Hi,

ever since I was in 4th grade i've had problems with spilling ketones. I remember for at least one year I had to have snacks during school before and after lunch. Until the age of 16, I would have ketone episodes usually twice a year where I needed an iv.

I'm now 24 and things have been really good, until a year and a half ago, maybe two years ago. That is when I started feeling shaky, light-headed, naussea and would get bad headaches if it had been four or so hours since eating. Eating something would usually make me feel better, unless it had been five or more hours since eating.

Within the last year it has gotten to the point where I get symptoms around the three hour mark. Four hours is my max and sometimes the symptoms appear after two hours, sometimes even sooner. Food sometimes helps and sometimes it just makes me feel worse.

In june I was hospitalized for dehydration and my glucose was a little low and I was spilling ketones. My doctor (who has been my doctor since I was seven and is really good) said i'm hypoglycemic and he thought I knew that. He said he wants me to eat every two hours and said I need complex carbs.

I don't check my blood sugar and i'm wondering if I should. Some days I feel great and other days I feel like crap. Some days I can go four, five and sometimes six hours (if I have too) without eating. And if I miss my evening snack or don't eat what I normally do, I feel awful for a few days.

I do have a neuromuscular disease, which already makes me tire out easy and so I have no energy at all when I experience hypoglycemia symptoms. My disease makes it difficult for me to eat certain foods (i have a tight jaw and have trouble swallowing certain foods), so I know I don't eat as good as I should. It is also hard for me to eat so often.

I'm just looking for advice, suggestions, ideas, etc. Is there some kind of supplement I can take? Any input would be great!