I have a thirteen year old son. He was
diagonsed with epilepsy at the age of
three... Started out as absent seizures
not i'm not real sure what his seizures
are... Here is what happens. About
every 28-35 days he will wake up fine
after about 15 minutes of waking up his
head will bob every three or four sec.
This will continue until we give him the
diastat. He will sleep for a hour or two
wake up eat like crazy and then sometimes
get the hiccups. He will then be great
for another month. He is on keppra and
trileptal. He has been on 6-8 different
medications. The Dr. Says he still has
a great chance of "outgrowing" his
seizures.... We live in ohio I am really
considering going to cleveland clinic for
another opinion.. Does anyone have any
refferals for cleveland clinic.? Our
current Dr. Sometimes seems a little
puzzled over this case. Has anyone else
had anything like this?? Thank you for
your input!
Cah
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kayakmom
Experienced User , Rather EHEALTHy
Joined: 21 Jun 2004 Posts: 252 Location: Conn
Thanks: 2
Thanked:0
Posted: 02-10-05 17:30pm
Hi and welcome....I have seen absence
seizures that do involve a head nod type
thing. Not sure if that is what your son
is doing now. Has the doctor tried an eeg
around that time when he has them>?
That would be the best way to tell....
How long are these lasting? I know you
said they last until diastat. I would see
if you can arrange to take him in to see a
doctor during them if possible? Might not
if you are too far away. Just a
thought.
Cleveland clinic is good. I also hear
great things about rainbow babies, I think
it is called in that area as well. You
may have a long wait to get into
cleveland. Many find it a great
place....
Best wishes for help!
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mrsmikki25
New User, Becoming EHEALTHy
Joined: 18 Jun 2004 Posts: 10 Location: Dayton, Oh
Posted: 02-19-05 03:39am
Where about in ohio do you live? I live
in ohio and my 8 year old has seizures. I
am incredably happy with our newest nuro
but unhappy about the surgeon and
considering cleveland also. Let me know
and good luck to you.
Feel free to email me any time with any
questions :)
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MickeyFan
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2004 Posts: 73 Location: Algonac, Mi.
Thanks: 1
Thanked:0
Posted: 02-19-05 06:57am
I have been to the cleveland clinic and
highly reccomend it, if it was not so far
from home that would be my regular doc.
If any one has question just email me.
Jill
