Joined: 19 Apr 2005 Posts: 3 Location: Sydney Australia
Moving From Topamax/lamictal Or Tegretol Posted: 04-19-05 21:11pm
Hi- i'm new to this forum and it looks aas
though everyone is really halpful so
hopefully someone can help me out here!!
I am a 32 year old woman and I am taking
tpamax and lamictal for complex partial
seizures but over the past year they have
been slowly increasing. I am starting to
get them in blocks of 2-3 in a week, then
none for the next couple of weeks. My
doctor has suggested moving on to tegretol
or dilantin which are apparantly quite
good for controlling partials?
Is there anyone out there with cp seizures
on either of these drugs who can tell me
about them, including side effects? And
anyone who has had a baby whilst using
them?
Another question also, a bit of a vain
one. I have lost about 2 stone whilst on
topamax. I don't particularly want to
gain the weight again when I go off the
drug! Does anyone know about this? I am
wondering whether a good diet and exercise
will keep the weight down, or whether the
tablets have simply kept my metabolism
high and therefore when I have completely
been weaned off the tablets I will just
naturally gain the weight I have lost?
Thank you so much in advance!
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amijoy
New User, Becoming EHEALTHy
Joined: 11 Jul 2004 Posts: 21 Location: Georgia
Posted: 04-22-05 17:01pm
How odd. I'm searching for the same
answers. I am 31 and I have an up coming
appt and my be requesting a change in
medication. I am on topamax 200 mg
daily. This is my only seizure /
migraine medication i've been on since
diagnosed. (june 2004) I haven't lost 1
single pound, but I also don't want to be
placed on something that's going to make
me gain 30 or 40 pounds.
The type of seizures I have, are not
convulsive. I have partial simple
generalized. My only real problem is in
the morning and at night and in the dark,
I see flashing lights, constantly. It's
very annoying. I'm sure it's probably
causing damage and obviously, the topamax
is not doing any good, especially at such
a high dose. And at such a high dose, it
has other side effects, such as...Now I
can hardly read and write, etc. And if
i'm still having seizures, what's the
point?
What strength are you taking? If my
neurologist thinks increasing will help,
i'm "all ears"
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DonnaS
New User, Becoming EHEALTHy
Joined: 19 Apr 2005 Posts: 3 Location: Sydney Australia
Posted: 04-23-05 03:41am
Thanks for replying.
Wow 200mg, that seems like such a low dose
to be doing that stuff to you. When I
started on topamax my doctor put me on
800mg, which almost drove me mad, and I
demanded he lower the dose which was when
he added lamictal. I take 400mg now and
600mg of lamictal. I can't speak for your
neurologist of course, but if topamax is
giving you those side effects at 200mg
then increasing the dose may be a bad
idea.
So yeah I am certainly not the brightest
chook out there on topamax and that will
be another advantage of changing. I'd
love to find a drug with better side
effects too! Let me know what your doctor
says!
