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Lupus Foot Pain (Page 1)

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I have had lupus for about three years now have awful joint pain I am on plaquenil and relaflen right now it seems to be helping some I still work a full time job but my feet have been giving me problems lately I am overweight also but I wanted to know bout the foot probelms lupus can cause
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First Helper shazmeg
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replied September 14th, 2005
Hi
Hi,

i suffered from terrible foot pain for about three years before being diagnosed with lupus. I also had terrible joint pain. My feet would swell and ache all across the top and around the ankles. They would hurt so, until I would be limping around at work and it was noticeable to others.

Since lupus can cause arthritic like symptoms with your bones and joints, it is quit reasonable to think that it could cause problems with your feet. I used to soak them in a warm foot bath and then stay off of them in the evenings. I also changed the type of shoes I would wear. Low to no heals, no scraps across the tops to aggravate the swelling when it happened, nothing that would hold my feet hostage if they were to swell. I also noticed that the swelling was worse and more noticeable later on in the day. On the weekends I wore sneakers and I made sure that the shoe strings were not tied too tight.

Now, for the past two years, it has dramatically improved. I can wear hells again. The pain still comes back from time to time (once very month or every other month), but is no where near the magnitude that it was when I was really suffering.

Hope this helps!
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replied September 18th, 2005
Re: Lupus Foot Pain
melsaettel wrote:
i have had lupus for about three years now have awful joint pain I am on plaquenil and relaflen right now it seems to be helping some I still work a full time job but my feet have been giving me problems lately I am overweight also but I wanted to know bout the foot probelms lupus can cause


i was diagnosed with lupus in late august and i, too am on plaquenil and relaflen but the foot pain is difficult. I walk very slowly. Hope it improves with time with the plaquenil.
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replied August 19th, 2009
I too have terrible foot pain-a flare up that comes and goes from time to time. I have Lupus. The pain is on top of my foot too. Very sore and tender. It usually lasts a couple of weeks at a time. Very disabling!
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replied August 21st, 2009
Right now my feet feel broken. I have been in denial for 2 years. I have not been back to the MD since my positive ANA and the probable Lupus dx. I go to the gym 5 days a week. Sometimes I do feel bad but overall drugs are NOT the answer for me. Last week I had blood in my urine twice. It seems it is always some reminder lurking in the background of my body. It can be frightening but I just keep going. My heart is what concerns me thus the reason for the gym. This is the worst that my feet have felt. They truly feel fractured.
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replied March 15th, 2012
I had lupus symptoms for 20 years, ignoring them as best I could, going to the gym 5x a week, hiking, jogging, doing yoga, working around pain and tired days, etc - until I went into a flare so bad I couldn't function at all. And that's where I've been for almost a year now. There are a lot of dangerous possibilities that really should at least be monitored, if you have health insurance/access to care. If your kidneys are slipping (blood in urine), you might be fine after a burst of drugs and dead if you keep ignoring it.
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replied April 26th, 2013
I was thinking the same exact thing. I have SYSTEMIC LUPUS and the exact thing was happening to me. Found out that PCP's are not really trained in how or what to do for this type of disease. I spent 5 years with doctors who knew less than I did only to find out after my kidneys shut down that I should have been followed by a Specialist. It began as simple swelling in my legs and feet. I was spilling protien in my urine. All of the signs were there and they basically put band-aids on a more serious problem. They just kept upping my steroid dose. Ultimately to 120 mgs a day. It kept Lupus symptoms at bay but, by then my kidney clearance was less than 10%. By all means please follow up with a Rhumetologist( spelling may be off) that can address Lupus on every level. I've had lupus since 1992 and just this January 2013 I found a local doctor that can treat me. Unbelievable. The closest one to me before now was 450 miles round trip.
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replied August 25th, 2009
Find a doctor you like and tell him/her that you don't want the medication routine, but you should be checked especially the blood in your urine. I have a chinese doc so when I don't want the major drugs he can usually put together herbs that work. His wife is an accupuncturist. There are a lot of alternatives out there. but not doing anything if you have Lupus is not the answer.
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replied April 11th, 2010
Re: Lupus Foot Pain
MELSAETTEL wrote:
I have had lupus for about three years now have awful joint pain I am on plaquenil and relaflen right now it seems to be helping some I still work a full time job but my feet have been giving me problems lately I am overweight also but I wanted to know bout the foot probelms lupus can cause
I too have been having a lot of foot pain, mine feel like a bad case of frostbite, right now it's going on 12 years for me dealing with Lupus, which hasn't been fun at all. This foot pain that am now feeling has been going on for the last week or so, and it was giving me so much problem when I was in the hospital I told the doctor's, but they said I wasn't in there for that problem, only for my 3 uclers, which I needed another blood transfusion. I hope to find out what's going on, this is way too much pain. sadhug
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replied August 20th, 2012
I have been diagnosed with lupus since i was 15 (now 23)
At first it was only external then but in about 2-3 months they
Informed me it was internal also. After becoming pregnant with
My first child (4years old now) I no longer showed signs of
External lupus but about 3 months after delivering her I started to get
Big red patches on my feet and toes they are extreamely painful
And hurt to the touch I went to my reumatologist and he diagnosed
Me with auto amuin visculitos which is cause from lupus he told me
I would have to be on steraroids the rest of my life (not going to happen)
So I've been trying to control it with natural methods although there not
Really working I would rather live with for pain than die because of some
Side affect of a medication (I was on plaqunill for 6 years and my liver started
To show signs of damage so I stopped taking it cause it was no longer
Working for me so now I just live with the pain and take it day to day).....
I hope this helps
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replied August 22nd, 2010
Thank Goodness I am not crazy. I too, have Lupus and am on plaquenil. My feet are so painful and it makes me sick at my stomach. Funny how with Lupus,just the fact others have the same symptoms is comforting. What would be more comforting is some type of explanation as to why and what to do to make it stop.
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replied August 29th, 2010
burning sensation in heels
I have been diagnosed with lupus since June 2010 and have been on plaquenil and prednesone. For the past six weeks my heals have been burning and my calf musles seem to be shortened to the point that I limp all the time. The symptoms do not seem to be improving. Any suggestions on what to do about the symptoms?
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replied April 18th, 2012
foot Issues
I have had Lupus for 15yrs and suffered alot with foot pain to bottoms and top untill I finally went to my Foot Dr (and friend) and he said I had a morton's neuroma and the top was a bone spur. 3mos ago he repaired them and it is so much better that next week I am having the other foot done along with a bunion. These are not related to my Lupus they are related to the shoes and hi-heels I have worn all my life. Be kind to yourself and take care of those feet! Good Luck
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replied September 5th, 2010
I have lupus and my feet hurt all the time. It used to just be around my knees but my feet are getting steadily worse. I am on Plaquenil. Now both feet actually have a twitching, pulsating or jumping under the skin all along the arch. Sometimes my big toe moves back and forth on its own. The only thing that seems to help is putting them up. Does anyone else have this happen?
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replied September 29th, 2010
Foot Pain and Lupus
I am 49 and my lupus has been in remission/dormant for almost 20 yrs. I was diagnosed at 27 yrs old and put on plaquenil and Orudis (gave me an ulcer) and Trazadone for depression. I suffered from extreme fatigue and,arthritis in my knees, and hands. My body would literally freeze up at night. Prior to my diagnosis I had terrible foot pain. My symptoms just starting going away until one day they just didn't exist. My bloodwork still shows levels for a pos diagnosis. Recently that foot pain has returned and I am praying that it is because I work on my feet, 7 hours per shift on concrete floors. My body is also very sore and stiff. I take 800mg ibuprofen almost everyday and hope for the best. Unfortunately, unlike before, I have NO health insurance. Keep positive thoughts and remember you have the disease, don't let it have you.
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replied November 22nd, 2010
My dear wife has Lupus SLE and for the last 6 months (off/on), her feet are aching. She tells me that they hurt so much that she would prefer to have stumps rather than keep trying to get past the pain and that the pain makes her feel very sick.

Her job is walking/standing for 8 hrs 5 days a week. We have tried remedial massage, no more pain arthritis cream/spray, high level painkillers and home massage. We went to a Podiatrist to see if she needed special shoes, but nothing conclusive there.

Nothing appears to work, she didn't got to work today....anyone out there got any ideas on how I can give her a better outlook for life please?

Worried husband.
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replied October 6th, 2012
Lupus and foot pain
I to have SLE and the pain in my feet is constant but, my podiatrist made me inserts for my shoes and it has helped a little but, i still have a lot of pain in legs but, i am a mother of 4 and i work full time so the pain is something i have learned to live with. Tell your wife to hang in there and is lucky to have a husband that supports her. Smile My husband is my rock and when i have aday when i have to just drop he handles the soccer dropoffs and bath time and it is a huge help!
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replied October 6th, 2012
I to have SLE and the pain in my feet is constant but, my podiatrist made me inserts for my shoes and it has helped a little but, i still have a lot of pain in legs but, i am a mother of 4 and i work full time so the pain is something i have learned to live with. Tell your wife to hang in there and is lucky to have a husband that supports her. Smile
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replied January 26th, 2011
i been out for 3 wks w/foot pain, i had been dx w/lupus before but i stoped taking meds when i felt better. im back to dr, taking savella drugs and waiting for my upcomming app. i know im in bad shape, i feel it too. im so stiff and pain is undescribable.i have no tears left, ive been crying so much. my feet, shoulder, hands are hurt badly. hopefully dr will find solution.
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replied January 26th, 2011
i been out for 3 wks w/foot pain, i had been dx w/lupus before but i stoped taking meds when i felt better. im back to dr, taking savella drugs and waiting for my upcomming app. i know im in bad shape, i feel it too. im so stiff and pain is undescribable.i have no tears left, ive been crying so much. my feet, shoulder, hands are hurt badly. hopefully dr will find solution.
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replied February 27th, 2011
My doctor was sure I had lupus until my ANA test -- negative. But here I sit, searching on the web to see why my calves and feet hurt so bad. My calves feels so tight with sharp shooting pains when I lay down at night, and the bottoms of my feet pulsate and feel prickly with a burning sensation. I've had headaches almost daily for months now, a rash (not horrible) on my cheeks and nose and a vein on my ring finger bubbles in the same spot a couple/few times a day. After my negative ANA, my doctor suggested I see a gynecologist. I don't want to have lupus, but SOMETHING is wrong, and I do not see how a gynecologist can help me.
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replied March 4th, 2012
My symptoms are just what you describe. For the last nine months, my feet have been hurting so much I can only stand for a few minutes and walking is a challenge. The soles of my feet burn almost constantly, and as you say, they sometimes feel like there is an electric current running through them. I too have pain in my calves and in my shin muscles. (It feels like I have permanent shin splits.)

I do not have any rash or sores in my mouth. No swelling anywhere. I have a positive ANA.

I just returned from the Mayo Clinic, and I am in a Lupus research group -- they say I do not have Lupus now, but want to see if it develops over the next two years -- and if so, will check my blood with others to see what signs may have been there that were missed.

They are not able to explain (or resolve) my symptoms. I am 52 ... have always been really active and healthy. This is heart-breaking.

I can tell you that I have found physical therapy with ultra sound and a lot of stretching to help the muscle pain that I experience below my knees (calves & shin).

My advice to you is to have your kidney function checked. Also have your doctor check to see if you have fluid on your heart or lungs. The Mayo doctor seemed to think I had Lupus when I described roaming muscle and joint pain as well as pain feet -- but backed away from this diagnosis when my chest/heart/kidney function was normal.

Blessing to you... keep your chin up! I am trying to do the same :
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replied March 4th, 2012
Similar Symptoms
My symptoms are just what you describe. For the last nine months, my feet have been hurting so much I can only stand for a few minutes and walking is a challenge. The soles of my feet burn almost constantly, and as you say, they sometimes feel like there is an electric current running through them. I too have pain in my calves and in my shin muscles. (It feels like I have permanent shin splits.)

I do not have any rash or sores in my mouth. No swelling anywhere. I have a positive ANA.

I just returned from the Mayo Clinic, and I am in a Lupus research group -- they say I do not have Lupus now, but want to see if it develops over the next two years -- and if so, will check my blood with others to see what signs may have been there that were missed.

They are not able to explain (or resolve) my symptoms. I am 52 ... have always been really active and healthy. This is heart-breaking.

I can tell you that I have found physical therapy with ultra sound and a lot of stretching to help the muscle pain that I experience below my knees (calves & shin).

My advice to you is to have your kidney function checked. Also have your doctor check to see if you have fluid on your heart or lungs. The Mayo doctor seemed to think I had Lupus when I described roaming muscle and joint pain as well as pain feet -- but backed away from this diagnosis when my chest/heart/kidney function was normal.

Blessing to you... keep your chin up! I am trying to do the same :
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replied April 7th, 2012
Get another Ana test, it may be a contaminated test or sometimes a mistake from the lab.. You have the same symptoms I did AMD I fought for 10 years to find a diagnosis. I was dismissed from nursing school because thr severe pain would cause me to be so tired by afternoon I was falling asleep in class. Everything seems to be calming down now but I am also on daily meds and a good sleep scheduale and I don't over do anymore. I hope this helps some.
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replied March 9th, 2011
35 and hurting
I was dx with Lupus at 33 and two years later am still feeling symptoms on a regular basis. I have had pluracy twice, swollen elbows and aching legs. I am now feeling it in my feet and much like everyone describes it above, it's the top of my feet that hurt. I was on 60mg of predisone daily for almost 3 months. I was increased gradually and then decreased... problem with steriods at least in my case, it affected my leg muscle. I am unable to stand up from a sitting position without using help. For being 35... this bites. I hope that this will go into remission soon... Like the person above, I'm on 800mg of ibuprofen daily to reduce some of the aches. Dr said 800mg every 6 hours was acceptable...
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replied September 19th, 2011
Lupus SLE/Sjrogrens
I was dx with lupus in 1998. It almost killed me. I stayed in hospital for 37 days, the last 9 day they found it to be lupus.I know about the knee pain, back pain, and now foot pain I can hardly walk. And it's getting worst with each day. I also take plaquenil, I don't know if it's helping or not. So sick and tried of this PAIN, and the everyday things that this lupus brings. Also Doc. say the lupus has turned into Sjrogrens
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replied September 19th, 2011
Lupus SLE/Sjrogrens
I was dx with lupus in 1998. It almost killed me. I stayed in hospital for 37 days, the last 9 day they found it to be lupus.I know about the knee pain, back pain, and now foot pain I can hardly walk. And it's getting worst with each day. I also take plaquenil, I don't know if it's helping or not. So sick and tried of this PAIN, and the everyday things that this lupus brings. Also Doc. say the lupus has turned into Sjrogrens.
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replied December 21st, 2011
If you are having considerable foot pain, you should probably be checked for a blood clot. I have Lupus and the foot pain and this is what my Primary suggested. I don't have the clot and it is dx as severe arthritis (duh) but it gave me peace of mind to know.
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replied January 19th, 2012
i have had foot pain for four years now.. my doctors still dont know what it it is.. I stopped going because i felt like they just didnt care they kept switching my doctor. im only 30 and i feel 80. Any suggestions on how to get the doctor to listen without thinkin im just depressed or lying?
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replied April 17th, 2012
Lupus & feet pain
Dont stop going in!! I have been dealing with all of these things for the past year! It started out that my feet would burn & hurt when I ran & then it became more frequently until it was all the time! Then My hands, wrists & elbows started to hurt! My regular Dr. Wanted to blow me off even though my ANA test came back positive! So I pushed & went to the Rheumetologist who did more testing & said I was in early stages of lupus, but that wasn't good enough cause it kept getting worse so I saw a neurologist who kept saying it was auto-immune related but then referred me to an oncologist to rule out cancer! Who also said its auto-immune related! Then after 3 months of back & forth back to the rheumetologist who looked it over & said it developed fully into lupus after having a massive flare where I could hardly walk or stay awake along with turning into pneumonia!!! I am finally on meds & am anxious for them to kick in so I can hopefully feel better especially my feet!!! I am on plaquenil, prednisone, aleve, inhaler & nasal spray (for the pneumonia!) dont give up! Push until you get help! This is miserable! But reading all of yours was very encouraging to me!! Especially to see I wasn't alone with the feet pain!!
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