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Conditions and Diseases > Epilepsy Forum > my son has just been diagnosed with epilepsy
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Q: my son has just been diagnosed with epilepsy
asked by: justensmommy on July 31st, 2003
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My son was diagnosed with epilepsy in June of this year. The doctors tell me that the epilepsy is caused by the damage done to his brain last summer when he contracted a very rare disease called Acut Disseminated Encephalyomyelitis. He was in a coma for 12 days and had to learn everything all over again. I am very lucky to still have him with me, I am just trying to learn how to cope with this New development.
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plambert
replied on August 6th, 2003
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Your Son
Sorry to hear about your son. My son was 19 when he started having grand mal seizures, no head injury or cause was ever found. Hopefully your son is young enough that he may stop having them. Does he have seizures often? Sorry to say though, that there is not a lot we can do accept be there for them. Have you heard about the ketogenic diet? It's a high fat diet that has helped kids stop having seizures. Doctors know little about how it works, but 70% of kids who've done it have stopped having seizures. Heard about it on dateline then read more on the internet. My son is too old, it apparently works better on children, and you have to have a doctor help you with it. (my son isn't covered on my ins anymore) you might look into it. Noticed your from okc, grew up their, job transferred me to dallas. My prayers are with you.
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