hi im ruby, ive been diagnosed with tn when i was 13 im 16 now almost 17
only thing ive tried is trgretol/carbamazephine 100-600mg a day
doctor wanted to perscribe trileptal but they charge me like 200 or so for a months supply so mum said forget it
ive seen physical therapists <-doesnt realy help they did electric stimulation, and sum neck stretching thing, ive done acupuncture <- didnt help either now i dont rly care i just rely on meds and try to lower dosage once i hit 400 a day
worse episodes last about 1.5 hours
hrms.. every year it sort of targets a different spot
but to me its worst when its near my nose and winter
i can barely apply lition, blow my nose
sneezing or my hair sets off episodes
when its near my forehead its hard to brush or tie my hair a trickle of watter often starts episodes
upper right teeth contact with food oftenstarts episodes
eating or drinking, swalling my own spit laying down all starts episodes
when its just my right cheek near the neck i find that the least painful iguess ._.
hrms... im just great ful for when episodes are over and the months or weeks of a year im not in pain
my remedies = rub my face like hell make it hurt more sorta makes me feel it hurts less when i stop rubbing ._.
pinching my jaw/necking borderline near the trigimenal nerve
doctor recomended masaging that area alot ._.
ice doesnt work and in the winter i cant stand the cold so i dont bother warm water soothes but doesnt rly stop episodes
id concider getting surgery but im a bit poor >.>