I was 24 (5 months ago) when I was treated for kidney cancer and they removed my left kidney as well. I was told time and time again how strange it was for a person to have this condition and in such an advanced state and how lucky I was to be alive. I unfortunately may have more cancerous cells.
I truely hope you are cancer free and remain that way. God has blessed and saved us both. Certainly a lot to be thankful for!

I was diagnosed with rcc 2 months ago. I am a 30 year-old white female. Since then I have had surgery, had the tumor removed and had a partial nephrectomy. I have been made aware of how rare this cancer is for my age, sex, gender and race.
Because of this, I have done extensive research. (on the internet)

on another note..(but also related) I was diagnosed with epilepsy also, in june of 2004. I developed this from having severe migraines since the approximate age of 7. No one seems to know why i've had these migraines and no one (all the neurologists i've been to) can stop them. No medicines can stop them. I can honestly say I took 1 1/2 to 2 bottles of 50 count of excedrin migraine in a weeks time. This went on for years. My life was hell because of my chronic migraines. And since, the neurologist says I have developed brain damage and epilepsy from my many years of migraines.
To make a long story short, (too late) my research has shown that my years of taking excedrin migraine is what gave me a 4.7 cm malignant tumor on my kidney. Look it up on the excedrin migraine website, it even says excessive and long term use can cause kidney cancer.
So I am the cause of my own cancer. I am the cause of my families grief. I can't even tell my own family this. I carry this burden all by myself.

My sister was diagnosed with renal cell carcinoma 2 weeks ago. The tumor is on her left kidney. It is wrapped around her inferior vena cava, attached to her stomach, spleen, and pancreas. She is only 28. She does not smoke or drink alcohol and we have no history of cancer in our family. She is scheduled for surgery to remove the tumor, along with the kidney, spleen, and part of the pancreas and stomach. I was wandering if anyone else has had or known anyone who has had a similar condition. The tumor is the size of a basketball! Please help us. Thanks!

Does she have a history of chronic long term medication history? This is the only link I have to my cancer. I work for a physician and was told how completly rare it was that I was diagnosed with the cancer, until the medication fact was discovered.
I am truelly sorry to hear of this. But please know that the recovery rate is very high and i'm sure she'll do fine.
My tumor was no where near the size of hers and i'm no expert. Nor am I a very medically smart person. All I can say is that my thoughts and concerns are with you and your family. And know that I hope everything turns out okay for everyone.
Please know that I am here for you, should you have any questions or concerns. I may not be the best for answers, but i'll do the best I can.
Love,
ami

She hasn't ever been on any routine medications. She takes claritan for her allergies sometimes and she takes advil when she has a headache. Did you have your tumor removed surgically? Was it attached to any other organs? Were your lymph nodes involved? I'm just trying to find out as much information as I can. I hope you are doing alright now. Hopefully, you are cancer-free and healthy now. Thanks for your thoughts and concerns. I appreciate it!!

I had my tumor frozen. It's still there. It's just dead and frozen. It was only attached to my kidney, but it was partly outside of my kidney. But it did not affect anything else. I was extremly lucky. My lymph nodes were not involved. (i'm trying to answer all of your questions) the only problems i'm suffering from now, is internal swelling, which they say is normal. The swelling from all other organs, but especially the tumor. It's very uncomfortable. As before, I did not know the tumor was there, now I do. This in time, will go away. (in about 1 and 1/2 years)
and nerve damage from the surgery. That caused major pain. I had to go to an orthopedic surgeon. But i'm recovering from that now.
I hope she does okay.
By no means am I trying to be negative, but I am not on the same level as your sister. I only hope she does okay.
Please keep me posted.
Ami

Have any of you been tested for von hippel lindau?

i had renal cell cancer of left kidney to and i am 32 they remove my kidney but now i am have really bad migrains. i wonder if this is normal