Multiple eye aura,dizziness,numbness and tingling in arm,hands,l
I am a 42 year old female who began approx 9 weeks ago having eye auras and felt just weak and drained, most of the time no headaches just little cringes of pain in head once in a while. My right eye has the sensation that is doesn't belong to me and I have a tingling sensation over my face and over my eyes. My right eye feels like sometimes light is boring right throught it and sometimes it seem like I am looking through water. I was having blurry vision every once in a while during the summer and thought I just needed glasses.At night not every night but lately I will wake up right after I go to sleep with heart thudding and feel tingling in both hands and it feels like I can barely get my right eye open. After several hours this goes away. I have really dry eye in my right eye since this started. Sometimes I feel like I have a really heavy feeling all over and I am so nervous.
Today my tongue went numb and my upper front teeth went numb then I had a really heavy feeling on my left side with weakness and shortness of breath. Two days ago I couldn't focus my eyes for a while and had pressure and numbness in and on forhead. I also had a pain right towards my left shoulder that made my whole left side feel like it was weak. I have maybe up to 4 or 5 auras in the eyes a day some days and my vision is wavery, or I see black spots or white and my vision sometimes will flash or it will break up in small sections like a digital tv. I have health problems but have never had anything like this. My nose will run after an occular aura or before and I will sneeze my head off. Glands are swelled in neck and I am foggy, can't remember anything and have spells where I am so weak and get really cold and really dizzy. I feel like there is pressure in my head at times on the front and can hear a pitch change in my ears. The other day my ears really started to hurt.
To date I have seen two opthomologis and one diagnosed me with cotton wool spots. I have had blood work done to check for diabetes and I am low on calcium and anemic. I don't know if any of this could relate to hypocalcemia or not. I had a mri done and result are normal, ekg normal. I have high blood pressure but have been keeping a close eye on it and it hasn't been out of whack. Also I have noticed that a night when I close my eyes I get a really strange pulsing light show at times unlike the auras. My blood pressure machine get a low reading and my heart rate goes down to 56 or 57, I can feel like I am running a temp and then be so cold. Also my face has been flushing the last year off and on could be hormones I am on bc.
If any one can help please do. I am desperate to find out what this is and I hope everyone that posted and is having problems get better. Any info would be gratefully appreciated.
well you have all my symptoms.lol.almost.it has affected my motor skills also..had a few mris nothing,have server vertigo,so bad my eye balls spin when put in a reclined position,it doesnt stop,in horizontal position it happens then stops.chills started in small patches in one place or another on my body,kinda feels like skin crawling.just in the last week it has gotten worse now almost every 5 minutes i have these chills in larger areas of my body,right now it is on my head,face and back of neck.a few times before the left side of my face went numb,and had like a pulling effect,or like i was wearing one of those creme mask you put on that dries and makes you face feel funny.loss of balance when eyes are closed.brain fog,blurred vision.now neck pain.doctor says it is left inner ear disease.but he needs more mris.i believe it is a miss diagnosis.i am 42 female,in college and my teacher has almost the same symptoms and her doctor said she was having seizures.misdiagnosed,she also had swelling where ever the tingling was a few minutes after.and as i thought in the begining but doc keeps cutting me off and say no no it is inner ear,it is in fact,the top disc in my neck pinching the blood vessels and nerves causing all this trouble.since it has gone on so long what i am scared of is that they have stretched and if i go to a chiropractor and he adjust me,(which i have never had done)it will pinch my blood vessel more and cause a stroke.so i have to demand the doctor listen to me.
on another thread i read a person with the same symptoms almost,but specifically the chill bumps in different areas all over,1 was diagnosed with hidden seizures,the other was diagnosed with seizures,which came on mild then he said he had a grandma seizure.so that makes me wonder if seizures arent originated in the nerves in the neck/back of head area.to conform this i would ask that anyone with seizures go to a chiropractor and get a xray of vertebra/neck then get adjustments to see if they help,better than pills right?i hope i have helped us all,thx
Numbness, Tingling, Neck Pain, Dizzyness (with Vertigo), etc.
I'm a 35 year old female with many of the same symptoms. I have had 10-15 years of weird symptoms that have culminated into a variety of autoimmune diseases and other diagnoses (Aura Migraines, IBS, TMJ Disorder with dislocated disc, Psoriasis, Chronic Dry Eye, GERD, Interstitial Cystitis, Endometriosis, Polycystic Ovary Syndrome and most recently Rheumatoid Arthritis/possibly Lupus).
I found this discussion interesting because most recently I have been having a multitude of symptoms that I don't think any of these other diseases can explain. It started with a 36 hour bout with vertigo when I was pregnant with my son (so about 3 years ago). My OB just said it was probably benign positional vertigo or inner ear related. I didn't have another bout until earlier this year. I have also had tingling, numbness, weakness in my arms on and off for 2 years (have even noticed atrophy in my forearms - thought it was RA related, but now I'm not sure). I have had moderate to severe neck pain for years (started to really get worse after my daughter was born almost 5 years ago - went to a chiropractor, physical therapist, orthopedist, rheumatogist). I have horrible pain at the back of my head and neck (complete with a horrible cracking - sometimes feels like I can pop my neck in and out of joint though that's impossible - scary popping sound and feeling) and upper back is a mess (muscle spasms, my shoulder blades are inches further away from my spine than they should be and uneven - I also have some congenital birth defects that affect the shape of my rib cage and my neck is straight up and down vs. curved - not sure if this was from birth, posture or RA related). I also have a touch of tinnitis and a constant fullness in my head - can never "pop" my ears and have some hearing loss (had attributed this to allergies, but now, again, not so sure).
This past week I added severe headache that felt like it ran from the top of my head down my entire spine (had thought this was sinus related, but the only thing that helped it feel better was heat to the back of my neck/head). Today, I felt tingly all over and a bit dizzy and even had shooting nerve pain in my legs.
I could go on and on! I have seen so many doctors in the last 10 years, I could literally start a full staffed hospital with them all and have all the specialties ! Again, this seems unrelated to anything I have thus far and the most scary! I really hope my Rheumatologist doesn't just brush it under the rug again and will finally give me that MRI that I have been asking for for the last 2 years!
I think it is so weird that the IBS (diarrhea) could be related to all of this, though it wouldn't surprise me. It's common in autoimmune disease for many odd things to be connected (not that this is another autoimmune disease, but we are so magnificently made that, of course, it's all related in some way - one hormone or chemical or structural part goes whacky and it all goes to hell )!
Good luck to all in finding a diagnosis and relief!
hi i just wanted to say that i am a 30 year old MALE and i am having very similar symptoms, although mine don't seem to be as widespread and/or severe....what i experience is a hot/tingling feeling at the crown of my head, and i start to feel disoriented, probably most closely described as vertigo although i don't know if that's what it truly is....i can't concentrate or think, and i have to stop working, it's almost as if thinking or using my brain magnifies the symptoms......the room around me seems to oscillate slightly (an almost lsd like effect for anyone who has experienced that).......my head hurts and i guess u could say i feel "brain dead"..... could it be related to my vision and/or ocular nerves from straining them too much on pc?
i'm sure that it is mostly stress related, and/or related to overuse of the computer working and at home (pc gaming)....at least this is what brings on the episodes and when i'm doing neither i seem to be fine.......could it be related to my vision and/or ocular nerves from straining them too much on pc?..........and for a side note i'm sure my sleep deprivation isn't helping
i'm just beginning to research so was hoping anybody out there had similar experiences....
also to those who have posted before me who have more severe and widespread symptoms, my heart goes out to you and i can only imagine the frustration that you've eperienced with doctors, as i am sadly convinced myself that it's a complete waste of time, and only further adds to the stress of it all
Hi, I'm 40 year old asian female. my symptoms.
head tingling from base of my neck up my head.
then intense pressure, not necessarily throbbing, but like the bones in my head are expanding. then dull numbness. when this happens, i feel my throat close up and my sinus close up as well so i can't breathe or can't get enough oxygen in my lungs. i physically can turn my neck at this point, but it's difficult.
then my blood runs cold throughout my body and tingling of hands. then nausea. obviously when this is going on, i can't concentrate and focus. compared to everyone on this board, this has been happening for two weeks.
it's really freaking me out. i am going to see ent tomorrow, but maybe i need neurologist as well.
it's totally making my life miserable and my family is suffering too. i pray for me and for everyone. please send your advice and sympathy as well. thank you.
I'm a 30 year old female with all of the same symptoms of the original poster. I have had 3 episodes of vertigo over the past year (for first time in life) and several weeks of dizziness. Recently I have had numbness/tingling in my right arm, hand, leg and feet and briefly on my face. My body temp is always cold - avg temps 96.5-97.5. I've had severe sinus issues with a severe sinus infection in late 2008 and early 2009. This seems to be when I started feeling ill all the time. Always fatigued, fuzzy head feeling, can't concentrate, etc.
There are many times I feel like my brain is shifting quickly - only way I can describe it - like my head shifted but my body didn't.
I've been to a chiropractor, general practice physician, and now neurologist. CT scan fine, MRI scan fine. No lesions, no tumors. My sister has MS so I was assuming this was what I had, but nothing turned up. White blood cell count, slightly low, but didn't seem to raise a flag to Neurologist.
I would just like some relief. I feel like when I go to the doctor or complain to my husband they look at me like I'm crazy and nothing is wrong - or just deal with it like it's normal to feel this way. Every forum I come across seems to be the same - many people with the same symptoms but no answers. How can this not be diagnosed? Hopefully someone can find the relief we all so desire and share with us this mysterious diagnosis.
I have pretty much all of these symptoms. I have been diagnosed with histamine intolerance. I had chronic sinusitis that no doctor could find the reason for. turns out it was histamine...fresh fruit and veggies make me sneeze, give me post nasal drip, leads to dizziness, the tingling is related to the fact that histamine regulates brain chemicals. I often get migraines after eating certain foods...
I highly recommend testing for it. if you cant afford/get testing, look up histamine intolerance diet and try it for a couple of weeks. if it helps then you have a good idea of what's causing this mess.
I was a mess...feeling at least 50% better now, and 100% better for finally knowing what it is.
I feel for all of you!! I have been experiencing same thing for the last year! Prior to, I was a active, healthy and happy young woman. It is so defeating when the docs want to blame it on stress when you know in fact it is not "in your head". They dont realise that your whole life suffers when all you want to do is get answers and get better. I wish we could all find the answers for one another!
I know how you feel I also gave been going through the same thing for a year now.. I had to go to urgent care and this doctor gave me some pills that have completly taken all pain and other symptoms away ( Gabapentin) Used for seizers.. Nerve deadning.. Try this! Let me know if this helps any one I went through three doctors a nirologist and two chiropractors suffered for a year.. Mist the time in bed
( extream pain in head neck swelling viritgo all of it ) .., good luck
Dizzy, headaches, stomach issues, fatigue, just like all of you!
I can't believe there are so many people out there with the exact same symptoms I've been experiencing. I have had every single one of the things everyone has mentioned, from the stomach problems, to the vertigo, the auras with no headache, fatigue, numbness in my hands and feet, tingling in my arms, ear ringing (tinitus), the inability to clear my ears along with slight hearing loss, my heart sometimes seems to miss a beat then beats extra hard, I've had bumps at the base of my skull that are painful, I see flashes of light while in the dark, sharp pains in random places like my earlobes or thigh or arm (didn't see anyone else mention that one but it's gotta be connected), blurred vision, NO short term memory, trouble making decisions, insomnia, and even twitches sometimes. One other thing that I have that no one mentioned is hyper hydrosis. Not sure if it has anything to do with any of this, but who knows?
I've been told it's everything from stress to too much sugar, not enough sleep, seasonal allergies (which I do have but I also have bouts even in the dead of winter), reaction to too much allergy medication, celiac disease (though never tested), too much iron, sinus infections, positional vertigo, too much coffee, PMS, endometriosis, depression, non-allergenic rhinitus, I've even had some very kind people tell me I'm a hypochodriach. Love that one. If I could force them to live a day in my body they'd change their tune.
Anyway, it started when I hit puberty and it's been getting worse and worse as I get older (27 now). I have a feeling it's going to be even worse when I eventually get pregnant, so it would be great if ANYONE could figure out what the hell is wrong with all of us. The only thing that has ever given me relief oddly enough is cheerleading. When I'm at pracitce or when I'm coaching, everything disappears. I can see clearly, I can think, I don't hurt, I'm not tired, I can remember things from last practice, I know people's names, my heart rate levels out. Clearly I can't cheerlead 24/7 though so it's only a temporary relief.
If so many of us have these things going on, there's got to be something to it. There's no way we're all crazy. How do we figure this out? How do we bring it to light so we can stop being treated for each symptom on its own and FINALLY have a doctor look at what's causing all of them together? We need Oprah on our side or something...
One last thing, a while back I entered all of these symptoms into a Google search and I came across some info on serotonin inbalance. It actually seems to cause a lot of what we're experiencing. Check it out and see if you agree. I'm thinking this has to be some sort of chemical imbalance of some sort. I tried taking 5 HTP suppliments which help with the production of serotonin and they seemed to help a bit - though I was on all sorts of other meds for other symptoms too so it's kinda hard to say.
Hey, so I've been gathering info all day and I took a look at Histamine Intolerance. For myself allergies have been a big part of my problem, and from what I read histamine intolerance can be blamed for a lot of the things we all seem to be experiencing. Might be a possible answer.
I am a 52 year old woman with all of the same symptoms as those previously posted. They began over 4 years ago following a hysteroscopy. I have an additional problem which no one else has mentioned : when I wake at night, which I do 2 - 5 times a night, my body feels very heavy, my limbs are like lead, my diaphragm feels constricted, I have nausea, tingling of the head and face and exremities, I often have rapid images flashing before my eyes and when I move, I experience severe vertigo. If I stretch, a tremor passes through my body making me feel very unwell - almost is if poison is shifting through my veins. These symptoms are in addition to the day time symptoms described by other posters such as,brain fog, heaviness of limb, fatigue, dizziness, a sense of pressure in the head, bowel dysfunction and vertigo.
I have seen gynocolgists, cardilogists, ENT, neurologists, respiratory specialists, physiotherapists, homeopaths, nathropaths, chinese herbalists, kinesiologists and had massage. The list of diagnostic tests is endless and all have been negative.
I have researched the Web and found nothing that fits.
I am going to the Chronic Fatigue Clinic tomorrow but am not optimistic.
There is no doubt we are all ill. Wouldn't a diagnosis be wonderful? However, I would settle for some respect from the medical profession and to not be written off as being a fanciful female!
If anyone can help, that would be marvellous.
test results I've had due to vertigo, nausea, IBS, fatigue, aura
I've had a couple tests done due to the long list of symptoms we all share, and so far here's what's come back: elevated levels of IGG (which are proteins made by the immune system to destroy foreign invaders)came up in my Celiac test and elevated levels of GGT (liver enzyme) which may indicate damage to liver or pancreas came up in another blood test.
Pre-excitation showed up in my ECG (the early delivery of an electrical impulse to heart muscle prior to when it should normally be arriving) when I was having a bad bout with dizzy spells so I'm thinking they could be linked.
No diagnosis yet, but at least things are showing up and they don't think I'm crazy. The blood tests that I had done were more than your usual tests. I went to a special clinic called Medisys. It was expensive, but worth it. I'm not sure if these kinds of results will show up for all of us, but they're things you may want to specifically ask for.
I am a 43 yr old female who has had all the symptoms listed above,no real diagnoses,it is totaly insane,ever since i have had my last wisdome tooth pulled i have ,been sick,and too,hospitalized with severe virtigo,i stay dizzy all time,off balance,ringing in ears ,popping in ears,headaches,sinus problems ,colds,tingling in the head,bone pain,ect..i have had ever test there is to have,,,it is totally disabling,,i can't work???? what is it ????it has put in me depression, and problems with those around me.. ''help''
lots of these people have had these symptoms for many years. if it were lyme disease they would have inflammation of the heart by now and having more cardiac issues. also several people have stated they have been in the hospital for various types of infections so they have been on antibiotics. i dont think its Lyme, everything points to something neurological. The doc that told the lady it was a histamine thing...lol sounds like some of the idiots I have dealt with. the seizure theory i have wondered about as there are several different types of seizures, and many of the symptoms you guys have said you have are felt during and sfter seizures
I'm having the same symptoms. I have been diagnosed in the past with HDAD, IBS, scoliosis, osteoarthritis, rheumatoid arthritis and some other minor ailments. I didn't want to take all the meds that had been given to me and felt better for a time so I quit seeing the doctors for about 6 years until........My stomach was burning so bad I couldn't take it anymore and I was having horrible back spasms 2 to 3 times per week at night. I was then diagmosed and treated for GERD and stomach ulcers-Great! That was solved. Two weeks later I had what I thought was a BAD toothache and I ignored it. Then I had a severe headache and let this go for a month. New Years day I was at the emergency room, blood pressure 157 over 100 something (I figure because of the pain)fever 102. My bloodwork came back good, red and white blood cells good as well. Dr. said my teeth looked good and sent me for CT scan. I was told I had a double inner ear infection and severe sinus infection-gave me 2 weeks of strong antibiotic, not better. I went to the dentist-no reason for a toothache-everything fine and told me sinus infection. I was on another week of different antibiotic...not better. My family Dr. says sinusitis. I am in SEVERE pain and can find no relief. My head and neck make a crunching, krinkling sound, my teeth still hurt, headache that feels like my head is in a vice, headache that feels like my head will explode, back of my head and neck are very heavy and painful, neck hurts down thru my shoulders, my temples throb, top of my head hurts horribly, scalp is tight (tension?) my head tingles, crawls and feels numb (don't know how to describe it) dizzy, extremely tired-no energy at all and tire very easily and even my limbs feel heavy, weak and numb. I was tested 6 years ago for lyme disease because of symptoms I was having then and it came back negative. I can't live like this. It takes all my energy to just walk accross the room, this is affecting my work,my housework and my life! Please if anyone has got an answer, share. Thank you
your headache and neck pain sound like A-typical migraines, or complex migraines. Have you tried Imatrex? My guess is if you have it doesn't help, nor does the neurontin or many of the others used. you could also be having muscle spasms in your neck. my sister had all the same issues including having some herniated discs. botox injections in the back of her head, a chiropractor, and a tens unit and her migraines and neck pain Re down to once a month from 2-3 a week!