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Conditions and Diseases > Epilepsy Forum > Standards For Testing
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Q: Standards For Testing
asked by: dondicee on November 14th, 2003
New User
Does anyone know the epilepsy foundation's standards they have set forth for how often one should have eegs and mris, etc? I have had this condition for 14-plus years and have only had two eegs and two mri's & both eegs showed no abnormal activity. My husband thinks I need to find a more proactive doctor and i'm beginning to think he's right.

Thanks--
dondi
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phil dennison
replied on November 14th, 2003
Experienced User
Only you can help your self.So help your self and find a new doctor. Ask god to help you.
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dondicee
replied on November 15th, 2003
New User
I'm on my third doctor. It's hard to know when to fish or cut bait.

Dondi
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jamal
replied on November 16th, 2003
Experienced User
Testing Baby!!!!!!!!!!!!
Hey cee
it will be 6 years this march for me sweetie. Right away they found scar tissue on my right frontal lobe. My firist neou sent me to s.F. Ca. Neouolgy clinic. I finnaly ended up at u.C. Davis the last 4 years. The 4 neros all wanted me to go for b.S.. The doc. At s.F. Told me most epys go thru 20 to 30 meds to find the right one that works for them. Finally after working trying to work and going through a divorce I lost my job in 2000, could'nt drive anymore, now im on trial with this man for another year, and decided to go ahead to have the brain surgery. 2 years later im back to work 5hrs a day riding the short bus and im with the love of my life fo 4 years. I have known him since h.S.
Go to a good place I don't know where you are at but I have had 12 eeg 7 or 8 m.R.I. Sllep deprived test. Get a 2nd a opion. Gotta go take care love jamie
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dondicee
replied on November 16th, 2003
New User
Thanks so much for the advice and congrats on finding someone special!

I'll take the advice to heart.

Thanks again, dondi
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sami_1982
replied on December 13th, 2003
Experienced User
Newly Diagnosed (please Help Me)
Hello everyone Smile am I glad that I found this site to get some answers. I am 21 yr old female from australia and 2 months a ago I had my very first ever grand mal seizure. I had 5 in a row lasting 7-10 minutes each. Lucky my room mate was home to call the ambulance. Later that week I went to see a neurologist and there were no abnormalities on the eeg. The neurologist said there is no way that I have epilepsy, he told me its all in my head but that the eeg did show up with sever stress.I was confused then and sad because for about a month after I still was having these weird feelings of dejavu and sometimes a sinking feeling in my stomach and sometimes my feet would go all tingly like someone was tickling them with a feather all over them then if I was standing that was it. I would fall back and have an episode of full on jerking. Sometimes I can hear what ppl are saying around me but not often and its near the end of the fit. I cant walk right after I am all wobbly and I think I am talking normal but the ppl around me say my speach is slurred I am so tired for about half an hour after then I am aware and more with what is going on. But I never really know what happenes. I went back to my normal g.P and I told him everything because I had started getting a weird feeling in the front of my head and then I would feel like I was sinking and then all I could do is stare and then my eyes would flutter and I would see weird squiggles and dotts in my eyes. Sometime I know this is happening and other times I have no idea it doesnt matter what I am doing I just freeze and I cant do anything but wait for it to pass. I try not to freak out when these things happen now. I just let it take its course and then I am so thankful its over. No one in my family has epilepsy but they say that I always did a weird starey thing when I was little. My doctors now are saying I deffinatly have epilepsy and I am also photosensitive I cant handle camera flash or flickering lights or sunlight. I am on tegretol at the moment but its not working. So I have to go into hospital soon because they say what I have is a rare for of epilepsy. Please if anyone can help me from feeling alone please help me understand they say that all the tests can come back normal but that doesnt mean that you arenot epileptic because there has to be a reason right. I think my problem was the stress.
Thankyou sam Confused
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