Hi,my names shell and im new to this.A bit
about myself......I'm 22,english,single
mother of two children(a boy and girl).And
I have been treated (although never
diagnosed) for epilepsy,for the past 5 1/2
years.It came on when I had my daughter.I
went through a bad birth...Emergancy
c'section,and I also went into a semi
coma.I went through a stage of 24 hours
where I had about 30 fits.
I had all the scans,mri...Eeg...And ct
scan,but nothing showed up.But the only
way to control my fits was to pescribe me
1600mg eppillim,600mg of phenetoyin.I was
in hospital for about 4 weeks and when I
was discharged I was still suffering
abcsent siezures.My eppillim was dropped
to 1200mg's and I started taking 400mg's
of lamictal a day.These helped me and
within a few months my fits were
controlled.I still suffered with them but
only when I was unwell.I even went 11
months without one once.Then february this
year I started to reduce my eppillim.I
managed to get down to 600mg's a day but I
ended up having a siezure in april.So I
went back up to 600 mg's and I had been
fine.Then 2 weeks ago I was at a wedding
reception when I collapsed and had a grand
mal siezure.I put it down to me standing
too close to the speaker.But then a week
ago I had another fit at my nephews
party.It was different though.I have
always had a warning but it has only ever
lasted about 3 seconds.This time my ears
started to ring and I had chance to run to
the other side of the room,about 20
seconds.I was also awake part way
through.I could hear everybody,i was
shaking,i was cold...Etc.I'v never felt so
scared in all my life.Then on the night I
had another one,the same way except this
time I lost controll of my bladder...First
time.Now I slept the night then next day I
had another one. Also I have been told by
my mother,who witnessed all 3,that my face
went white and my lips were blue.This is
also a new reaction for me.
I ended up going to the hospital just so I
could get my levels checked,and everything
was ok.
The worst thing is I have only managed to
get out my house twice since it
happened.When I did get out,my chest was
tight,my heart was racing and I was short
for breath.The doctor say's this sounds
like a panic attack! I'm scared stiff,i
had this under control and suddenly its
changed.
I don't know what to do???
|
kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
Thanked:0
Posted: 07-25-05 16:02pm
I am so sorry you have had more seizures
lately and they are changing! You are on
lots of medication, too. I would think
that the fear of having more seizures in
public could cause the panic attacks to
start too.....Does the doctor have any
advice on that?
I wonder if there is a better med combo
for you? Seems like the seizures started
picking up when you went down on the meds.
Hang in there with it all and keep
pushing for answers.
I know that "fits" is commonly used in the
uk, but I am not sure what kind of seizure
you mean for that. You mentioned absence
as well. How often are you having
those?
Hang in there
|
shelbe
New User, Becoming EHEALTHy
Joined: 22 Jul 2005 Posts: 39 Location: UK
Thanks: 1
Thanked:0
Thanks For the Reply Posted: 07-25-05 16:48pm
Well the term 'fits',just means
seizures.It can mean seizures of any
kind.
I suffer with abcense seizures every now
and then but when I do they arn't really a
problem.Don't get me wrong,i wish I wasn't
having them but with them...I can cope.
The other seizures I have are grand
mal,but as these have changed lately i'm
not to sure what sort of seizures I am
having now.
I think your right in what you said about
my panic attacks,i am scared sh..Tl.Ss
about collapsing outside.I am not
convinced that my meds is the reason my
fits have increased lately as I had a good
few months after decreasing my eppillim.I
went out clubbing,drinking(not
excessivly),just bieng my usual self
really.Then this suddenly happened.Its
just how everything has changed,the
frecuency,my actions,etc!!!
I have been to my doctor and she has
reffered me to a different consultant and
i'm going private aswell so I can get this
sorted quicker.
It's really messed up my life.I'd picked
myself up just lately.I'm a single mom of
two young children(aged 4&5) and I had
just started to get serious with a guy who
i'v been seeing for about 7 months.He's
always knew about my epilepsy and i'v had
a couple of fits while i'v been seeing
him,but he witnessed one last week.And I
havn't seen him since i'v had these past 3
and because of my panick attacks I havn't
been out to see him.I think this has
really shook him up and quite possibly
scared him off.
Its sad as I was just starting to really
feel something for him.Also I was due to
take my children on holiday next
week.Nothing major but it was going to be
fun for them.Now we can't go and there
questening mommy as to why??How do you
explain it to a 4 and 5 year old??
However hard I try,my epilepsy always
finds some way of taking control of my
life and stopping me from bieng happy.
:cry:
|
lizpickguard
New User, Becoming EHEALTHy
Joined: 30 Aug 2005 Posts: 1
Posted: 08-30-05 11:06am
Hi there, I am sorry to hear of all your
seizure issues. My bf has epilepsy and
after seven years we are now investigating
all kinds of things. He's taking dilantin
but has had some bad ones in the last
year. So we have been looking at
alternative remedies and one thing that we
are looking at now is homeopathy. I have
been going to a homeopath for years (as
well as my family doctor) and have found
success there where I couldn't anywhere
else. After his last big seizure I made
my bf go to the homeopath and am hoping we
might see some results with his
epilepsy.
The biggest thing that stands out to me in
your first post is that your seizures
started after your c-section. All kinds
of things are done to your body during
something like that and it seems obvious
that somewhere in those procedures is the
root cause of your seizures. As you
likely know there are all kinds of causes
of epilepsy and mostly we just can't ever
figure out what they are but in your case
there seems to be a definite starting
point. It could be the medications they
gave you, the spinal anesthetic, some kind
of bacterial infection that they haven't
detected.
I would suggest visiting a homeopath and
telling your story. I can't say for sure
if you will have success but the practice
of homepathy, from what I have learned, is
to find the root cause of issues like this
and treat those (as opposed to only giving
you meds to stop the seizures). Just as
an example of my experience with a
homepath - I had this thing on my eye
called a pterygium, it just started
growing one day, was big red veins running
through my eye, making it permanently
bloodshot. I went to the doctor and she
said it was just something people got,
they didn't know what caused it, and it
would never go away and it might grow
right over my eye and blind me and they
could operate but it would likely just
grow back. I was pretty upset, went to
the homeopath. She said the it was due to
a bacteria that was still trapped in my
body and that the bacteria made me
sensitive to light (which was true!) and
the pterygium was my body trying to
protect my eye from light. She started
treating me for the bacteria that was
causing it and after a couple of months
the damn thing went away. I told my
doctor about it and she found it pretty
interesting. I have had similar success
with other things especially relating to
my periods, those problems mostly being
caused by issues when having my kids -
like synthetic hormones to induce labor.
The homeopath costs money here in canada
but hopefully you can find someone with
reasonable rates. The remedies are not
very expensive, though. I don't know if
any of this will be useful to you but I
just had to write as that stood out to
me.. I'll let you know what happens with
my guy and the homeopath. Good luck with
everything
liz
