I have not posted on this site for a while, but I have a friend, who is male, and has been diagnosed with lupus since last september. He just seems to not be getting better! He is incredibly frustrated, and he really thinks he is going to die. He just had his rhuemy tell him that on a scale of 1-10 with 10 being the worst, he is at about a 7 or 8, which really freaked him out. He is on so many medications now, I can't even list them all, but the primary ones are prednisone (40mg), cellcept, and plaqunil. He is also getting shots to help increase his bloodcount once a week. He is still tired all of the time, and his blood count just is not coming up. If any of you could tell me if it took you really long time to get past your first flare, and how you did it, it would be appreciated. It would be nice to tell him he is not alone, and not to worry about dying!
Thank you