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Q: Please Help
asked by: bethanne on August 10th, 2005
New User
I have felt very unwell over the past year and a half. I'm always tired, feel run-down, and just not as clear-headed some times. I even quit my job as a teacher after the school year b/c I felt physically unable to handle the work there and being a decent mom and wife at home.

Two weeks ago I felt like I was dying. My joints ached so badly...Especially in my legs. I felt weak and had chills and low-grade fever. It hurt to pee, so I assumed I had a bladder infection.

When I went to the Dr. The urinalysis showed white blood cells, but no bacteria, so they said it wasn't a uti. The dr was stumped. He told me to go to my gyno as maybe I had something going on on my ovaries....

I went home and the next day I thought I was having a heart attack. My chest was tight and it hurt to breathe. I felt like someone was standing on my chest. It would come and go, so I figured it wasn't that serious and I left it alone.

I went to the gyno the next day...All the symptoms still present. I looked so weird because when I walked the bottoms of my feet hurt along with the joints in the legs. I wanted to just cry. I had just had my "normal" gyno exam 3 weeks prior, so the Dr. Didn't feel the need to examine me. He was at a loss b/c like at my general dr's office, my urinalysis showed no bacteria which is what causes uti's.....He saw the white blood cells, though, so he told me to take antibiotics anyway just in case.

Well, in a day or so I felt perfectly normal. Figured that I just had a weird uti or something...No biggie.

Yesterday, the chest pain came back. Very sharp when I breathe in. Tight overall. I called the Dr. (feeling embarrassed and like a stinkin' hypochondriac) and they said my Dr. Wasn't going to be in the next day but I could see another. I went in today. I thought I was beginning to notice the soreness in my legs returning, but I didn't mention it to this new Dr. He asked questions about my chest discomfort and almost immediately diagnosed "pleurisy". I got a shot and was told I would feel better in 6 hours.

When I got home I looked up pleurisy and was very disappointed to see it is typically a symptom ....... So I wondered what in the world could be causing this strange symptom? I found a list of scary diseases such as lung cancer, heart disease, blood clots, and pneumonia. Then I found lupus.

When I saw the symptoms of lupus I saw some very familiar things:
-just a few days ago my husband noticed my toes "looked dead"...They were purple.
-i seem to get sores in my mouth about once a month for the past 6 months.
-joint pain
-pleurisy
-depression-i have been on effexor for over a year now and have really struggled as it gets worse and worse.
-fatigue

i don't know. I am sick of feeling sick. I am normally the healthy one in the family. I am constantly complaining and it is taking a toll on my family. I'm scared to take these thoughts to my Dr.....So I thought i'd see what you guys think.

Thanks in advance!
Beth
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Hollydc
replied on August 12th, 2005
New User
Hi
Hi,

i am so sorry that you have been experiencing all of these symptoms. I hope and pray that you are not facing a lupus diagnosis. I will say that your symptoms are very common to other illnesses besides lupus such as sarcadosis, fibromyalgia, and so on.... Personally, it took me almost 5 years before I was officially diagnosed. I spent 2 years going to a rheumy and him saying that I had migratory arthritis (because the pain and inflammation moved around from joint to joint randomly). Then another 2 saying that I had sjogrens syndrome (after a lip biopsy was done) before my final diagnosis. I had and still have some of the symptoms you mentioned from time to time. Most recently is the chest pain but I have not been diagnosed with pleurisy. The doctors seem baffled. I had an echo-chardiogram and chest x-ray done and they came back normal. So as it stands today, I still don't know what's wrong. I still have strange chest pains, heart flutters, and a full feeling in my abdomen. I have been going through a light flare since april.... As for my suggestions to you: ask as to be seen by a rheumotologist and work diligently with him for a proper diagnosis. In the mean time get plenty of sleep, exercise whenever possible, eat healthier, and stay out of the sun and wear sunscreen (spf 40 ), hats, long sleeves etc...
I hope your health improves and I hope this helps you in some way.
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kait77
replied on August 16th, 2005
New User
Some Things to Do Mean Time
You need to keep a symptom log and also log your temp at least 3 times every day. If you get rashes take pictures. If your toes turn purple again have your husband take a picture or ten. Doumenting everything will help the doctor figure out what is wrong. Never ever again fail to tell your doctor of a symptom no matter how small or insignificant it may seem to you. Having an accurate record both your own and your doctor's is vital to figuring out what is wrong. If your antidepressant isn't helping then maybe it is time for a change in medication or treatment. You need to have a long apointment with your regular doctor and explain everything that has been going on ask that things like mono be checked for as some viruses can cause your symptoms and also tend to hang around for a long time. Ask to have your kidney function tested and for a clean catch urine sample to be cultured just in case the bateria was missed. You need to have everything ruled out before you can begin the testing for lupus- at least this was my experience. You need to develop a trusting relationship with your regular doctor and establish that things aren't right and you want to deal with it and move on with your life. Unless you do so you will spend a lot of time worrying and suffering needlessly.
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