Hi,
I have been reading through all of your posts and I have to say that I've been experiencing all of the same things as dizzygirl and Fern. It's absolutely awful. My quality of life has completely diminished and I don't know how to fix this.
I live in London, England but am originally from Toronto, Canada. At Christmas I flew home to Toronto from London and the next day I got a terrible flu. I was in bed for almost 2 weeks - it was terrible. Eventually, I felt better and left Toronto to come back to London. I got a cold in January and then at the end of January, I woke up one day incredibly lightheaded. I had pain in my sinuses, ears and throat and my the room felt like it was spinning - my heaty began to race as a result because I thought I was going to pass out. I also had a lot of pain behind my left ear. I just thought I was getting sick again. After a week, I couldn't take it, so I went to a doctor. She told me it was probably a virus and to go to the hospital if it worsened.
That Friday night, my head was pulsing and I had tingling at the back of my head and I couldn't hold my head up on my own because it felt heavy and my neck was hurting. I went to the hospital. Because I was in so much pain, my heart was racing - so the doctors ignored my head and ear pain and concentrated on my heart, as it was 135bpm (which is not abnormal for me - I've always had a fast heartbeat). They insisted I see a cardiologist, who ran a series of tests (24 hour heart monitor, CT scan of my lungs, ultrasound of my heart) and they told me I had mild IST (a heart condition where your heart beats quickly at rest, but it was no big deal and my heart and lungs worked very well). Which I knew anyway. The cardiologist told me I probably had a virus and that it would go away in a week. That was at the end of January - I still feel the same.
I have good days and bad days - on a good day, I only have lightheadedness about 20% of the day and I can work and travel on the Tube - on a bad day, I can't stop crying because of the pressure in my head. I have a new doctor now, who thought I had mono (glandular fever) - she ran a blood test and I don't have it. Which again - I knew. She's reccommended I see a Physiotherapist and I have an appointment on May 15th. I was also told this could all be due to stress - but like someone on here already mentioned - I know what my body is like under stress, and this is not what happens. Plus... I'm not stressed.
Basically... this has been my life for 3 months now. All of the doctors think it will go away, but I can't remember what it feels like to not be dizzy. My family and boyfriend have been incredibly supportive, but my health is all we talk about. I've asked my doctor to refer me to an ENT, but she doesn't think that's necessary, as she thinks this will clear up on its own. I don't believe that as I've been told that by several different doctors for the last 3 months. I've also asked for an MRI - but she won't send me for one either. I'm not sure what to do at this point, as I feel incredibly helpless. My job is suffering because I can't concentrate and my quality of life has completely diminished. My short term memory is decreasing as well, because I'm always concentrating on the pain and forget what I'm supposed to be doing a lot of the time.
I'm not sure what to do. Does anyone have any recommendations as to how I can get an MRI or ENT appointment in the UK without my doctors referral?
Thanks.