the voices are usually heard when the seizure is a partial seizure, ( often last thoughts running through your mind) or the voices muffeled of onlookers. Sometimes I have even heard my name being whispered to me like someone is inside my ear.
My dr says that is the medication and some types of antiepileptic medications cause slight changed in mood, and behaviour.
I have the temporal lobe epilepsy. I take epilim and keppra for mine. And innitially when taking medication it was hard for me to adjust, my body was finding it hard to cope and so was i. There are many more ppl hear that are epileptic and that do hear voices when they have seizures.
Its not uncommon so dont feel alone.
i have temporal lobe seizures. it feels like i am having an out of body experience,.and i hear ALOT of voices all around me at the same time..none of them is understandable..its like 100 people talking at once.
This is what happens to me. I have had Epilepsy since I was 5 I'm am now 36. I have recently switched to Keppra when I do have a Seziure I hear Voices of the people in the room I am with. Most of the time I feel they are asking me why I am having one. Super weird I can't really say anything and it only last about 10 seconds.
Thx sami, but the voices I hear are not from onlookers....It is someone talking to me from somewhere else and telling me something terrible is going to happen unless I make a deal....It's hard to explain and very scary..........I'm going to change meds, maybe that's what causing this
"has anyone out there experienced hearing voices during a seizure?"
during a seizure, that's certainly not uncommon. The brain's going haywire and lots of strange things happen (odd smells; sensations). For me, at the beginning, I have a 'flood of thoughts' and 'hearing' things. The thoughts are usually about how something bad is happening and that i'm going to die. It's quite mysterious. I always say "oh no!" and then pass out in a minute or so.
The meds aren't causing voices during a seizure, it's created by the brain's temporary malfunctioning.
"... The voices I hear are not from onlookers....It is someone talking to me from somewhere else and telling me something terrible is going to happen unless I make a deal....It's hard to explain and very scary..."
i can relate to the voices before a seizure and the idea that ' something terrible is going to happen ', but I don't quite understand the 'deal' part? Yes, it is very hard to explain and very scary, I have to agree... I suffer from epilepsy as well as schizophrenia... When I have a psychotic episode I also hear voices, hallusinate, etc. , though they're a bit different then the ones during the aura, and and it's during these psychotic episodes that I can relate to the idea of 'making a deal' or something terrible is going to happen... The voices I hear during an aura aren't usually understandable, but I do know i'm being talked to... I also know it's not others talking to me, as i've had seizures alone w/these auras & still heard these sounds... These 'voices'... I'm not by any means trying to scare you or say you may be schizophrenic, I just think the link is pretty interesting and might be worth looking into, who knows?
Hi queen of complications, thx for your input..How did u find out that u were'nt just having seizures but also schizo? When this happens to me i'm always alone in my house and my head turns around and I can't stop it when I hear the voices and I try to stop it and I think i'm saying out loud "no please stop", but I can't recall this type of thing happening outside or with people around..Outside I have a regular seizure .......S.
Well, I think what i'm trying to say is there's a 'difference' for me in re of the voices or sounds I hear during an aura vs. The voices or sounds I hear in a psychotic state... The aura sounds are less understandable & harder to make out, where as the psychotic episodes they seem more prelavant... Easier to make out what's being said to me or what i'm hearing during a psychotic episode...
The things I hear during an aura are also associated w/other symptoms that come along w/the onset of a seizure, which tells me it's not 'all in my head', but in fact an aura... Things like nausea, dizziness, or feelings of deja vous... I don't experience these things in a psychotic state... If anything, I feel 'numb' when in a psychotic state...
In a psychotic episode, the sounds & voices are alot clearer and seem to make more 'sense'... It's not so much a confusion of thoughts as much as it is during an aura... In these psychotic episodes, if/when I hear these 'voices', it's not so much someone 'talking to me' as much as it is someone 'commanding' me, or telling me 'what to do' and 'how to do it'.. If I don't comply, I suffer 'consequences'.. This can consist of hearing the same thing over & over & over again, like a broken record... Other times i'll get 'degraded' for not doing 'as I was told'... And other times I feel physical pain or feel the need to inflict pain upon myself in order to 'make up for' not listening or complying... And yet, there's been plenty of times when i'm 'commanded' to harm either myself or someone else... Doesn't matter who, could be a loved one, could be a complete stranger... Fortunately I have enough 'common sense' not to follow through on these acts, but again, know i'll soon have to 'suffer the consequences'...
It's this, as you called, 'making a deal' that really caught my attention.. I'd like to know more about it if you're willing to share? This 'deal' you refer to sort of reminds me of the 'commands' i'm given... The 'deal' is, if I comply to the commands, the voices are 'pleased', and if not, i'm 'punished'...
You also asked, '... How did u find out that u were'nt just having seizures but also schizo?...' truth be known, I saw alot of Dr.'s, both neuros & psychs over the years... Each one wants to say it's 'caused by this' or 'caused by that' and they never seem to agree w/one another... I didn't start having seizures until I was a pre teen, w/the onset of puberty... Although, I was having petite mal seizures prior to my first grand mal, just didn't realize they were seizures ...
As for the schizophrenia, i've always suffered from that, as long as I can remember... My parents always blew it off as my having a 'vivid imagination' and never gave it a second thought... I would tell them, for example, how the 'evil refrigerator' was 'talking to me' and 'telling me to do bad things'... Again, they laughed and just blew it off as my imagination...
The older I got, the worse the voices & halluciations got until a week after my 18th birthday when I attempted suicide for the first time... The voices told me that I suffered from these seizures because of 'all the bad things i've done in my life' and for 'not listening' and I 'needed to die'... Fortunately we were found ( my girlfriend & I did this attempt together ) in time and were able to get us to the hospital and make us drink that awful, awful, charcoal, yuuuck...
From the hospital I went to the state mental institution ( that was the first time I was locked up ) and it was there that they diagnosed me as 'bi polar' and treated me as such... After numerous years & medications that did me absolutely no good, I did some research of my own... I was convinced I was not in fact bi polar, but something else... The bi polar profile just didn't seem to fit me... Through all my searching I found a specific condition of schizophrenia called 'schizoeffective'... From what I understand, both schizoeffective & bi polar are very similar in some ways... I brought this to my Dr.'s attention who referred me to a specialist who said, yes, in fact that was the case... I was not bi polar but in fact schizophrenic...
It was then that they started treating my psychosis w/a variety of different drugs and combinations until they found 'just the right one'... Well, the 'right one' didn't always work either & I finally threw my hands up in the air & quit taking all my meds except for the anti seizure medication... And that's where i'm at today... I take lamictal for the seizures, combined w/some folic acid...
As for the voices & hallucinations, when I see something a bit out of the ordinary I ask hubby if he saw that too... If he hadn't, I know it was 'just in my head' and if he did in fact see it, I knew I was 'ok'... If I see things & have a feeling of nausea or deja vous, then I know it's an onset of a seizure... The voices still remain as well as the idea that people are not only talking to me, but about me... I'm also still 'commanded' to do things or act a certain way but i've recently discovered the power of refusal... Mind over matter I guess you might call it... Fine, punish me if you will, but I will not do that... Whatever 'that' might be... I really believe I have the power of esp & also think we all have it, we just don't know how to use it yet... But, when I tell the docs about this, they say this is also 'all in my head'...
Hi queen, I too was having petit mal seizures and wasn't aware that infact they were seizures until I had my grand mal during the birth of my daughter and I don't remember a thing about giving birth, anyway I get nausea, confused and sometimes dizzy after my seizures ...........During these other episodes these voices are trying to convince me to make a deal and it's something I don't want to do while my head keeps turning and i'm trying to stop it, I also think my heart is pounding...1 time I told my doctor (neurologist) and he thought it sounded like a panic attack and then another time he said if it continues he'll refer me to a pychologist ....What city do u live in? S.
I only heard the voices while I was in school (puberty)
i'm 34 now.
Aparently sometimes, according to my mom and sister, just before I lose consciousness and start shaking, i'd start screaming "no no don't don't". Then i'd black out and have the shakes for a couple of minutes, followed by 20 hours of deep sleep.
I can't remember if it was one voice or more, male or female, I just know it was scary as hell and very threatening in nature. The one thing I remember was the fear. The utter terror. Hair raizing type stuff.
When I was 17 I told some people at my church about the scary voices. Big mistake. They called some guy, had me on a chair with ten "men of god" praying and laying hands on me and speaking in tongues.
It's a miracle I didn't have a seizure right there from the stress.
So please be careful who you discuss this with offline.
People can be very narrow minded sometimes.
And then off course there are the voices of the people trying to help me after i'd fallen down. These are very different and easy to distinguish.
I never confuse the two. I simply can't.
Just to prove a point I also heard the scary voices when I had seizures on my lonesome at home.
Voices1 = prior to losing consciosness and very scary & threatening.
Voices2 = after losing consciousness and always very loving, caring and familiar, usually just my name uttered by family or friends.
I have temporal lobe epilepsy.
It is interesting, if you google on this and psi, you will find many hits. Psi is a new term for paranormal or pyschic behavior. Those voices in
your head may be something more of a paranormal. Something to consider.
I just stumbled on to this site.
they are sometimes horrible and sometimes they tell me who i am in love with...they are fading after a month ...at first they were very very loud...i also had delusions of graduer mixed in with terrible things...i did not know i had epilepsy until i did some research and recognized my past seizures ...i thought i just passed ou a couple times...but my friends told me different
i tend to hear things that are not real and picture things in my head that i dont know if they are real or not. i cant remember things that happen to me. i have lost a lot of my memories of my life and tend to make up new ones during a seizure.