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One Sure Way to Prevent Siezures

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Medical Questions-> Health Forums -> Epilepsy -> One Sure Way to Prevent Siezures
Medical Questions

Do you want to be siezure free?
Are you willing to do different things?
55%
 55%  [ 5 ]
How bad do you want siezures to end?
44%
 44%  [ 4 ]
Total Votes : 9

Author Message
cameo

New User, Becoming EHEALTHy
Joined: 30 Aug 2005
Posts: 18
Location: Salem, Oregon USA
One Sure Way to Prevent Siezures
Posted: 08-30-05 17:24pm

If you'd like to know simply contact me at heuerca mie@yahoo.Com
you will be shocked!
Cameo
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Critter074

New User, Becoming EHEALTHy
Joined: 19 Sep 2005
Posts: 9
Re: One Sure Way to Prevent Siezures
Posted: 09-19-05 16:23pm

cameo wrote:
if you'd like to know simply contact me at heuerca mie@yahoo.Com
you will be shocked!

Cameo


call me a skeptic, but it seems if there was a "sure" way of stopping seizures, nobody would be having them and we wouldn't even be here. :shock:
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cameo

New User, Becoming EHEALTHy
Joined: 30 Aug 2005
Posts: 18
Location: Salem, Oregon USA
You'd Be Surprised!
Posted: 09-19-05 16:52pm

I aquired epilepsy through medical malpractice "to stress how bad my seizures were"
there's only one sure way of staying seizure free, and most people do not have a clue to what it is. That's why people keep having seizures.
If you'd like to know what that way is, and you're are serious to find how to stop seizures, send me an e-mail.
Heuerca mie@yahoo.Com
thanks,
camie heuer
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myloth

New User, Becoming EHEALTHy
Joined: 23 Sep 2005
Posts: 1
Location: NY
Preventing Siezures
Posted: 09-23-05 17:35pm

Hi

i was diagniosed with epilepsey like my father before me had epilepsey as well.I'd just like to point out while this may not apply to everyone(keep that in mind please.),i took dialantin for 5 years(i have not taken an anti-convulsive since 89.) after my 2nd gran mal siezure in 84 and have been siezure free for 21 years.Now whether dialantin will help you I can't say but I would suggest you listen to your doctor(as I did.)as they are more qualified than anyone.
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cameo

New User, Becoming EHEALTHy
Joined: 30 Aug 2005
Posts: 18
Location: Salem, Oregon USA
My Cure
Posted: 09-23-05 17:44pm

The cure of my seizures was given to me by a doctor.
The best doctor in the world!
Camie
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osidaia

New User, Becoming EHEALTHy
Joined: 24 Sep 2005
Posts: 1
Location: Florida
Re: One Sure Way to Prevent Siezures
Posted: 09-24-05 10:44am

cameo wrote:
if you'd like to know simply contact me at heuerca mie@yahoo.Com
you will be shocked!

Cameo



uhm, forgive me for saying this and I mean no disrespect, but if you really want people to know your one sure way to prevent seizures why don't you just post it here? Your message really sounds like address fishing for spam otherwise...
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cameo

New User, Becoming EHEALTHy
Joined: 30 Aug 2005
Posts: 18
Location: Salem, Oregon USA
I Kept It a Secret Because..
Posted: 09-24-05 14:25pm

The cure is marijuana.
Since i've became a medical marijuana patient through my doctor, I haven't had a seizure in five years. I kept it confidential because of the cures nature.
Camie
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pianist995

New User, Becoming EHEALTHy
Joined: 17 Oct 2005
Posts: 9
Location: Idaho
Re: I Kept It a Secret Because..
Posted: 10-17-05 13:47pm

cameo wrote:
the cure is marijuana.

Since i've became a medical marijuana patient through my doctor, I haven't had a seizure in five years. I kept it confidential because of the cures nature.
Camie


my serious question to you is, does this work for every single person on seizures? Because if you notice, not even every medication works for everyone, in any certain dosage or any certain combination of medications. It may have worked for you, but you cannot *possibly* claim it will certainly work for everyone, so please don't.
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HennieSnyman

New User, Becoming EHEALTHy
Joined: 30 Oct 2005
Posts: 24
Location: Arusha, Tanzania

Posted: 10-30-05 17:31pm

I agree,
it does not work for everyone.


I had my first tonic-clonic experience in '78 as a child in primary school.

Since then i've been on doses of lamotrigine, phenobarbital, phenytoin, sodium valproate and valproic acid strong enough to kill a mule.

These were prescribed by the brightest (and most expensive) minds in south africa, the uk and canada.

If the epilepsy wasn't enough I then sufferred from paranoia, phsycosis and skin rash just to name a few. During high school (puberty) I was so doped-up I couldn't string a sentence together without stopping and asking for directions. And I still had seizures, just not as often.
I never had any friends, nor did I have any relationships, I did poorly at school and couldn't attend university. I was unable to keep a job because nobody wanted to work with me because of my mood swings.

I considered suicide every day since I was 13 but could not "live with" what that would do to my mom.

Interestingly, I have never spoken to a neurologist who actually has epilepsy. I'm sure they're out there, i've just not met them yet.
Personally I don't believe they know best. They might have a good understanding of your history and symptoms but at the end of the day it's all a guessing game.

In 2000 I started using cannabis after it was suggested by a canadian neurologist as a last resort before considering surgery.

Since I stared smoking pot, one joint a day, after work, before I have supper, I have had zero tonic-clonic seizures and I have stopped taking medication during the past two years.

My hands and face twitch now and then when I overdo things (become stressed or forget to eat regular meals), but at least my head is clear and my liver will last.

I'm now (all of a sardeen) a successfull systems engineer who can finally enjoy a loving relationship and actually remember something someone tells me. Who knows, I might even get married and slap a smile on my mom's dial with a grand child. God willing.

I choose a joint-a-day over the medication and side effects any day of the week and twice on sundays.

Imho, if it wasn't for the narrow-mindedness and greed of government and the medical fraternity, we would have been able to improve the quality-of-life for many people suffering from epilepsy decades ago.

Please do some research. You will find that cannabis was used thousands of years ago by the greeks, romans and even egyptions for this very purpose.

I'm not saying it works for everybody because it doesn't.
There are obvious moral and legal implications which needs to be considered and you have to take into account that with epilepsy each person's condition is very unique.

In my case the doctors have never been able to pin-point the cause of my seizures.

Do a google search for "epilspsy cannabis". Spend some time and get the facts.

I'm not a "pot-head" and I don't do drugs.
I don't show up "stoned" anywhere as that is not the example I want to set.

And I pray that other people sufferring from epilepsy could be as fortunate as I have been, in finding something which improved my life to the extent of me now being refered to as someone with a sense of humour and not "that guy with epilepsy"
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bealine

New User, Becoming EHEALTHy
Joined: 18 Nov 2005
Posts: 9
Location: Gatwick Airport United Kingdom

Posted: 11-21-05 03:50am

Quote:
interestingly, I have never spoken to a neurologist who actually has epilepsy. I'm sure they're out there, i've just not met them yet.


that's an interesting one!!! As, I believe, one in ten people develop epilepsy at some stage in their lives, there must be the odd one or two out there!

Presumably, the maijuana you use medicinally is smoked in the same way a "pot head" would? I assume that nature's drug effecively slows down the brain's activity which, in some cases would prevent seizure, but couldn't be relied upon 100%.

The difficulty I can see with this is in everyday adult life. My daughter's insurance company, and the drivers' licence authority, are quite happy for her to drive, secure in the knowledge she has been seizure free for over a year and taking prescribed sodium valproate. Would they be so happy if she was smoking "wacky baccy" - I think not!!!

I think, cameo, there is a ray of hope with your suggestion and it wouldn't hurt for anyone to try, although bear in mind it might not be 100% effective - good luck with staying seizure free!
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HennieSnyman

New User, Becoming EHEALTHy
Joined: 30 Oct 2005
Posts: 24
Location: Arusha, Tanzania

Posted: 11-22-05 10:45am

One in ten (americans) experience a single sizure once in their lifetimes. That hardly qualifies as having epilepsy.

H endrik_snyman@hotmail.Com
if you find that neuro who has epilepsy please pass-on my e-mail addy.
I'll be his/her best patient.
Lol.

Here in tanzania (can't remember the name) there is remote avillage in the interior somewhere, where 200 out of 10 000 people have epilepsy. Mostly the kids. (they usually die before reaching adulthood)

apparently the people in this village all have a genetic disorder that gets passed down, only if both parents have the defective gene.
They call it kifafa (to be like dead/dying and rigid).

Sadly the ones with epilepsy used to be shunned by the community and were left to fry when they fall in the fire or left to drown if they fall in the river.

When I tell people that I also have epilepsy they usually take a step back and stare at me through squinty eyes, make excuses and walk away at a brisk pace.

They believe that epilepsy (kifafa) is a direct punishment from god for wrongs done to neighbours/family.

Luckily epilepsy education projects are slowly starting to change that attitude but I think it will be many years still before people in rural africa let go of the spiritual connection and accept epilepsy sufferers as human beings and not "the dammed".




Smiles,

hendrik.
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