I've recently been dx'd with alport's. I'm learning more and more about the disease. I understand that my 90% hearing loss at age 26 was not due to my military service , working around aircraft,,,,,,,,it was an invaluable symptom in finding out what is wrong with me.

What i'm struggling with is that everything I read speaks of bloodpressure medicines to lower the pressure> ive yet to find anything about someone struggling with alport's and low blood pressure.

Searching for anyone with information on alport's accompanied with low blood pressure and hearing loss.


Thank you very much!
Kim