Am I right to be pissed off that with a
history of depression I have been put on
keppra and rivotril to treat my epilepsy.
I don't see my depression kicking off
again as a coincidence - why is sorting
medication not simple.
2 years and 3 months after first seeing a
neurologist I am no nearer stopping my
seizures and now depressed.
I have tried lamotrogine but was allergic,
carbamazapine but it gave me more seizures
and am now on keppra and rivotril. I feel
like my life has been on hold for years
and just don't know how much more of it I
can take :0(
i read the nice guidelines regarding
epilepsy the other day and realise my
previous neurologist was a joke!!!!!!!!
Sorry for rantin just needed to say it as
noone else ie listening!!
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sandyallen
Extremely EHEALTHy
Joined: 02 Feb 2004 Posts: 4580
Posted: 06-14-05 18:55pm
It is o.K., that is what is done here,
rant and rave all you want, we listen to
ya. My opinion is if you are not happy
with your physician, get another opinion,
I always feel about three or four should
do and then stick with the one that we
feel most comfortable with. Be happy!
Sincerely,
sandy
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Yorkie
New User, Becoming EHEALTHy
Joined: 22 May 2005 Posts: 4 Location: Birmingham
Posted: 06-15-05 06:59am
Thanks. I just changed because my first
neuro was a joke who didn't listen and all
he told me was that being epilpeptic meant
I shouldn't have kids (total rubbish),
ignored things I told him, asked my
partner what happens when I have seizures
and then whilst my partner was responding
and actually had a conversation with the
receptionist over the top of him!! Even
after a physio who works with epileptics
saw me have a fit and told me it was grand
mal epilepsy he still queried whether it
was because my scans showed nthing (as far
as I can see that can be quite normal)
my new guy seemed great but after the
doctor diagnosed me with depression last
tuesday and believes it's due to my
medication he faxed the neuro the next
day, has called him and has sent him a
letter. I called to chase the appointment
this morning and was told by his secretary
that he wont even open the letter til
tuesday.
I don't know whether I expect too much - I
realise that he has other patients to see
and all that but I seriously don't know
how much more I can take.
I've been signed off for two weeks but
realise in reality its likely to be more
unless the neuro phones me and makes me go
to see him immediately after reading the
letter, work will think I useless at my
job as i've already had time off due to
seizures - including 2 at work - my
sister is having problems oher own, my
brother is on holiday and there's nly so
much my parents and partner can take. I
just don't know who to talk to about
anything I feel so self pitying but I just
can'tsee an end to any of it
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
Thanked:0
Posted: 06-15-05 12:50pm
So sorry the first neuro was so poor!!
Seizure meds can cause depression for
some, there can also be a link for where
the seizures are in the brain and
depression. Having a new diagnosis of a
chronic illness can also bring on
depression so there is no easy answer.
Your neuro may be able to talk to you over
the phone about all this and discuss a
change in meds. Some seizure meds are
known to help some with depression.....I
know that depakte can be a mood stabalizer
for some.....Lamictal can also have some
positive effect. Keppra is known to
worsen mood and can cause more depression
for some...
I hope you can find answers soon. So hard
to wait on appointments and things! Hang
in there.
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Dakotalawdog
New User, Becoming EHEALTHy
Joined: 20 Apr 2005 Posts: 30 Location: ND
Posted: 06-20-05 14:36pm
I was taking (still taking) lexapro for
depression before my diagnosis of temporal
lobe epilepsy a week and a half ago. I
had open heart surgery last fall to repair
an aneurism in my aorta. There isn't
enough space to cover everything that's
happened to me in the last 2 years, but it
has been stressful. My wife and I
separated too and are divorcing after
almost 20 years.
Find someone to talk to that will actually
listen to you. That helps most.
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Yorkie
New User, Becoming EHEALTHy
Joined: 22 May 2005 Posts: 4 Location: Birmingham
Sorry Posted: 06-21-05 08:11am
Really sorry to hear about your situation
but thanks for the advice I reallyy hope
things work out for you :)
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brissysearching
New User, Becoming EHEALTHy
Joined: 10 Jun 2005 Posts: 5 Location: brisbane
Depression And Aeds Posted: 06-22-05 21:37pm
Hi and sorry to hear about your probs.
Guess I am very lucky - mind you I know
that it is because I am very musical but
I would suggest that maybe - for what it
is worth if you are down try listening to
some music - and see if that helps - and
yes double check your speciallist.
Cheers peter ps I have posted 2 messages
so far but neither have shown up on
screeen - I am trying to help someone I
think has myoclonic epilepsy so if you
know anything could somebody email - .
My email is
brissysearching@hotmail.Com yes
I am epilleptic . I have petit mals - and
used to have grand mals . My mum also has
them and suffers from absence status.
Cheers and chin up :wink:
Hi all, i'm wondering if someone can help
me.
I have a friend who is in his early 20s
and has epilepsy. He has just lost his
job for the second time because of an
angry outburst. I was present at the time
and it seemed his mood changed a the drop
of a hat. I have constantly asked him to
go to the doctor but he keeps telling me
to leave him alone. I'm scared that he is
getting a cycle of losing his job because
of his anger problems. Recently, he also
cut his wrist with a knife and doesn't
remember doing it. I don't know what to
do, can someone please help? I don't want
to see him hurting anymore
