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Q: Hi There!
asked by: PinkPanther74 on April 6th, 2005
New User
Hi everyone! I just found this board today. I am glad that I found it!

I am currently in the waiting period for my blood test results. I have about another week left.

I have had symptoms of lupus since I was 14. At the time, the dr told my mother I was too young to have it. Over the years, (i am now 30) things have gotten worse and new symptoms started showing up. (most I never knew were even related)

i got sick last august with strep throat. I never seemed to have recovered from it. My dr kept telling me it was a "viral thing" and would go away. Well, 8 months later it hasn't gone away yet. I have been out of work for a month now. I have had a battery of tests done to rule out different things. No one could seem to find the answer. I have been running a fever this whole time. If it wasn't for that, I would think that the dr's as well as myself would think it was all in my head.

I finally saw a rheumatologist last week. I was dx'd with tendonitis of the wrist, shoulders, knees and ankles by my primary Dr. That was almost 10 years ago. They have gotten more painful over the years, so I figured at best maybe I have arthritis. When I looked into arthritis, that is when I noticed a lot of my symptoms all related to lupus. Those were the things I brushed off.....The rashes, the headaches, the sunlight sensitivity, etc. Then I panicked having remembered back to when I was younger and they wouldn't test me. The rheumy agreed that I have many symptoms and even things like livedo reticularis....I thought that was just my normal skin doing it's thing.

So, hopefully something will be conclusive from all the bloodwork that was done.

I am really happy to have found a place where people understand the frustration and pain of trying to get a dx.

Pinkpanther74
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g26pa
replied on April 14th, 2005
New User
Lupus Sle
Pinkpanther 74, hello, I remember going through all the testing and waiting with my sis who is 32yrs old and a single mom of a 4 and 2 yr old. My parents now take care of both full time since my sis was diagnosed a year after her second baby.

Stay on top of the doc's since the problem with diagnosis is that not every symptom is the same. My sis is on predisone, cellcept and other pain med's just to name a few. My prayers are with you as you go through the wait.

Ann
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nadeentears
replied on April 23rd, 2005
Experienced User
Sle
I diagnosed with sle that was 6 years ago.When first I diagnosed with it I was panic and frustrated.I have no idea what it looks like. All the time I was thinking death but with the support of my family and doctors I started to cope with it. Each person has different symptoms. They called it a disease with 1000 faces. Try to keep all doctors appointment,take your medication regularly,put sunsreen whenever you go under the sun even in cloudy days this will protect you from lupus flare. Wear sun glasses, cover your head with scarf. The sun is the main factor in flaring lupus try to avoid it as much as you can. You will save your life and live longer don't worry.

:lol: :lol: :lol:
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