I'm happy to say that i've been having the
same success. Ever since I started biking
and lifting again on a day to day basis, I
have not had issues with CU breakouts. My
results happened quickly, after only a few
days. The initial breakouts were
unpleasant, but after pushing through
those it was smooth sailing and i've been
able to freely sweat. I'm glad I have
something that will force me to continue
exercising.
I probably would have never figured out
that pushing through the pain would
eventually give results, but thanks to all
of you I now know that. Hopefully this
will continue to work throughout the
future. Good luck to all of you in your
search for an answer.
|
GJG
New User, Becoming EHEALTHy
Joined: 04 Jan 2008 Posts: 12
Seven Days!! Posted: 06-08-08 03:34am
I've been hive free for a week today. I've
been sweating like a mad man lol. I've
also been working out even more than
before. The first couple of weeks of
working out were very intense but it's way
easier now. Now I'm definitely going to
get in shape like a normal person lol,
without the pain.
Alright guys like I said before.. If you
want guaranteed results, get off your
butts and exercise lol. Seriously though,
drink lots and lots of water, get at least
8 hours of sleep, and EXERCISE until you
sweat. Vitamin B supplements Duper
mentioned should help. I've been taking
them for 5 days now and they have been
great help in my sweating. I think that's
why i've been sweating like crazy.
Anyways, I wish everyone the best of
luck..
|
threesixmafia
New User, Becoming EHEALTHy
Joined: 17 Feb 2008 Posts: 9
Posted: 06-09-08 20:34pm
doc said i had the most severe case he's
ever seen by far in 40 years.
i've tried the exercizing thing like u
guys said dozens of times now. i haven't
exercized for a year and a half now, but i
used to be really fit running almost 5
miles and playing sports everyday.
however i run and run and run til i can't
run anymore, til i feel like i'm about to
die and no sweat comes out. torture can't
be worse than this. those of u guys that
have it severe know what i'm talking
about. it's still the same itching
sensation that you have to get rid of but
it's not a itch it's a knife stabbing you
everywhere.
what are some ways that you guys tried to
sweat? i'm about to graduate from high
school in 2 weeks, and it's almost
positive i can't walk, cause the ceremony
is outside. last minute pictures with
people? gone also, goodbyes with ppl?
probaly gone also as emotions just hurt
too much.
right now i'm on fexofenadine, zyrtec,
hydroxizine, xantac, singulair.
i've tried every single drug there is and
NOTHING helps. only one i haven't tried is
danazol.
with homeopathic: super quercetin, and
some treatment for standard hives that's
in liquid form, plus some weird brown
powder.
somedays i really consider killing myself.
think about it.
with the heat aspect i can't go to the
beach, can't walk to my car in the sun,
can't play simple catch let alone
sports,can't play violin something i've
done for 12 years and made nationals, and
a million other things
with the emotional aspect: my relationship
with girls i like are shot, heck even
dates with them are shot too, i can't read
a book or watch a tv show that's good
without getting a couple of breakouts, i
can't listen to a song that i really like
without going through pain. i'm about to
go to college, i wont' be able to
participate in just about any welcoming
activity, i can't debate, heck i can't
even get into any conversation that
anybody slightly disagrees with me
i'm so tired and sick of life. it's like
impossible to function with this. is there
any medicine out there besides:
fexofenadine, zyrtec, hydroxizine, xantac,
singulair, atarax, benadryl that had it
work for them?
or ANY other thing? Acupuncture does that
really work?
heck if i could half of my life up at
stake to get a cure i would, i'm sorry for
ranting :/
|
GJG
New User, Becoming EHEALTHy
Joined: 04 Jan 2008 Posts: 12
threesixmafia Posted: 06-10-08 03:53am
Don't panic man i know how you feel. Even
though you may think exercise isn't the
answer, keep on exercising. It may take a
long while but it should help..
Talk to you doctor about Xolair. It is
very expensive but it just might help. I
don't know much about it but a person i
know with CU has tried it and had success.
I don't need it anymore because exercise
works for me. Give it a try..
Good Luck..
|
Jon Law
New User, Becoming EHEALTHy
Joined: 24 Nov 2007 Posts: 28
re:threesixmafia Posted: 06-10-08 05:41am
Hey man, I think we all have felt like you
at one stage or another. I couldn't bring
my girlfriend out to a restaurant or
anything cause I'd break out with the heat
in there. My social life took a severe
hammering too.
I think you should try and speak to an
immunologist. This is their field as it's
cause by high levels of IgE which is cause
by the immune system. Immunologists can
prescribe Xolair which is supposed to be
successful in treating this. It can be
expensive but I think in your case if it
is so bad, you can find a way to manage
it. Try and get your doctor to refer you
to an immunologist. Go prepared. Tell them
about this paper:
http://pt.wkhealth.com/pt
/re/algy/abstract.00000381-200802000-00020
.htm;jsessionid=LThdfLvpJnP3y0tvMpfPJ0GPlg
WpG3GJSnnjbLVPvLKfQV1BcJXt!1099057973!1811
95628!8091!-1
Best of luck
|
da1234
New User, Becoming EHEALTHy
Joined: 30 Oct 2007 Posts: 4
Posted: 06-10-08 10:38am
da1234
wrote:
everyone's talking about
exercise and all...
i cant handle doing exercise because
within 5 mins, i die from pain. what i
actually do is sleep at night warm, i turn
on a portable heater and use two blankets.
this keeps me nice and warm but sometimes
i would wake up in the middle of the night
in pain due to the heat. i feel like this
is really working.
i was "cured" of CU for a ~1.5 year
period. but it came back... DAMN! i
thought about what i was doing when the CU
started up again. it came back during the
summer, and during that time, i started to
work at a new place. this place had their
AC jacked up to the max and i would ALWAYS
be freezing, literally shaking from the
cold. and i remember, when i walk home
from the subway station to my place, i
would become all itchy but never really
have redness and the wheals. i was
eventually able to sweat it out and it was
all good. but when fall came around, i
remember there was a couple of nights
where it became cold all of a sudden. i
wasnt ready for it so i slept with one
blanket and no heat in the house. i
remember i was shaking from the cold.
after those few days, the hives started to
come back.
so, what im doing right now, is trying to
keep warm all the time, rather, prevent
being cold. i know this sounds backwards
because for us, being warm kills us. but
these past few weeks, ive been able to
sweat from my forehead and the palms of my
hands which i havent been able to do. it
still kills but not as bad.
it may take a couple months... i remember
the first time i got over CU, i did try to
keep warm in my room during the winter
months, and it SLOWLY went
away.
okay, i came back to this forum because i
am again "cured" of CU. it seems my CU
goes on and off and because of this, i
know the cause of my CU. its due to the
cold. whenever im cold, enough to be
shivering, whether it be from the outside
weather or the AC, my CU starts coming
back. i cant say this is true for
everyone. but my experience last summer
when the CU returned confirms it. but now
its gone again, and this time im gonna
make sure it doesnt come back by keeping
warm at all times. other things i did
that may or may not have contributed to my
curing. basically all the changes ive
made due to this condition...
when i shower, i use dove sensitive skin
unscented soap and always use a rough
exfoliant cloth that you can buy anywhere.
and i always lotion up using vaseline
intensive care hypoallergenic lotion.
also changed my laundry detergent to a
"free" one and did not use any kind of
bounty or scented cloth when drying my
clothes. i did take some zyrtec for a
month, i dont think it helped with the
cure but it did help me to tolerate the
attacks a little more. i always dressed
warm, even in the spring. and when i went
to bed, i turned on my portable heater as
well as use tons of blankets and wear
thick layers of clothes. at the beginning
i would always wake up in the middle of
night itching like crazy. but the good
thing about this was that youre half
asleep and you dont remember the pain the
next day. but the down side is that
because youre always waking up, your sleep
quality decreases. as time went by, i
wouldnt wake up anymore and i would
basically sleep through the itch/pain.
during the day i would still feel the
itch/pain but i guess i was able to sleep
through them now. as for exercise, i did
not exercise at all. its impossible, i
dont konw how others can go through the
pain but for me, i sweat pretty easily so
exercising for more than a few minutes
makes me go crazy with the itch/pain. in
terms of food and diet, i basically stuck
with whatever i was normally eating. i do
try to get vegetables and fruits in but as
a college student, its very difficult and
alot of my diet consisted of fast food.
and in terms of stress, i dont think this
condition has anything to do with stress.
im a very stressful person and its always
on and off but my CU has no correlation
with stress because im always experiencing
it, even now when im "cured".
if you guys have any other questions, just
private message me and ill try to respond,
i may not be able to answer quickly
because i have some things going on in my
life right now.
|
healthydame
New User, Becoming EHEALTHy
Joined: 10 Jun 2008 Posts: 1
Living with CU for 20 years Posted: 06-10-08 15:20pm
Hi, all,
Like the person who moved to the UK, I
didn't have CU until I moved to the U.S.
So I think it might have been triggered by
the stress of the move to a new
environment (both emotional and physical
stress).
I've never been on accutane, though I've
had my share of antibiotics, which seem to
pop up frequently in these posts. And I've
been on birth control pills. The CU is
worse when I'm on the Pill, which leads me
to believe that it is hormonal in nature.
Solutions for me: I have found that if I
drink a lot of water during the day,
exercise daily to sweat things out and
keep out of the sun in the summer, I can
manage it pretty well. It's also a lot
better when I cut out caffeine and spicy
foods (anything that raises the metabolism
or body temperature, basically).
It still catches me by surprise sometimes,
especially when I'm stressed out. Then
it's like it washes over me--it starts on
my scalp and works its way down my neck,
arms, armpits (ouch), chest, belly, and
behind my knees. It's very uncomfortable
but I'm living with it...
|
waiting4cure
New User, Becoming EHEALTHy
Joined: 16 Jun 2008 Posts: 1
hives cures Posted: 06-16-08 00:10am
i started on hydman's hives tabs and the
Apis Mellifica... it seemed to help the
bumps but now i am itcy under my feet, in
my hands and underams... but little to no
bumps... i am also starting with the ACV
and baking soda first thing in the
morning...
|
woogie
New User, Becoming EHEALTHy
Joined: 20 Jan 2007 Posts: 5 Location: TX
Posted: 06-16-08 18:56pm
(i am reposting this since i have got no
replies...)
i had CU 7 years ago or so, it lasted
about a year (of pure hell) then went
away. i almost forgot about that horrible
time in my life when it came back again
last winter. so all last winter was bad,
then summer came around. i live in texas,
work outside, labor intensive... anyway
all the sweating stopped all symptoms of
CU. it didnt cure it, i know because after
a long weekend of doing nothing the first
day back at work i would get some tingles
here and there, not a full breakout, just
a reminder of whats waiting for me this
winter. so for the past year i have been
racking my brain tring to think of what i
did, ate, took, or whatever that brought
my CU back. i have many ideas, most of
which i have discounted, but here is
one...
last summer before my CU came back i got
stung by an ant. i had a bed reaction:
skin turned red, face swelled up, itchy
everywhere. i was also was allergic to
ants about 7 years ago but not this bad.
between the two times i had CU i really
didnt get any ant bites. anyway thats one
coincidence with the return of my CU.
im not saying i totally believe this is
the cause, but SOMETHING brought it back.
i dont think its stress, i have been
pretty stess free. i just wonder if the
ant venom, or reaction to the venom,
caused something to happen or change in my
body?
how many of you are allergic to insect
stings?
|
Jon Law
New User, Becoming EHEALTHy
Joined: 24 Nov 2007 Posts: 28
re:woogie Posted: 06-19-08 06:13am
Never been stung by anything!!
|
Duper
New User, Becoming EHEALTHy
Joined: 18 Jun 2006 Posts: 33 Location: New york
Posted: 06-22-08 21:46pm
I am beginning to suspect a virus as the
culprit. I developed a wart on my foot
(caused the by the Human papillomavirus
(HPV) around the same time my CU first
came around. I don't know, I feel like I
am going crazy. I'm suspecting anything
and everything.....
I also recall I had a severe allergic
response to some food (might have been to
seafood) that left me gasping for air a
little while before I developed CU. I will
be going to more doctors over the summer
instead of just playing this guessing
game. Good luck, guys.
|
threesixmafia
New User, Becoming EHEALTHy
Joined: 17 Feb 2008 Posts: 9
Posted: 06-24-08 17:50pm
GOOD NEWS!!!
Read out this story: It's long, but isn't
a few minutes of your time worth getting
rid of this forever?
These are all the drugs I've tried:
atarax, prednisone (steroid), claratin,
clarinex, fexofenadine with no effect and
stopped taking it. i also tried super
quercetin (very good for hives, apparently
no effect for CU)
I am currently on: hydoxyzine 50 mg per
day, singulair (2 tablets a day), xantac
(2 tablets a day) zrytec 10 mg per day,
doxepin 5 a day.
These I've tried some for months some
weeks, doxepin less than 2 weeks ago. I
feel though they have made no difference
at all to control the CU, at max maybe 5%.
I went to this special immunolgist 2 weeks
ago. His name was Tony, I will try to
track him down and get his phone number
for u guys. He poked me in places and then
said I had a parasite living in me.
There's a place in my body that he said
was my parasite spot. He made me hold up
my arms spread like a eagle and told for
me to push up as he pushed them down.
(That little exercize caused a flare up
that's how bad my CU is.)
Then he pushed my parasite spot and told
me to hold them up as he pushed down. He
did this a couple of times without telling
me what for. Then he said I'm sure you
have a parasite because when I push on
your parasite point yo grow noticeably
weaker. I thought to myself ok what BS,
but when he pushed that point I indeed
feel myself grow way weaker. So then I
thought ok so he knows a muscle to push
that can make your arms grow weaker...big
deal.
Now here's the strange part....(We were in
a homeopathic store) he started selecting
containers of homeopathic substances and
pushing it on the parasite point and then
asking me to hold my arms up. After a
while and trying many things, he said he's
sure I have a parasite. Because when he
held anti-parasite things to me parasite
point I grew stronger. They were still in
their container. All he did was press the
containers on that point and I felt
stronger. Say it's placebo, say whatever.
But, i was consiously out thinking this
was a load of BS, but my arms felt much
stronger for some of them. Most of them,
had no effect, but some did. Then took a
drop of blood from me, and we looked at it
under a microscope.
ALL of my white blood cells were dead. All
of them....it took us 3 minutes to find
one single live one. It scared the crap
out of me, it was like I had aids or
something. And then another thing didn't
make sense cause I had only been sick once
since I had CU and extremely mild at that.
I'm sure other CU ppl can attest to the
fact that they've barely ever been sick.
In the end I went home with Feverfew(2 X a
day) Cat's claw(2X a day) A homeopathic
anti-parasite pill (2X a day) form and
liquid form (3X a day). He also told me to
take a hot water bath 20 min a day with
ginger powder (handful), 1 cup off baking
soda, and 1 cup of sea salt once every 4
days. (I've only done that bath once so
far and without the baking soda)
I had tried running before to achieve
sweat many times with no result. 4 days
later that I was taking thes pills because
I was determined to be able to walk in
graduation, I decided to run again and
give it a try. I ran 3 times, about 10
minutes each (I was too exausted too
continue so I had to split it into 3).
After the intial outbreak, by the third
run there was very few hives. So then I
went outside and stood in the sun (IT was
5 degrees) for 20 minutes. It prickled,
but THAT WAS IT!!! I didn't feel the
needlelike pain or knive stabbing only
prickles, that anyone should be able to
man up and stand. I was able to sit
through graduation for 1.5 hours wearing a
robe under the hot sun.
Since then I now run every other day, and
I've been able to sweat on my upper lip
and pits. Only there, but my attacks have
reduced by so much. I'd say I'm 70% better
now. It could be just coincidence, but I
say everybody here all get a parasite
checkup and take Feverfew, and Cat's Claw.
Also maybe Doxepin, cause I started taking
that around 6 days before I did my first
run.
I am ELATED. While I'm not completely
cured, this has made such a big impact on
my life. I went to the BEACH the other
day. I walked under the sun for a minute
without pain. Oh man, I will continue to
post and keep you guys updated. I wish
everybody the best of luck with their
fight
|
mtroskillnz
New User, Becoming EHEALTHy
Joined: 03 Jul 2008 Posts: 1
Posted: 07-03-08 22:32pm
I have had this for the last 5 or so
days.
The obvious trigger seems to have been
playing sport (1.5 hours on saturday) in
cold/ hail conditions.
On the monday I started getting the
prickling sensation on my back while
working out at the gym - direct
correaltion between effort put in/body
temperature and the "pricklyness".
On the Tuesday I had rugby training and
again, the same sensation occured. I got
home and noticed the hives. Doctor
misdiagnosed it as a virus.
I notice that a lot of posters here seem
to go to the gym aswell - curious if any
of you are taking any non standard
supplements?
About 2-3 months ago I started taking a
supposed BCAA supplement, that is known to
cause a tingling sensation. I am
wondering if there is a chemical on this
that is related. I know a lot of
supplement companies arn't very
forthcoming in terms of the ingredients
they put in their products. Maybe there
is a link between testosterone levels and
CU? Many of you seem to be in your late
teems and may well be experiencing
testoserone spikes??
Just thinking out loud.
I am not going to go down the
anti-histamine track as i think it is just
bandaiding the problem, not actually
fixing it.
As i think the problem may be related to
this supplement i took - i'm going to try
a bit of a detox approach and see how that
works.
But yea, curious to know what (if any)
supplements those of you that work out
have taken?
Jamie
|
Duper
New User, Becoming EHEALTHy
Joined: 18 Jun 2006 Posts: 33 Location: New york
Posted: 07-03-08 23:36pm
Welcome the forums, Jamie. I've also
suspected that testosterone has something
to do with it since males get CU more
often females and it's usually triggered
during mid to late teens. Also, there was
a poster here who was using steroids and
developed CU, but maybe it's
insignificant. I will also be trying over
this summer (liver and colon) and
hopefully, there will be some results.
|
aivory
New User, Becoming EHEALTHy
Joined: 02 Jul 2007 Posts: 9 Location: Latvia
Japan investigations Posted: 07-04-08 13:49pm
Before i got CU i also went to the gym and
took Mega Mass 4000 (it is a protein
complex with a lot of vitamins and other
good things inside it) and creatin, taurin
and glutamin complex. Maybe all this is
connected with what discovered Japans.
Japans have the cure for CU, they proved
that 70-80% of people who have CU are
allergic to their own sweats, in 2008 they
cured one patient with IMMUNOTHERAPY WITH
PARTIALLY PURIFIED SWEAT ANTIGEN. I have
some articles about their investigations,
but the main article, where they are
describing how they cured this patient
with this immunotherapy, are in Japan and
here in Latvia the translation is quit
expensive. I hope that it will not take a
lot of time to know this cure in Europe
too. Now i just try to go two or three
times in the week to the sauna and try to
sweat as much as possible and it is
working quit well. I will try to put one
article here in this forum, if someone
wants i can send the article to your
e-mails.
Good luck!
|
aivory
New User, Becoming EHEALTHy
Joined: 02 Jul 2007 Posts: 9 Location: Latvia
Article Posted: 07-04-08 14:59pm
Tanaka A, Tanaka T, Suzuki H, Ishii K,
Kameyoshi Y, Hide M. Semipurification of
the immunoglobulin E-sweat antigen acting
on mast cells and basophils in atopic
dermatitis.
Exp Dermatol 2006: 15: 283–290. # 2006
The Authors. Journal compilation # 2006
Blackwell Munksgaard
I can not put the article here, but you
can look in internet or in librarys for it
|
woogie
New User, Becoming EHEALTHy
Joined: 20 Jan 2007 Posts: 5 Location: TX
Posted: 07-05-08 17:11pm
next time i see my allergist i will ask
her about the partially purified sweat
antigen researched in japan, and see if
she will look into it.
i just thought i'd mention that going to
the sauna in my gym works very well, and
gets me through the winter months. but
just going straight into the sauna then
leaving the gym does not work well. i have
found 10-20 minutes of cardio before the
sauna helps warm me up, then i sweat alot
in the sauna. that fixes the CU for a good
1-2 days.
i have noticed that some people can "sweat
it out" only to have CU symptoms return in
a few hours. it seems their histamines
regenerate much faster than others. does
anyone know why this is???
|
Jon Law
New User, Becoming EHEALTHy
Joined: 24 Nov 2007 Posts: 28
re: aviory Posted: 07-08-08 10:00am
It doesn't sound like that paper is
referring to Cholinergic Urticaria. I
stopped sweating for a while with CU as I
believe a lot of other people did so how
would we be allergic to our sweat if we
aren't sweating?
|
aivory
New User, Becoming EHEALTHy
Joined: 02 Jul 2007 Posts: 9 Location: Latvia
re: Jon Law Posted: 07-09-08 05:55am
This article referrs to Cholinergic
Urticaria 100 % . As I wrote before 70-80
% of people who have CU are allergic to
their own sweats. You maybe are not in
these 70-80 % and your case is different,
but for example i sweat normally, when i
go to the gym or to sauna i sweat a lot.
You maybe have Hypothyroidism
|
Jon Law
New User, Becoming EHEALTHy
Joined: 24 Nov 2007 Posts: 28
re: aviory Posted: 07-09-08 11:31am
That paper is about atopic dermatitis.
Hence it's in the title. It mentions
cholinergic urticaria in one paragraph but
doesn't mention anything about using this
treatment to treat it.
