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Juvenile Myoclonic Epilepsy

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havefaith

New User, Becoming EHEALTHy
Joined: 29 Sep 2004
Posts: 9
Location: KY
Juvenile Myoclonic Epilepsy
Posted: 02-17-05 17:36pm

I have jme and have had for over 20 years. I have in the past always had some type of jerking with my hands, but now since my last seizure have had episodes with the feeling of a jerk but without an actual jerk. My doctor said to him it still counts and makes him want to be cautious. I was just wondering if anyone else has ever had these.

Thanks,
havefaith
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MickeyFan

Experienced User , Rather EHEALTHy
Joined: 28 Jan 2004
Posts: 73
Location: Algonac, Mi.
Thanks: 1
Thanked:0

Posted: 02-17-05 19:16pm

Yeah, this does happen to me. I usually have twicthing on my face and jerking in my arms. Sometimes I swear that it is twicthing but when I look in the mirror I don't see anything moving.
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kayakmom

Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004
Posts: 252
Location: Conn
Thanks: 2
Thanked:0

Posted: 02-17-05 20:26pm

My daughter has had the feeling of jerks but not seen them as well as stronger ones that are clearly seen.

Do either of you have a heavy arm feeling at times, too? She has this, it eased when we upped meds, but is back and feeling bad!
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