Epilepsy Forum - Juvenile Myoclonic Epilepsy

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Q: Juvenile Myoclonic Epilepsy

asked by: havefaith on February 17th, 2005

New User

I have jme and have had for over 20 years. I have in the past always had some type of jerking with my hands, but now since my last seizure have had episodes with the feeling of a jerk but without an actual jerk. My doctor said to him it still counts and makes him want to be cautious. I was just wondering if anyone else has ever had these.

Thanks,
havefaith

Replies(2)

MickeyFan

replied on February 17th, 2005

Experienced User

Yeah, this does happen to me. I usually have twicthing on my face and jerking in my arms. Sometimes I swear that it is twicthing but when I look in the mirror I don't see anything moving.

kayakmom

replied on February 17th, 2005

Experienced User

My daughter has had the feeling of jerks but not seen them as well as stronger ones that are clearly seen.

Do either of you have a heavy arm feeling at times, too? She has this, it eased when we upped meds, but is back and feeling bad!

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