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Conditions and Diseases > Cystic Fibrosis Forum > Teenager With Cystic Fibrosis
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Q: Teenager With Cystic Fibrosis
asked by: Lynsey05 on September 14th, 2005
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Hello! I was wondering if there is anyone with a teenager with cf. My son was diagnosed with cf at age 2. He is now going on 13 and it is hard to get him to do his therapies every day. I am hoping that he will start to get back on track doing therapy. I was wondering if anyone is going through that with their teenager or maybe I can get a teenagers opinion on it.
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Lil_sister_ashley16
replied on September 16th, 2005
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Hi nice to meet you im ashley. My sister had it. My mom had to go thru alot for her. Um.. Well if I can remember my sister was diagonsed when she was 3 . Um.... Treatments......Um... Let me get back to you on that lol. Ill have to ask my moms sry bout that lol brb
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Jessica_CF20
replied on November 2nd, 2005
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Teens And Cf
Hi my name is jessica and I an 20 I wanted to say as a teen I rarely did my treatments and when I did I know my mom had to of had a horrible time she used to tell people that it was like pulling teeth or putting a 2 yr old to bed to get me to do my stuff. With me it was because I wanted to be independent, " normal" and I just didn't want to waist my time on it. I knew then how important it was but that didn't matter. But now I undrestand how important it is and im doing ok and I do my stuff reg. So I believe it is a phase and it will pass but my advice is dont stop stressing how important it is and get him to do it as much as possible but remember it will in time prob. Pass he is just trying to be in the "norm" and fit in the best he can.:d
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hiya
replied on December 18th, 2005
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Hi lynseyo5, I also have a son who has cystic fibrosis who is 13 years old. He as got very "oh not cf again" and he does not want to talk about cf much or listen to my advice. He does do his treatment every day without to many problems really, I just got to nag him on the amount of time he does it, (or lack of it he never does it long enough). I do always most days stress to him the importance of his treatment, I don't go on for ever, just short little talks about how ill he could become if he does not do his treatment. I very rarely let him off his treatment, (maybe if we went out one evening and got back really late). I think this helps because if he knows that I let him off his phyiso when and only when he is really tired etc. Really they are just normal kids but with cf, so they get all those normal mood swings what all 13 year olds get :roll: I suppose the most probs i've had is that he does not want anyone in his school to know, so the creon he takes in secret.This can be hard because he sometimes goes without food. Hope we can chat again bye for now. From hiya.
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15yro
replied on February 18th, 2006
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Hey there, I have a big brother (well hes not really my bro, hes my dads gf's son, its easier to call him a bro) and he is dealing with it incredibly well, ive only known him for 2 years but he is a great guy. He droppped out of skool in 4th year (this is scotland were talkin bout) and he has now been in college for nearly two years. He is leaving college in the summer to go onto university which jus goes to show how dedicated he is to getting a good job and great lifestyle. Let ur son see this post just to show him how he can still lead a great life no matter his state of health.
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CeruleanOne
replied on May 30th, 2006
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Cf Pt
I remember when I was that age I hated pt. Probably because I was "that age" and another because my cf had manifested itself as more a digestive issue and not a respiratory one. To this day pt produces no results.
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musicnotes
replied on March 3rd, 2008
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hey
my sister had it, she barely took half the medication she had to but she did do her treatment everyday
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Charlotte marie
replied on April 26th, 2008
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Hi im 20 and have CF i know that as a teenager i was a nightmare doing medication but i can suggest sport as a good way of improvising. Obviously treatment is needed but cardiovascular sport helps bring up the mucus and i found it worked just as good as physio... especially swimming. I know its not ideal but if you cant get him to do physio try and increase sport that way he will be doing a sort of pyhsio without knowing it! Thats what my mum did with me! I think i was at every after school club they had which was 4 days a week! Also routine helps. For medications and stuff dad brought me a nomad thing so at the beginning of the week you can put all the meds in there then all he will have to do is take it as its all set up ready! Dunno if this will help at all but just know that it isnt just teenagers!! I think all people with cf get fed up of treatment so its a struggle with us all not just your son trust me!! Good luck with it!
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MeganLee22
replied on June 26th, 2009
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Hey, its a phase and you cant make him do anything he doesnt want to. Just like anything else, he will have to learn from his mistakes. but do keep after him about doing his meds and taking his treatment properly! Thats what mothers are for. Im 22 and i still get the Mom lecture, did you do your medications, are you coughing, wheres your inhailer, have you done your vest lately???? Also get him to look up CF in youtube, it shows alot of RIP people on there who habe passes form the illness, and also lung transplants, it makes you appreciate how lucky you are that you are well!! It did for me, thats when i started taking better care of myself, and still trying to! I want to have kids someday and watch them grow and their children grow!!

Thanks!

Megan
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