Well I think she should discuss with her dr the amount she is drinking...
This could indeed make things worse if shes on meds as you do have to be careful.
Everything in modertaion I think.

Thank you chris. I agree with you about the moderation more than you know. The problem with a problem drinker is they don't know how. I don't think she's discussed this at all with her doctor and probably won't. Most of the research i've done is to let her husband know so he can help her through this. The only medication she has been given this far is the steroid cream which she doesn't like using because of the burning sensation. I read that alcohol is probably a big culprit in her breakouts especially because she drinks wine and the sulphites in wine make it worse. I've also read that diet sodas are a danger for break outs which she also drinks a lot of. If anyone has more information regarding the consumption of alcohol and diet coke, i'd appreciate your feedback.

Thanks again chris.

Nancy

Hello every one my name is birdie and I got diginoesed with lupus almost a year ago. I have only had two flare up since I was diginoesed. The problem that I am having is I smoke and I drink and I want to know how that will affect me having lupus? I have done lots of reserch on the subject but I have not found anything that can help me. I don't drink all the time I am a social drinker. My boyfriend of 2yrs now has said that the fact that I drink and have lupus that I am killing myself. I depertly need some advice from someone who can give it to me. I am not on medication I choose to self medicate myself. I pray alot and leave it alone. I am also new to this site so please forgive me if I ask questions that I don't suppose to I am just looking for something that relates to drinking and lupus. Thank you

birdie :?:

My body does react to alcohol. If I only drink a few beers I have terrible inflammations on my nose and ears the next days. I am diagnosed with dle by the way. I stopped drinking totally (not a sip) three months ago and no inflammations since. Although it may sound harsh it is actually quite a relief - dle gave me a reason to stop a nasty habit. I am working as a marketing manager in a big corporation and there is always something going on after work (drinks, dinners etc.). I am telling openly that I have an auto-immune disorder which is triggered by alcohol. No problems in social settings.

I have had lupus now for a year and drinking of any sorts makes me extremely sick. It will definitely effect your liver more than a healthy person and your chances of pushing your body to its breaking point can happen much faster. I still am having flare ups and my body will not accept its self. If I were to drink it could be fatal. The point is, you cannot party or stay up late and even work out like how you used to. Your body becomes a foreign object without cause or reason. Good luck to all of you but be very careful while drinking there are cases of body's shutting down from drinking and it can be very very fatal. Moderation might be different in the drinkers eyes. My suggestion is not to drink at all. I have a hard time with it too, I bartend and nothings harder than making a drink and smelling your favorite alcohol. I wish you all a happy thanksgiving and be greatful that lupus can be controlled to some point.
Nikki

hi nancy....I was recently diagnosed with sle, and when the hematologist started me on prednisone, he told me no alcohol. I don't know if it is because of the prednisone or the sle. I have not had anything alcoholic in 4 months...But since I do not drink alcohol on a regular basis, I have no problem not having any. Someone should make her md aware of the alcohol intake.

hello nancy. I have noticed in the past that with my sle I cannot drink what so ever. The rest of the week I would suffer tremendously and feel awful. It can truely effect your liver especially the meds you are on. No matter what drinking can be dangerous even to a healthy body. But to add alcohol to lupus I believe is just risking too much damage to your body. Speaking with the Dr. Is defenitly a great idea. I have now figured out the healtier you keep your body with this disease the better you will be. Common sense. Take matters into your own hands as well. Consult with a doctor. And if they are like mine they wont comment on a thing. So I have started taking vit b12 and b6 along with selenium. I have decreased my steroids to 1/4 tab of 4mg tablets every otherday. Now iam on every 3 days. You are in control of this disease. Dont allow it to control you. Drinking is a risk maybe too much of a risk. Is it really worth it. I havent drank for 6 months now. It doest bother me to a virgin daquari. Whats the point of risking your health.

I hope your friend isn't on medications, because if she is, alcohol mixes terribly with some of them, and can cause physical and mental problems as a result. If she is not, like myself, the only thing she really has to worry about is the flares. I had a brief spell over the summer in which I couldn't stop drinking. Luckily I snapped out of it quickly because my father is an alcoholic, and I did not want to go down that road! I felt terrible during that point in time. The alcohol, when not used in moderation, made my lupus flares amplified. I would not even recommend more than 1 or 2 drinks at a time even. I hope she snaps out of this just as I have for her sake and for those around her.

I have just recently been diagnoised with lupus. After a miss diagnosis of fibromyalgia. My gp put me on long tern anti biotics which made me feel terrible and made my skin smell like pop corn. It has not helped with the rash on my face or the acne i suffer and the many skin allergies i suffer. My gp is now suggesting anti malaria treatments and ive heard horrible stories. can anyone give me some advice and be a friend to talk to as im so unsertain and sceptical and unsure
kind regards
sarah
newcastle

Dear Sarah
I have had lupus now for 16 years with the birth of my second child (sle)I have been on anti malarial drugs ever since, the one I am on is "plaqunil" Throught the years I have been on and off of it whenever I am off it, I get really bad flares...most of the time I winde up in the hospital. At this point even when I feel great my Dr. won't take me off the plaqunil. I have needed to take steriods a couple times and Sarah, trust me...plaqunil is far better!!
I wish you the best and stay possitive
good luck
Erika

I am a 37 year old male that was diagnosed with SLE 10 years ago, and type 1 diabetes 8 years ago. I work 40 to 45 hours a week, I feel tired most of the time and it seems that my body is always in a "tensed" state. The only time that I experience a relaxed normal feeling, physically and mentally -even the next day- is after a couple of drinks. I know alcohol acts as a depressent and was wondering if it does something to slow down the symptoms of autoimmune disease?

I was recently diagnosed with Lupus. I have been a heavy beer consumer (wine and hard liqour were never my preference), but have not had anything to drink for over two months. I have had the fatigue, the ankle swelling, arthritis, etc. I am heading in for a liver biopsy within the next two weeks.

I hurt myself because of alcohol (it has been a rough road - - - but I am proud of myself for stopping drinking). I know it, and most certainly don't deny that I caused this on my own.

Have any of you all had a liver biopsy? If so, what should I expect? I am a tough-hearted, 40-year old woman, who needs some advice from those that have been there. I am a bit scared.....but I can face this thing head-on.

My best to you all out there dealing with this disease! I do not know what the road before me will show, but any advice would be certainly welcomed!

C~

Hey C,

I have lupus hepatitis and had a liver biopsy done. The biopsy isn't painful at the time because they inject you with a something that numbs the area around your liver, but my right shoulder hurt afterwards for quite sometime, they said this is normal. The whole procedure is fairly quick and you are awake, the biopsy feels a little weird because they have to put a lot of pressure, more akward then it was painful. Hope this helps.

Minelli