Discoid Lupus - I Desperately Need Some Advice Posted: 07-18-05 12:32pm
My sister is 42 years old and was
diagnosed with discoid lupus 15 years ago.
Her symptoms are as follows:-
- lesions on arms, legs, face, under feet
and finger nails and inside ears
- recent incontinence (8 months to 1
year)
- loss of control/numbness in 1 leg below
knee so she uses a walker
- loss of hair including eyebrows
she has been on plaqunil and prednisone
for almost all the time since she's been
diagnosed, yet she doesn't seem to be
getting better. Yet in visit after visit
to her doctor, her internal organs are
fine, blood pressure, eyesight, etc
excellent. Dr says he sees no reason why
she's as debilitated as she is.
We're at our wits end, can anyone recommed
a good dermatologist in the atlanta area,
what about a lupus expert. I don't know
if her symptoms are side effects of the
medication. She stays at home in bed all
day and seems unwilling to fight for her
health. Yet she eats like a horse, maybe
a side effect as well.
I have done quite a bit of research but I
have yet to come across a patient with her
combined symptoms. Please give some
advice that I can pass on to her.
