Seizure At 6--1st Time (help) Posted: 04-19-05 09:53am
My daughter who is 6 years old had her
first seizure last april 5, 2005. As to
how long the seizure was, I couldn't tell
as I was already in panic. Vaguely it
probably lasted for more or less than 5
minutes (i am not sure). Although I
haven't known or heard neither from my
side nor from my husband side of epileptic
ailment, I knew my daughter was having a
seizure. Her left arm was jerking; eyes
rolling in an upward movement then shifted
to more like a blank stare, and drooled.
I gave her a teaspoon of sugar to make her
conscious, after that she vomited. By the
time we rushed her to the hospital she was
already conscious and was telling me she
dreamt of a monster biting her. And then
she was back to her normal self being the
talkative healthy baby girl.
A week later, my daughter was examined by
a neurologist. She was asked to walk slow
and fast, tight grip, resist arm
movements, reflexes and eye-movements. On
that same day, my daughter underwent eeg.
The result of which was generally okay
except the neuro had some wariness so my
daughter was prescribed with a valproic
acid (epival) for 3 months. I haven’t
had her take the med yet as I am afraid it
could trigger a second seizure. Could
somebody please tell me his/her experience
on taking this particular drug.
Is a first-seizure already an indication
that a person may have epilepsy? It's
been two weeks now and am going crazy over
this. I'm always on the look out she
might have second seizure, but thank god
there's none. But she's been extra
fearful that I couldn't leave her even for
a couple of seconds. I've noticed too
that she snores during her sleep. She is
my one and only and to see her like this
is more than I can bear.
Two days before her seizure, my mom and I
had a serious fight that she saw. She was
very frightened by the scene. Could that
trigger the seizure? Or could it be that
she slept with a full stomach that's why
she had a seizure? How long would the
next seizure occur? Since the seizure, I
haven’t had the sound sleep that I used
to have as I am monitoring her during her
sleep.
Please help me with my questions on
seizures. Thank you so much and god
bless.
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eddie83
New User, Becoming EHEALTHy
Joined: 14 Apr 2005 Posts: 11 Location: Australia
Posted: 04-19-05 11:19am
Wow! Sounds like you've had a pretty
rough couple of weeks. I think it's
important that you don't let your daughter
know how stressed you are though, because
that wouldn't help her out at all.
Hopefully I can be of some help to put
your mind at rest.
Firstly, you worried me when you said you
gave your little girl sugar to bring her
round. When someone is having a seizure
it is important not to put anything in
their mouth, in case they choke on it (or
bite your finger!). Secondly, i'm on
sodium valproate as well (for the past 18
months) and it has not brought on any
seizures. In fact, I usually only have
seizures if I forget to take the tablets,
so if your neuro has recommended it, i'd
say go ahead, or at least get a second
opinion if you still don't feel
comfortable.
Lastly, a one-off seizure does not
necessarily mean that your daughter has
epilepsy. Some people have one seizure
and are then fine for the rest of their
lives. But remember, even if she does
have epilepsy, it's not the end of the
world, and there will be plenty of help
out there for both you and your
daughter.
Hope that helps a bit and you can get a
good night's sleep soon.
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
Thanked:0
Posted: 04-19-05 12:56pm
Yes, please just let her recover on her
own and put nothing in her mouth...
I hope that the doctors give you some real
answers soon. It is so scary to see your
child's first seizure....
Thank you very much eddie for your reply.
It helped me a lot.
The reason I gave her sugar during her
seizure was I was in the notion that she
was food poisoned. It was my first time
to witness a seizure and that first-time
was with my own daughter, I thought the
world ended that night. As for the med, I
still haven't had my child take it. It's
not that I don't trust the neuro, I just
thought I needed to be convinced by a
second seizure before I let her take the
med. Plus her neuro said the result of
the eeg has nothing much 'cept he saw a
spike on the right brain wave, and he
wasn't sure if it's an indication of
something. What didn't come to me as a
well-neurologic findings on the eeg was
when he told me further there's nothing to
lose if she takes the med--i refuse to
accept such a reco. For now, I am giving
her all the best care a mom could give.
I've change her eating habit. I've found
a site re ketogenic diet. My friend
recommended me to their neurologist for a
second opinion. Up to now, my world is
still shaking and I am still having
difficulty sleeping at night in fear she
might have another seizure.
Right now, my daughter is doing okay.
Thank god for that.
Kayakmom, i'm sure you know what I am
going through right now as you're also a
mom like me and I appreciate you replying
to my thread. I just hope the
administrator would understand if I don't
reply to other threads, this is simply
because I have nothing helpful and
informative to say on the topic. I am
trying something on my child and I am
giving it three months to know the result.
If within three months no seizure occur,
then maybe I will then have something to
reply to other threads esp. To moms like
me whose chil/children suffer the same
predicament.
Again thank you eddie and kayakmom. God
bless
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
Thanked:0
Posted: 04-23-05 08:09am
Yes, I sure do understand. The admin will
not say anything about you not replying to
anyone else's thread. It is fine.
Yes, I can sure understand you wanting to
wait until a second seizure. That is
usually the protocal anyway. Does the
neuro know that you want to wait? You
should tell him so he realizes where you
stand on this.
It is common to have some normal test
results and there can still be the
possibility of seizures.
Hang in there. It is so terrifying to
have that first seizure happen for your
child! I have been through that twice
with each child.
How is she doing now? Have you now had a
chance to learn seizure first aide?
Take care, ginny
I didn't inform the neuro 'bout the
not-taking-the-med till am sure I want my
baby to take it. The neuro wasn't into
taking queries at that time, perhaps he
was too busy to entertain any questions.
You said you have been twice with each
child. Omg, I am sorry to hear that. I
wish I have your courage. But I guess
more than the med is the power of prayer.
Since then, it pulls me to become closer
to my creator. And my faith with my
creator is helping my dear daughter not to
have another seizure. My daughter is
fine, gaining weight, no seizure--thank
god for that.
As to the first aide, I don't know. All
I know is that I am giving my daughter an
apple or two a day instead of the med. I
make it a point that she has enough sleep,
I make her listen to music every morning.
At night, I don't make her sleep with
full stomach. I sleep with her and hug
her to give her security. Children tend
to be nervous of being alone in the dark,
so I make sure to give my little sweetie
all the assurance in the world by being
beside her during sleep.
Once again kayak--thank you very much.
You just don't know how your replies are
helping me. God bless us all.
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darbie05
New User, Becoming EHEALTHy
Joined: 15 Dec 2005 Posts: 15 Location: Ohio
Posted: 12-23-05 16:35pm
Hi
well our son, shane was diagnosed oct 2,05
with epilepsy. I woke up and thought I
heard his little brother crying and went
to check on the boys and found shane(who
is 6) unresponsive and stiff. I did not
know what was going on and tried to splash
water on his face to "wake" him up and
that did not work, so we ran him into our
local er. Right before we was going to be
released, he had a grand mal seizure in
front of the er Dr. We was transported to
our local children's hospital 40 min away.
Long story short, we was told that since
shane has had more than 2 seizures in a
week period that he has epilepsy. Since
oct 2, he has had about 24 seizures. He
has been on 3 differnt meds and we are
weaning him off the second and upping the
3rd. So far it has been 13 days with no
seizures!!! So we are hoping the new med
is working. You might want to ask the dr
or your family dr why she was diagnosed
with epilepsy with only having one
seizure. We was told that cold, stress,
flashing lights, tiredness could all bring
a seizure on. Good luck. D
