Joined: 10 Aug 2005 Posts: 5 Location: listowel Ontario
Malignant Hyperthermia Posted: 08-11-05 15:31pm
Hi; does anyone out there have this
disease? I was diagnosed in 1992 I had a
muscle biopsy done in tronto by Dr. B.
Britt who is now retired...Alot of people
don't realize that you can get terrible
symptons and become very ill. This is a
very rare medical condition, so there is
not much support out there. Love to hear
from you.
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Ambience24
Experienced User , Rather EHEALTHy
Joined: 09 Aug 2005 Posts: 64
Yes Posted: 08-11-05 15:56pm
It runs in my family and I met a guy (
past good friend) who used to have it. I
take it you have a card with you incase of
emergency. It's very rare, and not often
does anything bad happen, but beware
general anesthtic etc, as this is not good
for a sufferer as it's allergy based.
Not many nurses know about this but
doctors are well informed. Talk to them
about it, as you say it's very rare, so
they deal with this disease text book
style. It is life threatening, but we are
all okay, my bro's and sisters also and we
have had general.
No there isn't much support out there, I
agree. Speak to the doctor and ask about
councelling to help you feel better in
yourself.
Take care, and good luck sweetheart!
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b1pjcp42
New User, Becoming EHEALTHy
Joined: 10 Aug 2005 Posts: 5 Location: listowel Ontario
Malignant Hyperthermia Posted: 08-12-05 12:08pm
Hello; thank you for your quick reply..I
suppose you have figured out that i'm also
the one asking about bowel problems. I
will be taking steps to try and relax more
and I will be talking to my doctor about
some counselling to help me deal with my
illness. Thanks...My grandmother died of
mh...But of course no one knew at that
time. Her organs all swelled and grew
into one another, so my question is "this
might be my bowel problem?" my sister also
had mh but passed on 11 years ago. Take
care and thanks again.
