I am so sorry you have had more seizures lately and they are changing! You are on lots of medication, too. I would think that the fear of having more seizures in public could cause the panic attacks to start too.....Does the doctor have any advice on that?


I wonder if there is a better med combo for you? Seems like the seizures started picking up when you went down on the meds. Hang in there with it all and keep pushing for answers.

I know that "fits" is commonly used in the uk, but I am not sure what kind of seizure you mean for that. You mentioned absence as well. How often are you having those?

Hang in there

Well the term 'fits',just means seizures.It can mean seizures of any kind.
I suffer with abcense seizures every now and then but when I do they arn't really a problem.Don't get me wrong,i wish I wasn't having them but with them...I can cope.
The other seizures I have are grand mal,but as these have changed lately i'm not to sure what sort of seizures I am having now.
I think your right in what you said about my panic attacks,i am scared sh..Tl.Ss about collapsing outside.I am not convinced that my meds is the reason my fits have increased lately as I had a good few months after decreasing my eppillim.I went out clubbing,drinking(not excessivly),just bieng my usual self really.Then this suddenly happened.Its just how everything has changed,the frecuency,my actions,etc!!!
I have been to my doctor and she has reffered me to a different consultant and i'm going private aswell so I can get this sorted quicker.

It's really messed up my life.I'd picked myself up just lately.I'm a single mom of two young children(aged 4&5) and I had just started to get serious with a guy who i'v been seeing for about 7 months.He's always knew about my epilepsy and i'v had a couple of fits while i'v been seeing him,but he witnessed one last week.And I havn't seen him since i'v had these past 3 and because of my panick attacks I havn't been out to see him.I think this has really shook him up and quite possibly scared him off.
Its sad as I was just starting to really feel something for him.Also I was due to take my children on holiday next week.Nothing major but it was going to be fun for them.Now we can't go and there questening mommy as to why??How do you explain it to a 4 and 5 year old??
However hard I try,my epilepsy always finds some way of taking control of my life and stopping me from bieng happy. :cry:

Hi there, I am sorry to hear of all your seizure issues. My bf has epilepsy and after seven years we are now investigating all kinds of things. He's taking dilantin but has had some bad ones in the last year. So we have been looking at alternative remedies and one thing that we are looking at now is homeopathy. I have been going to a homeopath for years (as well as my family doctor) and have found success there where I couldn't anywhere else. After his last big seizure I made my bf go to the homeopath and am hoping we might see some results with his epilepsy.

The biggest thing that stands out to me in your first post is that your seizures started after your c-section. All kinds of things are done to your body during something like that and it seems obvious that somewhere in those procedures is the root cause of your seizures. As you likely know there are all kinds of causes of epilepsy and mostly we just can't ever figure out what they are but in your case there seems to be a definite starting point. It could be the medications they gave you, the spinal anesthetic, some kind of bacterial infection that they haven't detected.

I would suggest visiting a homeopath and telling your story. I can't say for sure if you will have success but the practice of homepathy, from what I have learned, is to find the root cause of issues like this and treat those (as opposed to only giving you meds to stop the seizures). Just as an example of my experience with a homepath - I had this thing on my eye called a pterygium, it just started growing one day, was big red veins running through my eye, making it permanently bloodshot. I went to the doctor and she said it was just something people got, they didn't know what caused it, and it would never go away and it might grow right over my eye and blind me and they could operate but it would likely just grow back. I was pretty upset, went to the homeopath. She said the it was due to a bacteria that was still trapped in my body and that the bacteria made me sensitive to light (which was true!) and the pterygium was my body trying to protect my eye from light. She started treating me for the bacteria that was causing it and after a couple of months the damn thing went away. I told my doctor about it and she found it pretty interesting. I have had similar success with other things especially relating to my periods, those problems mostly being caused by issues when having my kids - like synthetic hormones to induce labor.

The homeopath costs money here in canada but hopefully you can find someone with reasonable rates. The remedies are not very expensive, though. I don't know if any of this will be useful to you but I just had to write as that stood out to me.. I'll let you know what happens with my guy and the homeopath. Good luck with everything
liz