My sister is 42 years old and was diagnosed with discoid lupus 15 years ago. Her symptoms are as follows:-
- lesions on arms, legs, face, under feet and finger nails and inside ears
- recent incontinence (8 months to 1 year)
- loss of control/numbness in 1 leg below knee so she uses a walker
- loss of hair including eyebrows
she has been on plaqunil and prednisone for almost all the time since she's been diagnosed, yet she doesn't seem to be getting better. Yet in visit after visit to her doctor, her internal organs are fine, blood pressure, eyesight, etc excellent. Dr says he sees no reason why she's as debilitated as she is.
We're at our wits end, can anyone recommed a good dermatologist in the atlanta area, what about a lupus expert. I don't know if her symptoms are side effects of the medication. She stays at home in bed all day and seems unwilling to fight for her health. Yet she eats like a horse, maybe a side effect as well.
I have done quite a bit of research but I have yet to come across a patient with her combined symptoms. Please give some advice that I can pass on to her.