This my story from last year, sorry if its long this was first written 4-2004

about 30 months ago, I started noticing slight twitches in my fingers while on my computer. They were very infrequent at that time. I wasnt diagnosed with diabtes at that time for I dint go to the doctor. About a year later, as the twitches were more frequent I got on the net and started looking. I saw that my thisrt and frequent urination and twitches(neuropathy) were possible diabetes. I went to the doctor in 1-03 and I was correct. I caught it in early stages, for my sugars were like in the 200-300 range at that time. My md said the twitches would probably go away when the sugar went down. I went and got my feet checked, eyes checked, and I was still good on it all. With glucofage and amaryl after 3 months my sugars span was 6.9% with that hemoglobin test they do. I was under control. The twitches remained. Next 3 month visit, sugar was 6.5%, twitches still getting more frequent. That was 7-03, and my md couldnt explain why I had the twitches. He said I had no neuropathy and couldnt explain it. He sent me to a neurologist. The neurologist could not diagnose it. Said I seemed ok on all his physical checks on me as far as thepushing and pulling of me and walking and such. He said if I wanted further test, they would do it. I said ok. Thyroid checks ok. Potssium and calcium all ok. He then said I could have a mri brain scan. I had that last october and it was clear. Next was the emg(didnt realize what that meant). I went thru the whole thing with the needles all over. They said on that all was ok, allthough they did possibly see some borderline paraneurpathy. There diagnosis that my md translated to me was neuropathy. In 1-04 when I asked my md about it, he said I had no neuropathy so he didnt understand. In 5-04 sugars still ok, and diabetes under control. Twitches still progressing.
Twitches seem to be allover my body, but never above the neck. Mostly I feel them in my legs and arms, allthough I have felt them in my sides and shoulders too. They seem to move from place to place. Throught out the day and night. I cant say they are more frequent at any time. Somedays they will be in my left hand, and make my fingers wiggle alot. The next day it may go to my right hand. Somedays its a forearm that does it all day. When its in my fingers, thats when I get most concerned. The twitches never hurt. I have no muscle weakness. Sometimes after working out in the yard, I do feel a little more tired in my arms, but thats probably for getting old and goes away anyway. They never hurt. I never get any cramping. Its just over the last 30 months, they have progressed and still seem to be. They happen mostly when I am relaxed. If my finger is twitching, I can clinch a fist and override it. If my hand is on the mouse and it twitches I can tell it, and its nerve wracking, but it doesnt really stop me from doing anything. Sometimes if my arm and hand are extended holding a paper, it will shake some, but not always.

I have been to chiropracter/acupuncterer and he looked at my xrays and said he would treat me 3 times a week, but he couldnt say I had a problem to cause that stuff. I have taken vitamina,c, and d and multi vitamins. I dont drink or smoke. I have even tried excercising daily. I cant seem to do anything to stop this proression.

I can live my life fine with the way it is now, I just I am so worried it will continue to get worse until I look like muhamad ali shaking uncontrolably.

I am considering now going to a pschologist to see if it is a mental thing and stress is causing it. I also have been looking on the net about benignfasciculations. That sounds like what I have. Idon't know.

I would say that I worry alot about diabetes, but iworry alot more about these twtches. I can lose weight,eat right, or worse case take insulin one day for diabetes. These twitches though, I seem to have no control over and it worries me badly.

Update 5-05

what I know now.
1) b12. I have been eating all kinds of massive b12 for 8 months now. Md said b12 level was high. I have been eating about 10,000 mcg average a day in lozenges on straight methylcobalimin. I dont think its b12.
2) md said calcium,potassium, and the thyroid were ok.
3) neurologist after doing brain scan and the needles all over me said it just showed a slight amount of neuropathy sporadically and it must be attributed to to diabetes, which the endocrinilogist said it couldnt be since I was in great control of diabtes and shouldnt even be seeing a specialist.
4) endocronoligst said all my symptoms had nothing to do with diabetes after my md referred me to him.

Bfs I am wondering? I dunno. All I do know it is still getting worse. I will have a week once in a while where the twitches seem around 80-90% gone, then the next week, like now, they are back worse than ever. At the moment its in my different fingers . They sometimes get sorta stiffish or curled from the twitches now and I seem to have less control of whichever finger is twitching. I still get twitches allover too from my lower legs to my chest. I am outta answers and dont even know where to go now, except maybe here. I am really betting on bfs, but since this keeps getting worse, I am wondering where that would end if it was it. My fingers actually feel kinda like carpal tunnel slightly, but since I get twitches allover, I know it isnt that, but that is how I kinda describe tem .Please any more ideas?,,,,7