I one, have a neice with this and she has a brain tumor so I know how rough it can be. Let me tell you; my family has had the privilege of having boogabear in ourhome and life, this is one memory that we will carry for the rest of our lives. We have pictures of the things we did, how he taught my childrens school 2nd and 3rd graders who dont find to much interesting.. But this grapped their attention.. And so many question.. This is the best thing that dannys memory could of given us.. I still have my keychain from him visiting. And all my pictures..Noone knows till you have a child with this and all the meds they have to take. And we have lived with this for 14 yrs.. And have been lucky... My prayers are with them always and forever...