|i have been having seizures in my left arm for about 5 years now. I have had 4 grand mals in the past all of which began with my arm seizing. Basically it's a clonic seizure that feels like it begins in my left sholder. My arm stiffens for a couple seconds then begins to jerk quick to start and slows down to a stop. Afterward I am unable to use my arm for about 5 seconds. I don't lose conciousness, I feel mostly normal during it although it is a bit painful, I can speak and everything else is fine.
Here is the strange part. My seizures aren't random. I have them every night when I go to sleep but it has nothing to do with sleep. Basically I lie down and if I concentrate I will not have a seizure, but as soon as I relax i'll have one. Very predictable usually. It appears to be triggered by lying down! At first it seems like it's a nerve issue or some kind of twitch but I have had grand mals that begin with my arm doing the exact same thing but it then spreads over my body and results in a very unpleasant experiance.
I am taking dilantin and carbatrol which has prevented a grand mal but I still have these arm seizures a lot.
Anyone herd of this or have a similar experiance?
Another question I am very curious about is what are your grand mals like? Do you just pass out and wake up tired and confused? For me I feel like I loose the ability to see and hear and experiance the seizure for a short while still concious in darkness then wake up later all messed up..