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Conditions and Diseases > Epilepsy Forum > Arm Seizures, Doesn't Add Up!
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Q: Arm Seizures, Doesn't Add Up!
asked by: Logike30 on August 9th, 2005
New User
This is my frist time posting on this site. I will spare you the lengthy description of my issue ( it is long and doesn't make much sence ) and get right to it.

I have been having seizures in my left arm for about 5 years now. I have had 4 grand mals in the past all of which began with my arm seizing. Basically it's a clonic seizure that feels like it begins in my left sholder. My arm stiffens for a couple seconds then begins to jerk quick to start and slows down to a stop. Afterward I am unable to use my arm for about 5 seconds. I don't lose conciousness, I feel mostly normal during it although it is a bit painful, I can speak and everything else is fine.

Here is the strange part. My seizures aren't random. I have them every night when I go to sleep but it has nothing to do with sleep. Basically I lie down and if I concentrate I will not have a seizure, but as soon as I relax i'll have one. Very predictable usually. It appears to be triggered by lying down! At first it seems like it's a nerve issue or some kind of twitch but I have had grand mals that begin with my arm doing the exact same thing but it then spreads over my body and results in a very unpleasant experiance.

I am taking dilantin and carbatrol which has prevented a grand mal but I still have these arm seizures a lot.

Anyone herd of this or have a similar experiance?

Another question I am very curious about is what are your grand mals like? Do you just pass out and wake up tired and confused? For me I feel like I loose the ability to see and hear and experiance the seizure for a short while still concious in darkness then wake up later all messed up..

I appreciate you reading all this

thanks
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pianist995
replied on October 17th, 2005
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Re: Arm Seizures, Doesn't Add Up!
logike30 wrote:
i have been having seizures in my left arm for about 5 years now. I have had 4 grand mals in the past all of which began with my arm seizing. Basically it's a clonic seizure that feels like it begins in my left sholder. My arm stiffens for a couple seconds then begins to jerk quick to start and slows down to a stop. Afterward I am unable to use my arm for about 5 seconds. I don't lose conciousness, I feel mostly normal during it although it is a bit painful, I can speak and everything else is fine.


Here is the strange part. My seizures aren't random. I have them every night when I go to sleep but it has nothing to do with sleep. Basically I lie down and if I concentrate I will not have a seizure, but as soon as I relax i'll have one. Very predictable usually. It appears to be triggered by lying down! At first it seems like it's a nerve issue or some kind of twitch but I have had grand mals that begin with my arm doing the exact same thing but it then spreads over my body and results in a very unpleasant experiance.

I am taking dilantin and carbatrol which has prevented a grand mal but I still have these arm seizures a lot.


Anyone herd of this or have a similar experiance?


Another question I am very curious about is what are your grand mals like? Do you just pass out and wake up tired and confused? For me I feel like I loose the ability to see and hear and experiance the seizure for a short while still concious in darkness then wake up later all messed up..


well, I have had two seizures is all, the first I believe was a grand mal, though I don't remember either seizure, I was unconscious during them, and wasn't really entirely conscious on that first one for a good 10 or 15 minutes, apparently. My second one was what's called complex partial - I don't remember it, but apparently it was only my arm jerking.

Mine aren't an every night thing, but I can tell you that when I woke up from them, I was very tired and confused for a little while afterward, and for about a week or so afterward I would have trouble with my short term memory. So I don't remember either of mine, but the effects stuck with me for about a week. I'm sorry I can't help more, but that's my experience.
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HennieSnyman
replied on October 30th, 2005
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I never have a "grand mal" out of the blue, I always know i'm going to have one. At least now that i'm older I do, i've learnt to read the signs by now.
I suppose as a child I didn't have the experience to realise what's happening to me.

My seizures have always been multiple petit mals, an aura, and then teh grand mal.

For instance: i'd be studying or typing (always concentration-related) and i'd have a momentary lapse of conscioussness together with a twitch of the hands, face muscles or a quick kick of one of my feet. Or all of the above together. Never for longer than a second or two though.

When this happens I know I have to slow down, relax, maybe go for a walk, sing a little (singing calms me down, strangely enough).

If I don;t stop what i;m doing and relax, i'd experience an aura, a sudden feeling of surrealness, of not really sitting where i'm sitting or not really doing what i'm doing.
When this "aura" happens it's usually a matter of minutes before I lose consciousness and convulse.
My convulsions last anyting from 1 to 8 minutes. A seizure on an empty stomach is always worse than on a full one. I don't drink anymore as I once had a seizure when drunk (in the army) and that was really really hectic. Took me three days to recover enough to get up and walk around.

Usually when I regain consciousness after the convulsions, the best description that I can give is that i'm unable to distinguish my thoughts. I always have a throbbing headache that's so bad i'm not able to speak or concentrate on even the simplest of task, such as walking to my room.
I have difficulty answering people when they ask me questions. I hear them fine but i'm unable to make up my mind on what to ay or do.

I think this is merely my brain that's still firing in a non orderly fashion.
I almost always start crying. I think I do that because it's so frustrating.

Then I go to sleep for a solid day and wake up feeling tired, stiff, sore and hungry.
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