So sorry you had a bigger seizure than normal. Not really sure what you mean by an aura after a seizure, they come before....

It is not to uncommon to have lasting affects for a few days post seizures. My son can be moody, have trouble thinking and have trouble with coordination and thinking for up to a week after a big seizure.


Sounds like some lifestyle changes would bring you better quality of life. Hangover? Lack of sleep? Stress? Hard to make adjustments, but the meds cannot counter act the negative when they all pile up like you saw....

Hang in there. Hope you can get better control. Tonic clonics can be part of juvenile myoclonic epilepsy.....

I believe I sometimes get the auras without having the fit, although, as I discussed with my specialist, i've been having the fits for so long, i'm not sure if what I believe is an aura is actually just a normal feeling of tiredness...

Anyway, I think the strange feeling i've had since is a sense that part of me is still there with the paramedics on my bed- probably due to me subconsciously trying to remember things that occurred when I was unconscious... Trying to fill in the gaps as it were. Hence the feeling of being somewhere else but part of something. It's weird, but I have a sense of the paramedics being with me still. I do think it's psychological rather than neurlogical, although obviously i'm not an expert. I'm seeing a psychologist with regards to other matters, so maybe i'll discuss it with him.

Thanks for your help and good wishes. If I find anything out, i'll stick it up here in case anyone else ever gets the same.

I suffer from epilepsy and realized that the lack of sleep was bringing on several auras a day even with the med. If I were to go several(>3) days with 5-6 hours of sleep it would bring them on consistently. I can still get away with 7 hours a day but noticed that my legs feel weaker and the head feels like a generator revving out of control. (nearest I can describe it.)

have you noticed any patterns when you have not slept?

It does take a while before my brain kicks into gear after a gran mal. Nothing like an aura though. That feeling is very different. After an attack I am conscious and aware of people but can't really talk. That part is some what similar to the aura but not really. I can try to talk and slur non-complete words. With the aura, I nod at people but "choose" not to say anything as I am thinking to myself, "here we go" over and over, trying to hold onto reality and fearful the attack will go full blown.

Drool and recovery of my breath (like someone had knocked the wind out of me) are the earliest physical things I remember after a full blown seizure. I have memory and awareness of those around me. I can hear what they say and recognize the words, I may try to respond but can't get out the words when I try.

Auras I don't even try. I just sit there and maybe give a nod like I am telling them "just a second, I am busy" or I will hold up one finger. (i had to train myself to do that.) afterwards, I then ask "what did you say?" as I have no real comprehension of the words.

Auras are like the feeling of deja vu. Very different at least for myself.

Ifeel that what happens to me is different. I get an aura lasting days even weeks continually. I get de ja vu weird memories, funny smells and tastes, an acute feeling of fear and anxiety. I have been told that i don't have epilepsy just an anxiety disorder but just this last year i have hade full seisures which i haven't had since i was 13. I have been told that i smack my lips and talk and breath funny. I get rising nausea and feel i have to go to the bathroom straight away. I have had every test going and all come back negative although when i have been tested my symptoms have not bee present. I have just had two months with no symptoms or seizures and then i got heavy period and had full seisure. i remember feeling sick and not knowing what day it was it was really upsetting. I now feel frightened to go out and fearful of it happening again. My doctors say there is nothing they can do for me