I posted a WARNING about 16 different
websites that are all identical except for
the name of the malady that they cure.
They are obviously a SCAM but you may not
notice unless you are searching for more
than just your particular condition.
I have Cholinergic Urticaria, I also have
a great deal of skepticism. I did some
research on the first website mentioned
and eventually came across the other 15.
All the same. Either this was a miracle
cure for so many things, or this
person/people were simply preying upon the
ill.
|
skitomcat1
New User, Becoming EHEALTHy
Joined: 01 Feb 2008 Posts: 8
I would love some help because as we speak...im itching!! Posted: 02-20-08 14:44pm
1. I need a way to easily make myself
sweat Without doing too much! Because
right now I cant do anything...In the
beggining I could tough it out until I
sweat but i havent worked out in awhile
and last night i started to run and it was
the worst, itching, burning, tinging,
twitching EVER. Right now i cant even
chase after my girlfriend without having
an attack. Does anyone know an easy way to
start sweating
2. I need to know exactly what vitamins
you all are taking and what store,
preferably website I can get them at.
3. Im a college kid so hearing this stay
away from alcohol thing is kinda hard. I
mean im not going to lie 2 drinks in and i
can just feel the itching coming more and
more until I have to leave whereever I am.
But after 4, 5, or 6 im usually so out of
it that I dont feel anything. I mean i
know its terrible to say but im always
feeling my best on weekends when im pretty
"tipsy". There has got to be a better
way!!
4. What has been working for me lately is
not taking the medicine at night when im
home and can control the temperature. and
then kind of "surprise" my body with the
medicine during the day. It seems as if my
body gets used to the hydroxyzine very
fast making it almost useless sometimes.
5. Next Im sorry this post is so long but
this page is helpful....will my kids in
the future have this or will my girlfriend
get it from me??
6. Lastly, What do you all tell people?,
Cuz i say some things and people look at
me like im crazy, like im lieng, or like
im just some pathetic guy with serious
issues popping pills all the time. I mean
ive said the allergic to heat line when im
just too tired to explain and lastly ive
said the cholinergic Urticaria line when i
want ppl to feel bad. but frankly most ppl
find it gross or wierd so what do u all
do?? Frankly the only advantage I have is
that im a 18 year African American Male
and people can't see the red spots on my
body!
|
josh6552
New User, Becoming EHEALTHy
Joined: 30 Jun 2005 Posts: 24 Location: Tampa, FL
Posted: 02-21-08 17:24pm
Hey everyone,
I thought I would post an update to let
you all know the situation on my CU, so
far I'm still taking Loratadine which
still blocks the outbreak completely and
Zyrtek works just the same and this is
what works for me. I hope everyone that
has CU finds a way to manage it!
|
Duper
New User, Becoming EHEALTHy
Joined: 18 Jun 2006 Posts: 33 Location: New york
Posted: 02-22-08 01:16am
Hey guys, just wanted to tell you guys
that the vitamins have been a great help.
It's been a couple of weeks and I feel so
much better. As I mentioned earlier, the
vitamins are cheap, so pick them up asap.
I'm getting my dental work done during
this month. My appointment is the upcoming
Thursday, and I think it's going to be
very promising. I'll let you guys know
after everything's done, though. I wish
you guys luck!
|
Jon Law
New User, Becoming EHEALTHy
Joined: 24 Nov 2007 Posts: 28
Posted: 02-22-08 09:27am
Any chance people could just post up what
age they are? Does this thing stop at a
certain age. I'm 23 and hoping it'll go
soon.
|
raversrevenge
New User, Becoming EHEALTHy
Joined: 22 Feb 2008 Posts: 1
Posted: 02-22-08 10:21am
Hi all, just thought i would put my
penny's worth in.
Im 23 from england, and have suffered
cholinergic urticaria since i was 15.
Comparing my reactions to some of the
others on this forum, sometimes mine seem
worse, sometimes mine seem not so bad. But
anyway, just thought i would try and cheer
everyone up.
Couple of weeks ago i was playing football
(soccer) for my local sunday league team.
Sure enough after 15 mins, the rash
arrives and although it itches like mad, i
can just about put it to the back of my
mind. Anyway, one player from the
opposition team was marking me, and when
the ball was down the other end of the
pitch, he said "whats that rash u got?"
I said, "yeah i should have said something
before the game, its contageous". He
looked at me puzzled. Then for the rest of
the day, every time i received the ball,
he was no where near me. I ended up
scoring the winner and we won 4-3.
In hindsight, i know i shouldnt have said
it was contageous, but we CU sufferers are
a forgotten section of the medical
community i feel. I feel this, because its
not life threatening and there are more
important diseases to cure. This is true,
but what if i was driving home after the
game, itching like mad and caused a
massive pile up on the road...?
CU might not kill you or I, but it could
kill someone else.
We need a cure!!!
P.s. I told the other player at the end of
the game that he had nothing to worry
about and explained all about CU.
|
Transmobius
New User, Becoming EHEALTHy
Joined: 08 Feb 2008 Posts: 2
RE-POST: Watch out for this (w/permission of the Forum Admin) Posted: 02-22-08 10:26am
The eHealth forum administrator has told
me I can re-post this formerly deleted
warning:
------------------------------------------
-------------------------------------
I came across this site and was
momentarily hopeful . . .
Joined: 04 Feb 2008 Posts: 2 Location: del rio, texas, united states
hey guys im getting better Posted: 02-26-08 10:33am
ok well heres what i realized
Most doctors dont know much about this
condition we have what they do is treat
the symptom and not the illness ive been
to so many doctors and they all say the
same thing and would give me different
medications that do the same thing. so i
told myself i would stop going to a
medical doctor and try somthing
different.
So i went on the hunt and i found a doctor
in accupressure and nuerolink. so i
thought what the heck it wouldnt hurt
right? So i went to this doctor and
whitout me even telling him i use to have
thyroid problems ran some wierd test just
by putting his hands on different pressure
points on my body and found excactly what
was wrong with me. i was amazed he said i
have a weak thyroid and weak adrenal
glands which are two major organs that
cause the hives that i get. i was amazed!!
well he gave me two herbal medicines
thymex and congaplex both 2 boosts my
immune and adrenal glands. took those for
about two weeks and went back. then he
started correcting all of my weak
electrical currents in my body. i know it
sounds wierd i thought i it was fake well
nothing happend for about two months then
all of the sudden i i went outside to help
with some work and they didnt come out at
all and i was suprised, i thought it was a
fluke, but then i was moving heavy stuff
out of my apartment when the hives would
normally appear they didnt its been about
2 weeks that i havnt had any outbreaks.
its so relieving not having to worry about
the hives..i took a cuple of other
supplements and vitamins and i think they
help... so to sum it all up heres what i
did
Went to and accupressurists and nuerolink
doctor
And i still take these supplements
I did a full body cleanser i dont know if
it helped but it made me feel better
Congaplex- for adrenal and immune
Thymex- immune system
Vitamin C-immune system
Vitamin E-antioxident
B12-helps for good circulation
(green tea supplment) i think this helped
alot- antioxident and anihistammine
Omega complex-good fats and oils,i was
taking this before
Drink alot of water
and workout in the mornings (usualy
running)and helps with breakouts
|
threesixmafia
New User, Becoming EHEALTHy
Joined: 17 Feb 2008 Posts: 9
Posted: 03-29-08 20:21pm
uhhhh i rather live with CU that use
marijuana or ectasy. end of story.
|
Yama26
New User, Becoming EHEALTHy
Joined: 19 Jun 2007 Posts: 5
Posted: 03-31-08 00:48am
threesixmafia
wrote:
uhhhh i rather live with CU
that use marijuana or ectasy. end of
story.
Yeah I agree. I think this is also the guy
who changed the wikipedia article and
added (without references) that marijuana
and ectasy stop the itching under the
"treatment" section:
I really had no idea how easy it is to
edit Wikipedia articles. Anyone can do it.
I can go and put false information on tons
of articles which wouldn't get changed
until someone noticed it.
|
Jon Law
New User, Becoming EHEALTHy
Joined: 24 Nov 2007 Posts: 28
Cure Posted: 04-01-08 09:48am
I've just read a paper about a patient
with CU cured by using anti-IgE therapy.
This involved injections with Omalizumab
(commercially known as XOLAIR) which is
traditionally developed for allergic
asthmatics. The patient had severe CU for
5 years, and after the 3rd week he
reported noticeable improvements and after
the 5th week he had his first attack free
week in 5 years. Has anyone else ever
heard of this drug? I think it could be
very expensive. Here is the link anyway. I
don't know if everyone will be able to
access it. I can access it through my
University.
Wondering if anybody has any good news on
their fight for relief. the summer is
approaching fast , and depending where you
live it gets warm in some places faster.
Even though the weather is going to change
im still dealing with my work place..
being in stressfull situations and body
temp rising in a instant. for those who
have found relief i wish you well and
those who are still in the battle im with
you. We must win at this so stay focus.
hismanal (astimazol) they took it of the
market for cardiac reasons damn. All drugs
work diff. find your self a combo and good
luck..
|
hinrgee
New User, Becoming EHEALTHy
Joined: 04 Dec 2007 Posts: 4
cholinergic urticaria Posted: 04-06-08 19:01pm
Wondering if anybody has any good news on
their fight for relief. the summer is
approaching fast , and depending where you
live it gets warm in some places faster.
Even though the weather is going to change
im still dealing with my work place..
being in stressfull situations and body
temp rising in a instant. for those who
have found relief i wish you well and
those who are still in the battle im with
you. We must win at this so stay focus.
hismanal (astimazol) they took it of the
market for cardiac reasons damn. All drugs
work diff. find your self a combo and good
luck..
|
hinrgee
New User, Becoming EHEALTHy
Joined: 04 Dec 2007 Posts: 4
cholinergic urticaria Posted: 04-06-08 19:01pm
Wondering if anybody has any good news on
their fight for relief. the summer is
approaching fast , and depending where you
live it gets warm in some places faster.
Even though the weather is going to change
im still dealing with my work place..
being in stressfull situations and body
temp rising in a instant. for those who
have found relief i wish you well and
those who are still in the battle im with
you. We must win at this so stay focus.
hismanal (astimazol) they took it of the
market for cardiac reasons damn. All drugs
work diff. find your self a combo and good
luck..
|
anatta
New User, Becoming EHEALTHy
Joined: 13 Nov 2007 Posts: 6
Some positive results & insights Posted: 04-16-08 20:20pm
Previously I posted on the positive
effects of homeopathic remedies. For a
while I thought I'd be "back to normal,"
able to go about life as I had before this
condition manifested. Unfortunately,
after a couple weeks those positive
results wore off. This was extremely
disappointing, frustrating, enraging,
depressing, blah, blah, etc, etc.
After I getting over the emotional funk I
sought to find the fundamental cause of
hives. Hives are caused by the body's
release of histamines. These histamines
are produced and stored by the body. They
wait for certain triggers so they can be
deployed into the blood stream, thus
causing the itchy hives we fall a victim
to. Fortunately for us, the body can only
produce so much histamine in any given
amount of time.
After coming to this realization I started
TRYING TO GET BREAKOUTS. Sound strange?
At first, yes. But consider this: If you
try to get breakouts when you are alone or
in a controlled environment, the
histamines your body has produced and
stored up are released. And, for a short
time after your skin clears up, your body
doesn't have any more left to release!
What does this mean? If your body heats
up shortly after you have caused a
breakout, your body will release less
histamine, which will result in less
hives.
Over the past couple months I've been
intentionally causing these breakouts by
jogging 3 miles every day in the mornings.
At first my body would be covered in
hives. During the first week I had some
of the worst breakouts in my life. The
physical pain was excruciating (not to
mention I couldn't look at myself in the
mirror for a good hour afterward).
Slowly, however, I noticed that by the end
of my runs I would have less and less
hives. Throughout the day the attacks I
used to get have been infrequent and far
less severe.
Fundamentally the body releases histamines
in response to what it PERCEIVES as a
threat or danger. Somewhere along the
way, I suspect my body interpreted an
increase in its temperature as a danger.
I think consciously triggering the hive
outbreaks not only decreases the levels of
histamines in my body, but actually
retrains or reprograms the body to no
longer perceive increasing body
temperature as a threat--thus leading to
the elimination of this condition
entirely.
Your thoughts?
-B
|
Jon Law
New User, Becoming EHEALTHy
Joined: 24 Nov 2007 Posts: 28
re: anatta Posted: 04-18-08 09:05am
Hey Anatta,
I think if you read back along through
some of the posts, you'll see that a
number of people have tried exercising and
purposefully bringing on the hives with
hot showers as a means of depleting
histamine stores (myself included).
You're correct about the histamines etc.
hence all the anti-histamines that a lot
of us have tried. But there's another step
before the release of histamine which can
be tackled. Histamine is released from
mast cells when IgE's bind to the mast
cells. I put up a link to a paper a few
posts back where some doctors showed that
if you get rid of the high levels of IgE
(which their patient exhibited and which
they believe most CU sufferers may have),
then you don't have to worry about dealing
with the excessive amount of histamine.
It's more effective and less painful!!
They used a drug called Omalizumab
(marketed as XOLAIR) which is injected
every 2-4 weeks. This binds to the IgE
which prevents the IgE from binding to the
mast cells, which prevents the release of
histamine. They have successfully
demonstrated this treatment and a patient
who had CU for 5 years is now attack free
for the last 22 weeks. This includes
provocation from hot baths and exercise.
I've had blood tests taken last week and
sent away to measure IgE levels. I will
have them back next week and will let you
know whether they are abnormally high or
not.
The problem with XOLAIR is it is very
expensive if not covered by insurance. It
is traditionally used to treat allergic
asthmatics.
|
STAR421
New User, Becoming EHEALTHy
Joined: 13 Feb 2008 Posts: 1
7 MONTHS OF HELL Posted: 04-24-08 17:08pm
Hi all a bit about myself,I got CU back in
2006 I started training in the gym after
years of being out,anyway thousands of
needles and lots of hives took over my
life I tried everything the docs threw at
me,nothing homeopathic nothing, I remember
reading this site back then it was a god
send,I hated my life,then came the itchy
scalp feet even eye balls,
I went into the hospital out of
desperation all tests scans bloods, water
came back ok,so off I went still
confused,anyway after months of
in-activity I went back the gym and
decided to spend 2 hours on the treadmil I
sweated like a mad man and was soaked in
sweat all the needle horrible pain
vanished,left me completly I was so happy
infact I even forgot how horrible it was I
even went on 3 holidays in 2007 including
the tropics it was brilliant,I sweated
with no pain or nothing ahhh bliss.
november 2007 I had a really stressful
event which took its toll on my mental
health that night I went to bed and yep it
came back I was gutted I got attacked that
night by a thousand mozzies and its still
with me ,back in december I went the gym
and started jogging up hill to make me
sweat even more so I then ended up with a
ruptured lumbar disc and bad sciatica I
feel cursed anyway although still in pain
with my back I have decided to hit the
treadmil again in the hope my CU will go
away I would rather have a bad back than
this horrible CU.
I do believe stress is an important factor
I just cling on to the hope it went away
once so it will go away again.
|
Ash2k86
New User, Becoming EHEALTHy
Joined: 24 Apr 2008 Posts: 3
help with CU Posted: 04-24-08 23:15pm
hi everyone! I'm also a new onset CU
patient. I had one flare up in December,
and now, within the last month
(March-April), I have been breaking out in
hives everytime i exercise. It doesn't
matter the temperature...any exertion
(increase body temp) causes me to break
out. This website has been so helpful. I
saw a dermatologist and had blood work up
done. Xyzal or Claritin does not help at
all. Zyrtec doesn't work etiher, but at
least my hives are mild. I'm was reading
and am thinking about going on a low
histamine diet (avoid all foods with
histamine). Does this sound like
something that would work? How many days
would you try? What foods would you eat?
|
Azores
New User, Becoming EHEALTHy
Joined: 27 Apr 2008 Posts: 1
Posted: 04-28-08 00:06am
Hi everyone,
Im from Azores (a group of 9 islands that
belongs to Portugal). My main language is
portuguese so sorry my english.
I have Cholinergic Urticaria since 18
years old. Now Im almost 24. With 20 years
old I started doing exercise, mountain
bike, and the Cholinergic Urticaria after
a couple mounths was gone!
With 23 years old I stoped doing mountain
bike because I was too busy with my
university studies and now a couple
mounths after the problem is back, but now
it is very worst and Im trying to do
mountain bike again but its so hard... the
Cholinergic Urticaria is more violent
now.
Ill try to do exercise (ride my bike) at
morning because its more cold... lets see
if it works. My doctor said that to keep
doing exercise it works because the body
generates tolerance... thats why in the
past I get the cure!
it is like that case of that guy that was
bitten by a snake but the snake injected
just a little of poison and he after a
while discovered that had generate
tolerance to another bite... do you know
what I mean?
Also to ride the bike is refreshing! But
atention, you must train in the anaerobic
threshold! To push too hard is not good...
go see things about anaerobic threshold
and you will understand what I mean!
Stress is also a big problem to all people
with this problem... yoga helps too!
|
Ash2k86
New User, Becoming EHEALTHy
Joined: 24 Apr 2008 Posts: 3
Posted: 04-28-08 01:13am
I am a 21 year old female. I haven't
tried any homeopathic meds yet. I'm now
trying Clemastine Fumarate (Tavist) which
is over the counter. We'll see if that
works. I remember sweating a lot too in
high school when i used to exercise. I
would also starting scratching my forarms
because they would itch all the time. I'm
still trying to figure this out.
The site is not a replacement for professional medical opinion, examination, diagnosis or treatment. Always seek the advice of your medical doctor or other qualified health professional before starting any new treatment or making any changes to existing treatment. Do not delay seeking or disregard medical advice based on information written by any author on this site. No health questions and information on eHealth Forum is regulated or evaluated by the Food and Drug Administration and therefore the information should not be used to diagnose, treat, cure or prevent any disease without the supervision of a medical doctor. Posts made to these forums express the views and opinions of the author, and not the administrators, moderators, or editorial staff and hence eHealth Forum and its principals will accept no liabilities or responsibilities for the statements made.
Schizophreniahealth
This page was last updated on June 11, 2008
