i am hoping someone can give me a clue as
to what this is: I have moving neuralgia
on my limbs(sometimes on my back too).
One day it is the right forearm, next day
left forearm and fingers. Then time can
pass with nothing and then it starts again
maybe on my thigh, or shin. There are no
visual symptoms, only this pain that feels
kind of like fire or sunburn with
tingling. My clothing hurts it and any
breeze is painful. My doctors say they
have no idea...Imagine that. My family
doc. Said he thought it sounded just like
shingles in the pain, but there are no
sores. The neurologist said he had never
heard of such a thing and basically blew
me off. Anyone heard of such?
Thanks,
mickey
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sandyallen
Extremely EHEALTHy
Joined: 02 Feb 2004 Posts: 4580
Thanks: 1
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Posted: 05-03-05 14:14pm
Hi there! I am very sorry that you are
having these problems! I live with this
24/7, even though I am no Dr., my feelings
is that you might have rsd(reflex
sympathetic dystrophy) or possibly
peripheral neuropathy, it is one nasty
monster to deal with, there is a lot of
information about it on the internet.
Rsd can be cured pretty much if diagnosed
early, then you can get a pain specialist
and get some nerve blocks done, I was
diagnosed late and I will have to live
with it the rest of my life, unless they
find a miracle cure.
Good luck to you!
Sincerely,
sandy
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mickeythered
New User, Becoming EHEALTHy
Joined: 03 May 2005 Posts: 2 Location: Iowa
Moving Neuralgia Posted: 05-03-05 14:50pm
Sandy,
thanks for the reply. It is good to have
a starting point for research. I am 41
now and have had this on and off since I
was about 20. Since my first post today
it has also flared up on the back of my
lower leg...Ah..What a joy. It has never
been disabling, just irritating, painful
and disturbing. Odd how it will
disapppear for months, just to reappear
and remind me I have some unknown
disorder.
I found the info on peripheral neuropathy
interesting. I see it can be caused by
inherited genes or autoimmune
disturbances. As kid I was diagnosed
with some sort of autoimmune deficiency.
I seem ok now, except for this and a
propensity for colds and flu.
Thanks again,
mickey
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sandyallen
Extremely EHEALTHy
Joined: 02 Feb 2004 Posts: 4580
Thanks: 1
Thanked:0
Posted: 05-03-05 18:35pm
I am sorry that I could not help you in a
more positive way and I do understand what
you are going thru! I have found out
that you must keep functioning, try not to
let it get you down and I do realize that
it is easier said than done but we have to
do the best we can.
Sincerely,
sandy
