was diagnosed with cf at age 2. He is
now going on 13 and it is hard to get him
to do his therapies every day. I am
hoping that he will start to get back on
track doing therapy. I was wondering if
anyone is going through that with their
teenager or maybe I can get a teenagers
opinion on it.
Hi nice to meet you im ashley. My sister
had it. My mom had to go thru alot for
her. Um.. Well if I can remember my
sister was diagonsed when she was 3 .
Um.... Treatments......Um... Let me get
back to you on that lol. Ill have to ask
my moms sry bout that lol brb
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Jessica_CF20
Experienced User , Rather EHEALTHy
Joined: 02 Nov 2005 Posts: 207 Location: NM
Teens And Cf Posted: 11-02-05 19:42pm
Hi my name is jessica and I an 20 I wanted
to say as a teen I rarely did my
treatments and when I did I know my mom
had to of had a horrible time she used to
tell people that it was like pulling teeth
or putting a 2 yr old to bed to get me to
do my stuff. With me it was because I
wanted to be independent, " normal" and I
just didn't want to waist my time on it.
I knew then how important it was but that
didn't matter. But now I undrestand how
important it is and im doing ok and I do
my stuff reg. So I believe it is a phase
and it will pass but my advice is dont
stop stressing how important it is and get
him to do it as much as possible but
remember it will in time prob. Pass he is
just trying to be in the "norm" and fit in
the best he can.:d
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hiya
New User, Becoming EHEALTHy
Joined: 18 Dec 2005 Posts: 8 Location: uk
Posted: 12-18-05 17:03pm
Hi lynseyo5, I also have a son who has
cystic fibrosis who is 13 years old. He
as got very "oh not cf again" and he does
not want to talk about cf much or listen
to my advice. He does do his treatment
every day without to many problems really,
I just got to nag him on the amount of
time he does it, (or lack of it he never
does it long enough). I do always most
days stress to him the importance of his
treatment, I don't go on for ever, just
short little talks about how ill he could
become if he does not do his treatment. I
very rarely let him off his treatment,
(maybe if we went out one evening and got
back really late). I think this helps
because if he knows that I let him off his
phyiso when and only when he is really
tired etc. Really they are just normal
kids but with cf, so they get all those
normal mood swings what all 13 year olds
get :roll: I suppose the most probs i've
had is that he does not want anyone in his
school to know, so the creon he takes in
secret.This can be hard because he
sometimes goes without food. Hope we can
chat again bye for now. From hiya.
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15yro
New User, Becoming EHEALTHy
Joined: 18 Feb 2006 Posts: 4
Posted: 02-18-06 07:17am
Hey there, I have a big brother (well hes
not really my bro, hes my dads gf's son,
its easier to call him a bro) and he is
dealing with it incredibly well, ive only
known him for 2 years but he is a great
guy. He droppped out of skool in 4th year
(this is scotland were talkin bout) and he
has now been in college for nearly two
years. He is leaving college in the
summer to go onto university which jus
goes to show how dedicated he is to
getting a good job and great lifestyle.
Let ur son see this post just to show him
how he can still lead a great life no
matter his state of health.
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CeruleanOne
New User, Becoming EHEALTHy
Joined: 30 May 2006 Posts: 5 Location: San Mateo, CA
Cf Pt Posted: 05-30-06 18:51pm
I remember when I was that age I hated pt.
Probably because I was "that age" and
another because my cf had manifested
itself as more a digestive issue and not a
respiratory one. To this day pt produces
no results.
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musicnotes
New User, Becoming EHEALTHy
Joined: 03 Mar 2008 Posts: 3 Location: Saint John, New Brunswick Canada
hey Posted: 03-03-08 21:11pm
my sister had it, she barely took half the
medication she had to but she did do her
treatment everyday
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Charlotte marie
New User, Becoming EHEALTHy
Joined: 26 Apr 2008 Posts: 2
Posted: 04-26-08 01:31am
Hi im 20 and have CF i know that as a
teenager i was a nightmare doing
medication but i can suggest sport as a
good way of improvising. Obviously
treatment is needed but cardiovascular
sport helps bring up the mucus and i found
it worked just as good as physio...
especially swimming. I know its not ideal
but if you cant get him to do physio try
and increase sport that way he will be
doing a sort of pyhsio without knowing it!
Thats what my mum did with me! I think i
was at every after school club they had
which was 4 days a week! Also routine
helps. For medications and stuff dad
brought me a nomad thing so at the
beginning of the week you can put all the
meds in there then all he will have to do
is take it as its all set up ready! Dunno
if this will help at all but just know
that it isnt just teenagers!! I think all
people with cf get fed up of treatment so
its a struggle with us all not just your
son trust me!! Good luck with it!
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