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Conditions and Diseases > Epilepsy Forum > Dealing With Epilepsy
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Q: Dealing With Epilepsy
asked by: Celeste on November 6th, 2003
New User
I have only had epilepsy for almost 4 years and I am still learning to deal with it. And especially how people look at me if I tell them. With my job I had to let certain people know because of what I do. And it has be hard and now with the weight gain and being depressed too. Some days are harder than others. I have memory loss and I get very confused at times and that really scares me. I thought all thoughs things would get better with medication and to my surprise no...My friends and family have told me I am different. I thought if I just took the medicine and ignored what I had everything would be the same and now I realize it is not. Everyday gets harder my doctor told me to exercise harder to loss the weight and to not let things get to me so much. Is he kidding......I have tryed losing the weight and not to worry or think about it so much. Well my life is different and I quess I am too......And I do not know how to deal with it.
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livingatlarge
replied on November 8th, 2003
New User
Well comming from somone who has lived there whole life with epilepsy it is hard when your sisters get there drivers licences and you are stuck not having one and you are the oldest but a little bit of encoragement is you have only lived 4 yrs of your life when I have lifed 23 yrs of mine with epilepsy Cool



have a good day

livingatlarge
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phil dennison
replied on November 14th, 2003
Experienced User
Stop thinking of you and give your time to people. Its the purpose in life.
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jamal
replied on November 16th, 2003
Experienced User
Almost 6 Years For Me Baby
Celeste,
how old are you, how bad are they, are you married, with children? I'm 44 now. My life has done a 160, but life is very different.
It all started when I left my husband in 98 in march. My first grand mal happen in may of 98 right after the aura after having them for 20 years from a car accident in 77 when I was in h.S. (i think). I did not know what they where all those years. Went to 4 neuros they all told me it would take 20 to 40 meds to find the right one that would work for me. Thats what they say for most of us epys. After them suggesting b.S. I thought they where nuts. So I was going to u.C. Davis the first 2 yaers. Trying to hold my job I had been working at 4 the last 5 years as manager and clothing buyer for a retail store, finally could'nt drive anymore losing to much weight going to court to much so my boss let me go because I was so meesed up. I was missing 8 to 10 days a month. My seizures where only getting worse. So I went back to my doc and told him to go ahead and go with the surgery. Will then it was another 8 months of testing along with 8 more months of trial with that guy I was married to. He even supeona my medical records to see if I was a epy. So I had my brain surgery in june of 2002 and got my judgement from the judge in march of 2002 then his lawyer took another 6 months to do her part.
They told me my chances of no more seizures would be 40 to 60% and the other % I would have tem still. So I still have them. Not as often. I have had 5 or 6 g.M. And still auras.
The good news is I get to take the short bus to work 2 days week 5 hrs day at old job. Everyone I see they have missed me. They tell me the clothes are not the same, I need to go back to buy. I see a big difference going back to work it is'nt the same the girl that I hired that was 20 now she 28 I love her to death. She has been her for me thru all of this, she is really trying to run the store. She wanted me to come back and be like old times. Now she wants me to deal with the bad public realations. I keep telling her i'm not the minkey with the key anymore you are. It gets her goat but oh well. I go back and organize the store again for her because it has'nt been done since I left over 2 years ago. But i'm doing my best. Its hard because there is so much more going on I have to keep my mouth shut. I cant tell milt the owner. I'm just glad to be back and to talk and sell cloths again.
Your meds, are you on depakote? I tell what they found in my brain write back hang in there. Jamie oroville ca.
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