Hydradenitus Supperativa (too Many Boils) Posted: 09-01-05 09:27am
Hydradenitus supperativa (hs) has been
called many names including "acne
inverse," but is not well known among
patients or physicians. Its name
describes its appearance of oozing,
inflamed sweat glands. This sometimes
debilitating autoimmune disorder appears
as severe, recurrent boils.
Unfortunately, it can often take up to 10
years to diagnose this condition correctly
because of limited awareness by healthcare
professionals and extreme embarrassment
from the nearly one million americans who
suffer from it. Of even greater concern
is that its cause is unknown, there is no
known consistently effective treatment,
and no major ongoing research effort to
aggressively seek a cure.
Hs is a non-contagious, recurrent skin
disease usually found in areas of the body
where there is skin-to-skin contact, such
as in the armpits, groin, thighs, and
under the breasts, and around hair
follicles where sweat glands are located.
Characteristically, it progresses from
boils or abscesses, to hard lumps and
painful, rounded deep-seated inflamed
lesions with subsequent scarring and
chronic seepage (otherwise known as
"suppuration"). These hard lumps occur
under the skin and may grow as large as
baseballs. In many cases, they are very
painful and may persist for years with or
without recurrent inflammation. Inflamed
lumps may lead to extensive drainage,
which may cause the development of sinus
tracts under the skin. These may heal
slowly or not at all, which may then lead
to further inflammation and lumps.
Bacterial infections are possible at these
sites. Draining the lumps may provide
some pain relief, but the lumps and tracts
often recur.
Because hs may be extremely painful and
the drainage may have a foul odor,
sufferers often limit their activities
including work or even going out in
public. As a result, hs sufferers often
suffer from depression as well.
For unknown reasons, hs is often
associated with several other conditions
including polycystic ovarian syndrome
(pcos), insulin resistance, diabetes,
crohns disease, anemia, hyperhidrosis,
acne, and pilonidal cysts
(but I dont know the medication of
it.....Please help me!!!)
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andrea09
New User, Becoming EHEALTHy
Joined: 28 Oct 2005 Posts: 1 Location: ny
Me Too Posted: 10-28-05 20:53pm
It seems as I suffer from the same exact
thing.I have had my first boil at the age
of eleven ever since it has been on going
I just had my glands removed from my arm
pits however they still occur under my
breast legs arm pits as wel my doctor just
simply tells me there is no cure for this
so now i'm at the stage where I at the
doctors every month to get them lanced im
tired and looking for help as well.
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fords
New User, Becoming EHEALTHy
Joined: 27 Feb 2006 Posts: 1 Location: montana
Re: Hydradenitus Supperativa (too Many Boils) Posted: 02-27-06 02:37am
[my husvand suffers from boils under his
arms, abdomen and in his groin. Currently
he had a boil on his chest that is the
size of a golf ball and just as hard. Is
there medication available for this or
does it have to be lanced?
|
ort
New User, Becoming EHEALTHy
Joined: 10 Mar 2008 Posts: 2 Location: ,
hs Posted: 03-10-08 13:19pm
I was just recently diagnosed with having
hs (under armpit) after going to a surgeon
to get them lanced(very painful), I was
told to go to a dermatologist(best thing
that could have happened). She told me
what it was and injected them with some
type of solution and she also told me to
go to the drug store and purchase Dome
Boro (astringent) and mix 1 package with
1 quart of warm water and put wash cloth
in and put on infected area 15 minutes
twice a day. So far this is helping
Hope I can help someone else.
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imsmiley12
New User, Becoming EHEALTHy
Joined: 21 Sep 2008 Posts: 1
HS Posted: 09-21-08 13:51pm
Quite often my doctor is able to help the
outbreaks with high powered antibiotics
and the occasional lancing. Of course, I
contact him at the first sign of my
outbreaks. I have had to have the surgery
on one of my armpits, and I would
recommend this as a last resort as you
lose the use of your arm for a few WEEKS.
Hope this helps some of you.
