Joined: 23 Jun 2005 Posts: 20 Location: South Carolina
Blood Clots (dvt) Posted: 08-12-05 13:29pm
Hi,
has anyone ever experienced blood clots
(dvt's). I have had two boughts with
blood clots. Once in sept. 2003 and
again in aug of 2005. Both required
hospitalization. If so, would you please
share you experiences with me....
I had a greenfield filter put in to catch
any clots that might break a loose and I
was wondering if anyone ever had any
experiences with such a filter. I heard
that they can sometimes get infected. I
heard that they are not 100% guaranteed as
a clot could break loose and still get
through the filter, etc. Is this true.
I also, have been on coumadin for the last
2 years. Just a month ago my doctor
checked my pt/inr level and it was too low
(normally levels would be kept at 2 but
for me it's 3 because the clots did not
dissolve at 2) and he doubled my dosaged
of blood thinner. Then last week I kept
feeling dizzy and lightheaded and found
out that my pt/inr was tooooo thin 7.65
(dangerous). Does anyone know whether or
not lupus could be causing my blood
thinness levels to fluctuate?
I'd appreciate any replies.
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dangell
New User, Becoming EHEALTHy
Joined: 21 Aug 2005 Posts: 6 Location: Indiana
Posted: 08-21-05 13:40pm
I have had 3 serious bouts with blood
clots and have been on thinner for 15yrs.
Dr did a test that said something was
lacking in my blood that made me prone to
clots and I will never get off thinner for
the rest of my life. A filter was never
mentioned. I hate the blood thinner as
it actually is a minute form of rat
poison. They say there won't ever be
side effects, but I think years of poison
has to have some effects. It might be
the cause of my memory problems that I am
having now at age 46.
You really have to be careful how
you eat and around any serious infections
you get. Both can make your blood to
thin. A kidney infection sent my protine
to 12 and I could have died because my
blood was too thin. I had to be
hospitalized and put on vitamin k shots.
Be careful and read everything you can on
it. A warning to all parents out there
also. At 16 I took one birth control
pill and it almost killed me. My parents
didn't believe me about my leg swelling.
That is how I found out about my clotting
problem.
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Hollydc
New User, Becoming EHEALTHy
Joined: 23 Jun 2005 Posts: 20 Location: South Carolina
Thanks For the Reply! Posted: 08-23-05 13:18pm
Thanks for your reply. How much time
between each of your episode? Does your
legs still hurt where you had the clots,
even though they are gone?
I have been told that I have to stay on
them for the rest of my life as well. I
have noticed a pattern with my clotting
issue. I had my first clot in sept. 2003
and then my second bought last year -
august of 2004. Summer/summer.... I have
been having lupus activity since this past
spring and all of a sudden my pt/inr
tested at 1.6. So my doctor told me to
double my dosage of thinner because they
were keeping my levels at 3 instead of the
normal 2. I had been on thinner for
almost one full year after my first issue
with clots, when the old and new ones were
discovered again (without my leg swelling
this time). So they figured that keeping
it at 2 was not working with me and moved
it up to 3. .... Anyhow my doctor told
me to double my dosage. I was supposed to
see him back in three weeks for a
follow-up but after the second week, I
went to the er. I had started to feel
really light-headed and dizzy as if I was
going to pass out and I have never done
that before. It went on for a few days
and so I decided to go to the er because
of that and also both of my inner thighs
hurting (fearing clots again). My left
one was hurting exactly where my old clots
were. They did an ultrasound and said
that there were no clots at all. Of which
I was relieved, but still bewildered as to
why my legs were hurting. The technician
that did the ultrasound, did tell me that
I had some swollen lymph nodes.....Anyhow,
to make a long story short - they tested
my pt/inr level and it was 7.6. They told
me to stop taking the coumadin because I
could bleed to death if I experienced in
trauma to the body and to follow-up with
my doctor the next day. My doctor did not
start me back on the thinner until after
almost two weeks. I had my test done last
week and now I am receiving a call saying
that I need to increase my dosage again.
This is crazy!!! I really don't see why
they can't find out what is causing it.
I do try to watch all of the green things
(vitamin k) I eat... As a matter of fact
I have never really had a preference for
green veggies.... I do agree with you
that I do not want to remain on this stuff
because I am sure it is toxic and killing
us slowly in another way. I have
purchased kevin troudeou's book and cd's
"natural cures". He suggests vitamin e as
a substitute for blood thinners. I am
going to discuss this with my doctor and
see if this is an option. I have also
been studying other natural remedies and
plan to seek out a naturopath for
guidance. I have been shopping at
earthfare grocery store to get all organic
meats, dairy and veggies, to cut down on
the amount of toxic chemicals i'm
ingesting through eating meat and veggies
with pesticides and that are fed growth
hormones, antibiotics, and other toxic
chemicals. A good catalog I use to read
up on natural remedies is from www.Herbalhealer.Com
if you are interested. They will send you
one free and it is full of info...
Anything to not be stuck on this stuff!
I have also been diagnosed with fibroids
and I have varicose veins cropping up on
my leggs as well as large bruise-like
marks on my leg. I wonder if the blood
thickness and irregularity doesn't have
something to do with all of this? My
doctor says it from the lupus. All of it
has to be connected in some way.
Sometimes I get aggravated and sad,
because it seems as if my doctors are more
focused in on getting the symptoms under
control and not looking for root causes,
other warning signs of other things and
thinking about and discussing preventive
treatments!
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kait77
New User, Becoming EHEALTHy
Joined: 29 Jul 2005 Posts: 13
Posted: 08-29-05 23:38pm
I do not nor have I ever had dvt although
I am at some risk for it. When I was last
pregnant my original rhuemy said I should
be put onto lovenox (sp) as it was easier
to monitor and adjust. I do not know if
this will help but figured maybe it might
since most people I have spoken with are
put on cumodin (sp). I wish you luck and
hope that a happy medium can be
established. I am hoping to avoid blood
thinners if at all possible, but with how
thick my blood was last week am unsure if
that will be possible much longer.
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dangell
New User, Becoming EHEALTHy
Joined: 21 Aug 2005 Posts: 6 Location: Indiana
Dvt Posted: 09-01-05 06:13am
I have had dvt's since I was 16 and I am
now 45. I have had 3 bad ones and
several smaller ones all in my left leg.
That leg is always 1-2 inches
bigger than my right and swells an 1-2
above that nightly. The smaller
veins in the leg are permantly damaged
(one clot will do that). That is were
the constant ache and pain comes from and
I will never be free from it. The
doctor said only wearing the pressure hose
will help the swelling, but wearing those
are awful. I will probably pay for not
wearing them later in life. I purchased
his book and I tried the vitiman e's
(don't bother, didn't help change my
coumindan dose at all!). The fibroids I
got too and I control them by no caffine
at all. They went away after that. So
now I have to watch what I eat in that
area also. Well got to run.....
Glad to hear from you about dvt's and know
someone understands what we have to go
through.
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BrentRuddy
New User, Becoming EHEALTHy
Joined: 07 Sep 2005 Posts: 2 Location: Arizona
Reply to Your Post....blood Clots Posted: 09-07-05 11:20am
April or may of 2003 I survived two
pulmanary embolisms, I was hospitalized
for 5 days after almost passing away and
continued on lovonox injections, I have
been on cummadin like you for two years
and have had a re occurrence 4 weeks ago
and was also given the greenfield filter
in the chest like you. When I was reading
your post it sounded like my life? Pretty
weird? I had a follow up visit with my
hemotologist and he tried to ruin my day.
He said brent, " one of three things is
going to happen to you, 1 your legs are
going to continue to clot up in which you
will spend 5-6 days in the hospital to get
under control for the rest of your life as
my legs clot up they will swell up really
bad.... I said and two? He said emough
clots will find their way to your filter
and plug up.... This means your heart
will stop and I will die. Or the third
option would be the lovonox injections for
the rest of my life....But the problem
with that is osteoporosis will begin to
set in and your quality of life will be
bad until I die... When will that be? He
said I could be dead in 2 days or 50
years......
When I asked him what is causing this? He
said so far the only thing that is showing
up is a low factor 5 reading on the labs.
I asked low? He replied yes low though it
is still in the normal range. He said
there is nothing I can do it is heretitary
...... I asked you mean I have had this
my hole life? The gene,? Yes he said
i said thank you and bye. Needles to say
I am not going back to him anymore. When
a patient has nothing left but hope and
desire I don't believe the doctor should
try to take that away.
A brief history on me I am 6'1" and 270
lbs. I have been type two diabetic for
over ten years I am 41 years old in a
couple of days I also have high colesterol
and now blot clotting disorders. I am
taking about 10 pills a day to fight away
these things.
My theory is this. If this gene was in me
my whole life I would have been fighting
these three deseases my whole life? I
have been. I believe I am overweight by
70lbs. Minimum I believe I dont sleep
right, and for these past 20 years I have
not eaten or excercised right?
I bought the book from kevin tredeaux
called the natural cures they don't want
you to know about. I believe he is on the
right track
from 2 weeks ago I have given up fast
foods, packaged foods red meat by 90% I
drink more purified waters, I am eating
more fiber fruits and vegatables. I
believe when I loose this weight I will no
longer have to take the diabetic and
cholesterol meds I also believe by
flushing my body with organic fresh foods
and getting the perscription and non
perscription drugs out of my body I will
also eliminate this clotting issue.
I am tired of hearing there is no cure for
what we have. I will prove them wrong
hopefully, sorry for all the gramar and
spelling errors, I didn't have time to
check it
brent
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Hollydc
New User, Becoming EHEALTHy
Joined: 23 Jun 2005 Posts: 20 Location: South Carolina
Hi Brent! Posted: 09-14-05 09:25am
Hi brent,
sorry to hear that you have been fighting
this same battle as I have. You made the
right decision on changing doctors. I had
to do it a few times and it was for the
better. Doctors are human, they make
mistakes, and they sometimes say and do
the wrong things. They can become
complacent with their patients and stop
seeing them has human beings with
feelings, emotions, hopes and dreams. I
believe they become callus and numb so
much that they may loose sight of how to
be sympathetic to their patients. I do
not know how spiritual you are but this is
how I stay strong through the tuff times:
I put my faith in god and not in man
because man is not perfect and god is not
a man so he has no reason to lie! We are
all here for a reason and purpose, and the
reason that both you and I are still here
living and breathing is because we still
have things to do! If those times before
were "our times" we would not be here
today, writing each other! Man can only
tell you what he thinks (doctors) but he
does not know any definite things....
As far as the clot issue is concerned, I
was never really told why this is
happening to me. Also, when I asked about
the filter, I was told that it works 90%.
I asked what would happen if a clot did
break a loose and get caught in the
filter. How would I know? I think I
stumped the doctor by asking that. Of
course, if there is a blockage of any kind
when it comes to the blood getting to the
heart, there's going to be trouble. I was
told that since I am coumadin, that should
not happen. But as you can see, the
coumadin has proven to be false hope as it
has been readjusted more than a few times
(just a few weeks ago at the latest).
Like you, I bought kevin troudeau's cd's
and book and I have been listening and
reading. For the past month, I have
started shopping at "earthfare" grocery
store. The majority of their food and
products are organic. I purchase all of
my poultry and fruits and veggies from
there. I have purchased a shower filter
and began to drink spring water and use it
to cook with. I have just purchased a few
air purifiers also. I said all of this is
definitely worth a try because I truly
believe our bodies have the capacity to
heal itself. We just have to take care of
it. I hope to soon start a walking
regimen (although I have a treadmill, my
doctor says it's best to walk outdoors).
I am 31years old, 5'5 and I weigh 198
pounds (although most people say that I do
not look like a weigh that much, I am very
solid to the touch). I used to be
extremely active and I believe that that
is a major part of my problem. I need to
make the time to exercise. I'm just so
busy because I still work full-time and
with the job I have now I have to commute
an hour each way (which my doctor has said
is not good for me with my clotting
condition). A list of my health issues:
lupus, lupus nephritis, pancreatitis
(prescription drug-induced), fibroid
tumors, blood clotting.... My symptoms:
chronic fatigue, brain fog, joint and back
pain and swelling, inability to
concentrate sometimes, night sweats,
excessive hair shedding, acne and acne
scaring, the list goes on and on.
Brent, we need to keep each other
encouraged! I am going to try vitamin e.
It's said that it is a natural blood
thinner. I was taking it one time but
just stopped after I ran out and did not
buy more. I believe like kevin said, we
need to make sure that the supplements
that we take do not have harmful chemicals
in them and are also easy to dissolve in
our systems. Andrew lessman's vitamins
(www.Hsn.Com or do a general web search
for his company's website)) are pure, high
quality and finely grained. His capsules
are easily dissolved caps made out of
gelatin. I would trust his vitamin e
supplements and I plan to purchase some.
I will start taking them and then increase
the dosage until I get the results that I
need. I plan to see if there is a change
in my pt/inr test results after I start
taking the vitamin e..... I also have
just started a natural colon cleanse and
plan to follow-up with a liver and kidney
detox/cleanse, to a candida cleanse, and
then move on to a parasite cleanse. Go to
www.Herbalhealer.Com
and request a free catalog be mailed to
you (look half way down the page on the
left hand side for the "free catalog"
button). The catalog is 120 pages long
and is chalk full of interesting facts
about different natural herbs and how they
can be beneficial to our ailments.
Keep in touch and let me know how it goes
as you go through your voyage of following
kevin's advise.
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Shyness
New User, Becoming EHEALTHy
Joined: 05 Oct 2005 Posts: 5 Location: Barbados
Posted: 10-07-05 12:53pm
Hi hollydc
greetings from the island of barbados.
I have been diagnose with lupus over a
year ago and one of my more serious cases
thus far has indeed been a blood clot to
the lungs. I was hospitalize for three
days, unfortunately the doctors treated me
for something else (i was lucky to make it
out of the hospital alive) I only found
out I clotted after my private doctor
insisted I take a test. That was one
year ago. I am still on blood thinner,
warphrin, my doc has indicated it may be
for life. So far I have had no serious
side effects (that I know of) but I have
to watch what I eat very carefully. I
am also new to this site and I would be
pleased to hear from you.
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BrentRuddy
New User, Becoming EHEALTHy
Joined: 07 Sep 2005 Posts: 2 Location: Arizona
Sorry It Took So Long For Me to Respond Again, Posted: 10-12-05 05:03am
The latest, my coumadin levels have been
adjusted again and am currently taking
15mg. To maintain a 29.5 with a 3.2 lab.
The latest problem has been rectal
bleeding for 6 weeks now. Staying
positive I believe the coumadin along with
a pollup or hemroid bursting has caused
this symptom. I really don't want to
think about the other possibillities yet.
I have scheduled an appointment with my
gastrointerologists for the 18th of this
month. I had a cholonoscopy done 1.5
years ago and aside from removing a few
non cancerous polleps he mentioned
everything was okay. For some reason my
family doctor wants to see me on the 20th.
First time my doctors have called me.
This has me alittle concerned... Oh
well.
I am getting ready to build a new house.
This project should keep me busy and my
mind off of my fears I hope? I have been
talking to god alot lately myself, but
sometimes wonder if he really hears me?
Maybe some day my answers will come.
I hope everything with you starts to get
better
brent
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stacy harper
New User, Becoming EHEALTHy
Joined: 09 Apr 2008 Posts: 1
me Posted: 04-09-08 12:32pm
i have lupus and i have DVT's i am 16 yars
old and the frist thing that happend is
three years ago i went into the docter and
i could not brith so they sent me to get a
oltersound and my abdumed and my lugs were
full of clots so they sent me to the ER
and they did some X-rays of my cest and
looked at my legs my intirer body was full
of clots i had a few sergers and i had to
be air lefted to childers hospitl becuase
there was no docter here that could take
care of me and in then the past few mounts
i have been dignost with lupus and i am so
up set becuase i dont want to have blood
cots and lupus so i am upset and need
supotnt from other people who have this
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enviable_kitty
New User, Becoming EHEALTHy
Joined: 01 Jul 2008 Posts: 1
Me- Posted: 07-01-08 09:22am
Hi,
I am new here I wanted to know the
following I am constantly crying because I
am having to many issues aside from my
Clot in the lung and my leg (left leg) I
have anemia and its said to be causing
this I am taking a special diet and all,
but at times I feel like I have someone
stabbing my chest like pins and needles
more often when I cry. The Doctor told me
if I continue like this it will cause it
to travel perhaps more further to choke an
important part in the lung and caused my
death. I am not sure if he is just telling
me to take anti-depressant because I have
become very sad and its just no reason to
be happy or anything I mean how will I
have a family or even find someone who
loves me? So.. I also heard that
anti-depressants can cause more clots is
anyone else going thou something like this
I feel so bad at times and I do not want
to get like into an place they would want
to keep me there from avoiding more
harm...
