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Conditions and Diseases > Lupus Forum > Anybody Been Told They Have Lupus And Ms ??
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Q: Anybody Been Told They Have Lupus And Ms ??
asked by: Melissa66 on November 1st, 2003
New User
I was diagnosed with rheumatoid arthritis, fibromylagia, sjogren's, and raynauds in 1998, I quit going to my rheumy, until this spring when I started feeling sick in april, falling around, pressure headache that nothing would help, couldn't think right, slow drawn out talking, they did a brain mri and found plaque in the white matter of my brain and said it showed a collagen vascular disorder with a demyelinating process. This all lasted until august, I still am dizzy and fall around. Now my doc says I have ms and lupus, they have put me on plaquenil 400 mg a day. My blood work shows ana 1:160 speckled pattern, I have positve anticardiolipin antibodies ( what the heck is that ) 1 second away from the lupus coagulant being positive, spinal tap is negative, ssa is positive. I also have tachyardia, heart rate is 157 beats a min. At rest.

I've also had one doctor to tell me it was all in my head, just stress.

Help !!! I need answers from someone thats going through this too.

Melissa
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LadyBrannon
replied on November 2nd, 2003
Active User, very eHealthy
Hi there and welome!

...Keeping in mind that the lupus anticoagulant and the anticardiolipin are both antiphospholipids antibodies (aps)...Read the following, I think it explains things very well.

Taken from www.Medicinenet.Com

the antiphospholipid syndrome is a disorder of the immune system that is characterized by excessive clotting of blood and/or certain complications of pregnancy (premature miscarriages, unexplained fetal death, or premature birth) and antiphospholipid antibodies (cardiolipin or lupus anticoagulant antibodies). Patients with antiphospholipid syndrome have developed abnormal symptoms while having antiphospholipid antibodies detectable in the blood.

Antiphospholipid syndrome is also called the phospholipid antibody syndrome. Antiphospholipid syndrome has been referred to as hughes syndrome in honor of the doctor who first described it.
It is important to note that antiphospholipid antibodies can also be found in the blood of individuals without any disease process. In fact, antiphospholipid antibodies have been reported in approximately 2 percent of the normal population. Harmless antiphospholipid antibodies can be detected in the blood for a brief period occasionally in association with a wide variety of conditions, including bacterial, viral (hepatitis, hiv), and parasite (malaria) infections. Certain drugs can cause antiphospholipid antibodies to be produced in the blood, including antibiotics, cocaine, hydralazine, procainamide, and quinine.

Nevertheless, the antiphospholipid antibody (a protein) is not considered a normal blood protein and has been found in patients to be associated with a number of illnesses. These illnesses include abnormal clotting (thrombosis) of arteries (stroke, infarction) and/or veins (phlebitis), premature miscarriages (spontaneous abortions), abnormally low blood platelet counts (thrombocytopenia), purplish mottling discoloration of the skin (livedo reticularis), migraine headaches, and a rare form of inflammation of the nervous tissue of the brain or spinal cord, called transverse myelitis. Antiphospholipid antibodies have also been detected in over half of patients with the immune disease systemic lupus erythematosus.

Researchers are recently also finding that there are patients with slowly progressive memory problems and patients with a form of "atypical multiple sclerosis" and antiphospholipid antibodies detectable in their blood.

I hope this helped! Hugs,
ladybrannon
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sharon
replied on November 3rd, 2003
Experienced User
Lupus And Ms?
Hi all, I was watching montel williams the other day and someone said they knew of a person who had both. I was confussed, I didn't know you could have both lupus and ms?

Sharon Smile
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daisy3
replied on November 29th, 2003
New User
Hello,
i was first dxd with ms. Then sle lupus, fibromyalgia, tmj, sjogrens. Later the ms was changed to possible ms (at that point who cares Shocked ) because I was dxd with hughes (aniphospholid blood disorder). Hughes has many of the same symptoms as ms. They are all autoimmune disorders. When your immune system starts to go crazy it is very common for you to develope more autoimmune disorders. Sle that affects the central nervous system causes you to have many of the same symptoms as ms. It does not hurt to get several opinions from other drs before you start the injection treatments for ms. Educate yourself and make sure you ask a lot of questions. I like to test my drs knowledge Cool ! You need to educate yourself in order to partcipate in your treatment. Let me know how you do Smile ! Daisy3 Wink
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amessiam
replied on August 3rd, 2009
New User
I was diagnosed with M.S.last year.Brain mri And cervical spine both show demielinating.Now after having problems with toes was diagnosed with Raynaud and after more bloodwork (ana and some others they say i'm positive for lupus?i don't know what to think right now!
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sandtech
replied on September 3rd, 2009
New User
i have lupus and ms
I have ms and lupus and i'm 32 yrs old and declining fast!!!!
i need help!!! and fast please.
my 14 yr daughter was tested for lupus and it's postive.

please help


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