Medical Questions > Conditions and Diseases > Pancreas Disorders Forum

Pancreatitis

Must Read
Abdominal pain and bellyaches are common. Though most cases of abdominal pain aren't serious, sometimes you will need to see a doctor. We’ll review some of...
Abdominal pain can be uncomfortable but is very common. But when is pain in the abdomen serious? Learn how to describe your symptoms more accurately so that yo...
It's important to "know your pain" to help your doctor diagnose the reason behind abdominal pain. Read on for more tools and information about how to diagnose ...
I need to be able to contact an expert in pancreatitis (acute originally but now, even after surgery, I fear chronic) in order to get specialist help and advice on diet. Can anyone help?
Did you find this post helpful?
First Helper ReeAnn
|

replied January 29th, 2004
Hi - how many times did you have pancerasitis? I had it for the first time last fall and had to leave college. I had to stay in the hosptial for 3 days and i'm only 21. The doctors says I was close of getting diabetes and left me with a strict diet of no fatty food and cosume a lot of water and no junk food as well as no drinking. Let me know what your doctors said about yours?
|
Did you find this post helpful?

replied April 26th, 2004
Chronic Panceas Disorders
I have resently been diagnosed with chronic pancreatitis myself and this is after two serious episodes with hospitalization.My next appointment is to have a gastro Dr. Take alook into my pancreatic duct /stomache to see what the problem is.I am also having an mri for same reasons.I am not to eat food containing fat and have several prescriptions-one of them being viokase, a medicine used to help the pancreas produce the enzymes in digesting fatty foods.
I would suggest using google as a search basis for all those with the disorder as it is very serious...Though I have a hard time taking it seriously myslelf;go figure!
|
Did you find this post helpful?

replied January 3rd, 2005
Hi jean,

if you have insurance, I strongly suggest you contact your local hospital and acquiring an appointment with a register dietican or nutritional counselor. This was a great help to me!!! I virtually had to learn how to cook all over again in order to maintain a low fat diet - under 20 grams a day!! If I take a bit of something with more than 10 grams, I get hit wil immediate waves of nausea. And the more times you you "push" the pancreatitis like this, the worse the symptoms get.

I have written several papers on this subject to help others with their diet. If you will write to me, I can send you copies.

While I am not a healthcare professional and my opinions are just that - my opinions, I have done extensive research to help myself and others, and consider myself fairly knowledgable about pancreatic disorders. Please drop me a line if you would like the dietary information or have any other questions I might answer.
|
Did you find this post helpful?

replied February 21st, 2012
what is the diet you are on i had surgery on my pancreatic duct three years ago it was almost shut tight still having severe pain hospitalized in mat 2011 pancreas released amalyze thought i wouldn't make it very sick very painful having pains nausea sick headaches after eating but now pain never leaves me
|
Did you find this post helpful?

replied February 21st, 2012
what is the diet you are on i had surgery on my pancreatic duct three years ago it was almost shut tight still having severe pain hospitalized in mat 2011 pancreas released amalyze thought i wouldn't make it very sick very painful having pains nausea sick headaches after eating but now pain never leaves me
|
Did you find this post helpful?

replied April 23rd, 2005
My Husband Has Chronic Pancreatitus!
He has only been diagnosed with it in the last 6 months. Skipped right over acute. He has had the symptoms for 11 years however. He has almost died from kidney failure 3 times during this time due to excessive vomiting brought on by the pain from the flare ups. He has had all kinds of tests & they tell us that all they can do is treat the symptoms with pills & when the pills don't stay down injections from the hospital. He stayed in the hospital 15 times last year & the doctor said he expects him to stay more often this year. In the beginning, they took out his gall bladder thinking that was the problem & nicked his liver in the process. I often wonder if they didn't cause more problems doing this. He has ibs, gastritis, colitis, all the symptoms of crohns disease but without actually having it, his stomach folds in on itself like an accordion & doesn't open & shut properly. His doctor said that he is the worst case he has ever known & that his pancreas has reached a point where it doesn't matter what he eats or does, he will have flare ups when ever now. He never was much of a drinker. I believe stress started it all. He had a stressful family life with an abusive stepfather & protecting his 3 younger siblings & his mother on top of stressful jobs. Dropped out of high school to help support his family & then eventually ending up with a job where he was on call 24 hours working 12+ hour days. He takes the following prescriptions now, panokase, oxycontin, lexapro, risperdal, adavain, another pill to help him sleep, darvocet in between oxycontins, belladonna for spasms, lotrel for high blood pressure, prilosec, compazine for nausea, I think that is it. Not digging out the bag of bottles for this. There has been recent talk about doing something with the nerves to stop the pain. Will be seeing a pain specialist monday about that.
|
Did you find this post helpful?

replied April 23rd, 2005
Specialists
Well, don't go to one in wichita, ks!

I suggest mayo clinic or the pancreatic center in st. Louis, mo.

We haven't tried them yet, but as soon as we have the money & he is well enough to travel, you can bet we will!
|
Did you find this post helpful?

replied April 29th, 2005
For Jewlzz
Dear jewlzz

reading your husband story, it sure sounds a lot like mine - except for the hospitalizations. I posted under another topic about my history, in answer to some of your questions. But I didn't mention my childhood family life.

I too come from an abusive environment, and being the oldest girl of 8 kids, much of my time was spent caring for the rest of the family. I never went to hs at all because of the problems and responsibilities, though I did get my ged and degree later in life. The trauma of growing up in such a family is known to cause digestive problems later in life, though not much time or effort has been been put into researching this by the medical community. It is a shame that so many children still today are suffering under such conditions and face the problems we have, later in their life.

Will keep you and your husband in my prayers!!

Reeann
|
Did you find this post helpful?

replied April 29th, 2008
nerve blockage
In response to the reply regarding nerve blockage - My mother has chronic pancreatitis, she has suffered for years with it, just seems to be getting worse. She had a temporary nerve blockage about a year ago, last for two months, a great two months! Doctor went in to attempt a permanent blockage and threw her into an attack, could not complete the permanent. Weeks later did another temporary blockage last one month. We are now back to square one again. She is on injectable Demerol every four hrs if needed. We go back to Baylor tomorrow. The nerve blockage was great the first go round and well worth it for two months of no pain.
|
Did you find this post helpful?

replied August 27th, 2011
I Cured Mine
I hope this information helps someone else. I promised God I would spread the word about a cure when I had accomplished it. I've been enjoying my life so much lately I have neglected to take the time to post this, but I made a promise to myself that I would share this information on the forums I used to search for a solution. I'm going to spare you my long, painful and miserable search for a cure when I developed this illness. The first thing I did, though, was start eating as healthy as I could, exercising, eating a low fat, low carb, protein rich diet for building muscle. I quit smoking & drinking which I cheated on very sparingly as to not harm my social life too much. It took me about a year before I found a combination of natural supplement that helped with my symptoms. I will include links so you have an idea of where to order these things & their prices.

Bell's Stem Cell Activator (Main thing to help) I suspect the blue/green algae in it with high anti-oxidant levels help clear out free radicals from harming the pancreas. Also good for other things, but this ingredient combination made the largest impact.

Garden of Life Raw Meal (Best diet enhancer) This item made eating healthy a little easier. 26 super foods and digestive enzymesfp=9001911f0f8bb143&biw=1008&bih=66 0
& finally ...

Papaya Enzyme - Took the stress off my pancreas for eating my main meal of the day. I just bought the cheapo stuff from Wal-Mart
|
Did you find this post helpful?
Quick Reply