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our baby boy of just 3 1/2 months has been diagnosed with epilepsy and we are so scared about the medication. We have no problems with handling his condition as my husband has it too - but his onset was not until 32 years old. But, a baby still developing and taking medication???? The medication prescribed is tegretol but the side effects are terrifying. I am petrified that with my strong family history on both sides of my family of cancer, that letting him take this medication to control his seizures will leave him wide open for developing cancer. He has already showed a decrease in urine output and hair loss. We cannot find a site out there that lists other medications for infants with epilepsy. Are there other medications that do not have so many horrible side effects and will allow our baby to continue to develop normally???
I am so sorry your baby has this as well! It is tough with the meds for sure, but remember that the seizures are also bad for a young brain. It is best to try meds, see what causes fewest side effects so he has a better chance....
Hnag in there. Must be so hard with hubby and baby!