Hi, my name is nancy and i'm trying to
find out something regarding lupus and
alcohol consumption. A very dear friend
of mine was diagnosed with lupus a few
months ago. She has had a lot of
outbreaks and has some days that are
really bad. My fear is regarding the
amount of alcohol she drinks. She in my
opinion is a problem drinker and this I
know a lot about as I am a recovering
alcoholic with 3 1/2 years of sobriety.
It is my belief on the little bit of
research that i've done that alcohol,
especially wine, which is what she drinks,
causes these outbreaks to become worse?
Is that so? Also, does the alcohol also
contribute to worse days due to her joint
pain? Her husband and I are very
concerned about the drinking and both
believe that the drinking is causing her
more problems with the lupus? Any feed
back would be greatly appreciated.
|
chrislupuslady
New User, Becoming EHEALTHy
Joined: 12 Jun 2005 Posts: 4
Posted: 06-12-05 09:17am
Well I think she should discuss with her
dr the amount she is drinking...
This could indeed make things worse if
shes on meds as you do have to be
careful.
Everything in modertaion I think.
|
Nantar
New User, Becoming EHEALTHy
Joined: 08 Jun 2005 Posts: 2 Location: Texas
Lupus & Alcohol Posted: 06-12-05 09:43am
Thank you chris. I agree with you about
the moderation more than you know. The
problem with a problem drinker is they
don't know how. I don't think she's
discussed this at all with her doctor and
probably won't. Most of the research
i've done is to let her husband know so he
can help her through this. The only
medication she has been given this far is
the steroid cream which she doesn't like
using because of the burning sensation.
I read that alcohol is probably a big
culprit in her breakouts especially
because she drinks wine and the sulphites
in wine make it worse. I've also read
that diet sodas are a danger for break
outs which she also drinks a lot of. If
anyone has more information regarding the
consumption of alcohol and diet coke, i'd
appreciate your feedback.
Thanks again chris.
Nancy
|
ladybirdie
New User, Becoming EHEALTHy
Joined: 04 Aug 2005 Posts: 1 Location: columbus
Posted: 08-04-05 07:13am
Hello every one my name is birdie and I
got diginoesed with lupus almost a year
ago. I have only had two flare up since I
was diginoesed. The problem that I am
having is I smoke and I drink and I want
to know how that will affect me having
lupus? I have done lots of reserch on the
subject but I have not found anything that
can help me. I don't drink all the time I
am a social drinker. My boyfriend of 2yrs
now has said that the fact that I drink
and have lupus that I am killing myself.
I depertly need some advice from someone
who can give it to me. I am not on
medication I choose to self medicate
myself. I pray alot and leave it alone.
I am also new to this site so please
forgive me if I ask questions that I don't
suppose to I am just looking for something
that relates to drinking and lupus. Thank
you
birdie :?:
|
des
New User, Becoming EHEALTHy
Joined: 07 Oct 2005 Posts: 1
Alcohol Posted: 10-07-05 11:52am
My body does react to alcohol. If I only
drink a few beers I have terrible
inflammations on my nose and ears the next
days. I am diagnosed with dle by the way.
I stopped drinking totally (not a sip)
three months ago and no inflammations
since. Although it may sound harsh it is
actually quite a relief - dle gave me a
reason to stop a nasty habit. I am
working as a marketing manager in a big
corporation and there is always something
going on after work (drinks, dinners
etc.). I am telling openly that I have an
auto-immune disorder which is triggered by
alcohol. No problems in social settings.
|
nichole handran
New User, Becoming EHEALTHy
Joined: 24 Nov 2005 Posts: 11 Location: mpls
About Drinking Posted: 11-24-05 14:11pm
I have had lupus now for a year and
drinking of any sorts makes me extremely
sick. It will definitely effect your
liver more than a healthy person and your
chances of pushing your body to its
breaking point can happen much faster. I
still am having flare ups and my body will
not accept its self. If I were to drink
it could be fatal. The point is, you
cannot party or stay up late and even work
out like how you used to. Your body
becomes a foreign object without cause or
reason. Good luck to all of you but be
very careful while drinking there are
cases of body's shutting down from
drinking and it can be very very fatal.
Moderation might be different in the
drinkers eyes. My suggestion is not to
drink at all. I have a hard time with it
too, I bartend and nothings harder than
making a drink and smelling your favorite
alcohol. I wish you all a happy
thanksgiving and be greatful that lupus
can be controlled to some point.
Nikki
|
BlakkStarr1
New User, Becoming EHEALTHy
Joined: 27 Dec 2005 Posts: 12
Re: Lupus & Alcohol Posted: 01-02-06 20:45pm
nantar
wrote:
hi, my name is nancy and i'm
trying to find out something regarding
lupus and alcohol consumption. A very
dear friend of mine was diagnosed with
lupus a few months ago. She has had a
lot of outbreaks and has some days that
are really bad. My fear is regarding
the amount of alcohol she drinks. She
in my opinion is a problem drinker and
this I know a lot about as I am a
recovering alcoholic with 3 1/2 years of
sobriety. It is my belief on the little
bit of research that i've done that
alcohol, especially wine, which is what
she drinks, causes these outbreaks to
become worse? Is that so? Also, does
the alcohol also contribute to worse days
due to her joint pain? Her husband and
I are very concerned about the drinking
and both believe that the drinking is
causing her more problems with the lupus?
Any feed back would be greatly
appreciated.
hi nancy....I was recently diagnosed with
sle, and when the hematologist started me
on prednisone, he told me no alcohol. I
don't know if it is because of the
prednisone or the sle. I have not had
anything alcoholic in 4 months...But since
I do not drink alcohol on a regular basis,
I have no problem not having any.
Someone should make her md aware of the
alcohol intake.
|
nichole handran
New User, Becoming EHEALTHy
Joined: 24 Nov 2005 Posts: 11 Location: mpls
Re: Lupus & Alcohol Posted: 01-03-06 16:15pm
blakkstarr1
wrote:
nantar
wrote:
hi, my name is nancy and i'm
trying to find out something regarding
lupus and alcohol consumption. A very
dear friend of mine was diagnosed with
lupus a few months ago. She has had a
lot of outbreaks and has some days that
are really bad. My fear is regarding
the amount of alcohol she drinks. She
in my opinion is a problem drinker and
this I know a lot about as I am a
recovering alcoholic with 3 1/2 years of
sobriety. It is my belief on the
little bit of research that i've done that
alcohol, especially wine, which is what
she drinks, causes these outbreaks to
become worse? Is that so? Also,
does the alcohol also contribute to worse
days due to her joint pain? Her
husband and I are very concerned about the
drinking and both believe that the
drinking is causing her more problems with
the lupus? Any feed back would be
greatly
appreciated.
hi nancy....I was recently diagnosed with
sle, and when the hematologist started me
on prednisone, he told me no alcohol. I
don't know if it is because of the
prednisone or the sle. I have not had
anything alcoholic in 4 months...But since
I do not drink alcohol on a regular basis,
I have no problem not having any.
Someone should make her md aware of the
alcohol
intake.
hello nancy. I have noticed in the past
that with my sle I cannot drink what so
ever. The rest of the week I would suffer
tremendously and feel awful. It can
truely effect your liver especially the
meds you are on. No matter what drinking
can be dangerous even to a healthy body.
But to add alcohol to lupus I believe is
just risking too much damage to your body.
Speaking with the Dr. Is defenitly a
great idea. I have now figured out the
healtier you keep your body with this
disease the better you will be. Common
sense. Take matters into your own hands
as well. Consult with a doctor. And if
they are like mine they wont comment on a
thing. So I have started taking vit b12
and b6 along with selenium. I have
decreased my steroids to 1/4 tab of 4mg
tablets every otherday. Now iam on every
3 days. You are in control of this
disease. Dont allow it to control you.
Drinking is a risk maybe too much of a
risk. Is it really worth it. I havent
drank for 6 months now. It doest bother
me to a virgin daquari. Whats the point
of risking your health.
Nikki if you would like to talk nicholehandrannikki@hotmail.Com
|
Rebecca Schwartz
New User, Becoming EHEALTHy
Joined: 04 Jan 2006 Posts: 11 Location: Bowling Green, Ky
Lupus And Alcohol Posted: 01-04-06 16:57pm
I hope your friend isn't on medications,
because if she is, alcohol mixes terribly
with some of them, and can cause physical
and mental problems as a result. If she
is not, like myself, the only thing she
really has to worry about is the flares.
I had a brief spell over the summer in
which I couldn't stop drinking. Luckily
I snapped out of it quickly because my
father is an alcoholic, and I did not want
to go down that road! I felt terrible
during that point in time. The alcohol,
when not used in moderation, made my lupus
flares amplified. I would not even
recommend more than 1 or 2 drinks at a
time even. I hope she snaps out of this
just as I have for her sake and for those
around her.