:d unfortunately, I just recieved the dx of multiple sclerosis, even more unfortunate is the kidneys are a seperate issue. I cannot believe this! I do have the optical neuritis (thought one eye was just weird with the pain), parathesis (things going to sleep etc) and since major exacerbation (attack) I now have moments where my leg drags.
Last week I began feeling a pulled muscle in the kidney (great sign of infection), I had some antibiotics and tried to fix me...Um...Yeah. So it continued and worsened for 3 days, ending in me vomitting violently and unable to hold a sip of water. I have to cath myself daily as I lost my bladder due to ms (does it ever end?), and the urine was just hanging in the cath.
Frequent bathroom trips, small output.....Er said infection. It was size 10 pain. No stone was found. Upon going back to my urologist, he said he did not think it was kidney failure. Although I have 4 inches of paper saying "iga neprhopathy" from 8yrs ago while pregnant. Alports was ruled out. They are now checking my female organs and will scope bladder for cysts. I can handle a lot of pain but not size 10!!!!!!!!! I swoll for x 1yr like I was preggy, but it is now listed as "unknown origin",,great :x
so......The reason I typed all this is to update you all and to let you know that even though I have ms, I have a seperate kidney issue. Uro said it did not show infection. Hint: if youve been on antibiotics, your readings of infection will be clouded and not show what it should. 2 weeks without antibiotics and you should recieve a clear reading.
Now, he said my kidneys did not appear smaller. If your close to failure or your kidney disease has progressed, indeed your kidneys will appear smaller. He also said I was not spilling protien beyond 4,000. I thought it important to mention to you this number, as when I was in renal insufficiency while pregnant the protien was greater than 4,000. We spill the protien, but please note how much your spilling. Keeping a chart of the amount over the years will help you and your doctor to understand exactly how much it has or will progress!
Omega 3 is dependent on where you get it. Local health food stores or walmart will indicate on bottle the daily amount. This is all you need. It cannot reverse anything but it can slow things down.
Exercise of any kind helps you to sweat, thereby releasing the poision thru the pores since some of ours is not being filtered by the kidneys, so the idea is exercise til you sweat! An alternative way to remove fluid from body!~~~
please chart your spillage and make it easy for future doctors to see what your spilling in 2006, vs 2007.
It is possible to spill protien as I mentioned before, due to thinning of membrane lining.
The biggest thing you need to do is find out your gfr!!!!!!!!! This is your kidneys filtration rate and will expose what is going on.
Gfr/creatine/bun,,,,always ask for these levels, sometimes they forget to mark it on lab sheets. 24 hr urine tests are the way to go on this.
It is so hard for me to think this last thing wasnt kidneys, as it began in the lower left of my back,,went up my ribs to beat with my heart,,and then moved to right side, lower (skipped the spine) and with vomitting and lack of output........Im not sure. I have a 24hr urine to do and im definately going to find out : gfr and creatine clearance, and of course the amount of protein.
You may live the rest of your life noneventful of kidneys other than the things they find in the urine, but..........When that quack as you labeled her, lol, said transplant, let me say we will never get one, if we do not document and show the progression and be on top of things , to point out,,hey doc! My kidney is appearing smaller than normal, my protein is now greater than 4,000, etc. Please do not expect them to find it all on their own. Not unless these words are coming from a nephrologist.
I wish you all much success in dealing with and slowing this disease. They all have different names but they all affect the kidneys in pretty much the same way. Keep check on how yours is progressing!
Heads up and smile,
kim
