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Where Theres Smoke
on September 20th, 2006
New User
I'm Sorry, But I Just Had to Say This...
To those of you who think this is psychosymatic (or all in your head), it's not. Certainly stress may be a factor, but these are real physical symptoms. Stress can cause tangible illness, but we're not nuts, we're not imagining things, we're suffering from a genuine ailment. Even if we are nuts (which we're not!), any good doctor will eliminate all the physiological possibilities first before looking at the pyschological causes. If you're seeing a doctor who is dismissing your discomfort, you need a new doctor! Don't let anyone tell you you're imagining this!

And I don't know anyone who doesn't suffer from some level of stress. Anyone who says they're stress-free isn't being honest. Those of us who experience, as crispian put it, debilitating amounts of stress or anxiety are still not responsible for our crummy sinus infections or bronchitis. Who in the world would want to smell cigarette smoke, or gasoline or cigar smoke? I can certainly think of better things to "make up". I could go with a compulsion to eat chocolate all the time...Wait, I do that already!

I'm not a big fan of medicating to relieve stress, but I know that if it starts to cripple a person physically, you do what you have to do. There are anti-anxiety meds out there that can help. Then you can start the yoga, meditation or any other alternative methods of relieving stress. But don't make youself suffer with the idea that you are the cause of this odd, but very real situation. Just read the posts on this forum - almost everyone has expressed relief that there are other people out there who are experiencing this bizarre condition. Unless this is a world-wide psychosis, we are all living with a very real illness.

Thanks for letting me throw in my two cents!
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Dotkom
replied on September 22nd, 2006
New User
Omg, I Thought I Was Nuts!
I can't tell you how glad I am to have found you...All you smoke smellers! I've been nauseated by 'phantom' cigarette smoke for a couple of years now. I actually began to accept that eventually my 'tumor' would just finally get big enough to be found. What else could cause such a symptom? Then, almost by accident I found this place! Halleujah!!

Now that I have your attention I have a partial theory. I always smell the dreaded cigarette smoke when i'm @ work. I work 2/3 days p/wk. It's fairly consistent there. But one thing I also have to deal with here is the smell of coffee, burnt coffee to be precise. I sit right next to the coffee room & it always stinks of stale, over cooked coffee. I sometimes feel queasy from it, but most days, just like right now (yes, i'm working) I only smell 'cigarette' but I know no one's smoking anywhere around here. There is, however, a pot of burnt coffee not 15 feet away but I don't smell coffee. No sir, I smell marlboros! Obviously, for reasons I fear, my brain is interpretting the coffee as cigaretts. I don't know which is worse.

I haven't ever tried to 'do' anything about it because I didn't know there was anything to do. I'm going to try some experimenting, first with allergy meds. One reason I wonder if it may help is because I also have unexplained itching in my hands & feet, which claratin seems to help. I have no bumps, spots or rash, just intense itching, especially after walking on a cold floor or washing my hands in very hot water or putting extreme pressure on my hands such as struggling to open a jar. I could itch my skin off & not satisfy it. It eventually goes away, but I don't know why. Out of desperation I tried claratin, figuring I must be allergic to something. My son was getting married & I wasn't about to ruin the day my scratching like a dog. The claritin worked! But I never connected the itching with the 'smelling'. Maybe there is none, but i'm going to try paying attention to see if there might be.

In the meantime, thank you all for sharing & helping calm my mind by feeling less weird because I feel less alone!
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m_egan
replied on October 19th, 2006
New User
Smoke Smell
The first weekend of october, we went to vegas. The casinos are so disgustingly smokey, which I despise. Love vegas, hate cigarette smoke.

Anyhow, we were in non smoking rooms at the mgm yet I swore I smelled smoke in our room, but not in my mom's room. The first night I woke up sweating and parched...It was a bad sleep. The next night it wasn't as bad, but still, it's the desert so I was dehydrated.

When we got home (to los angeles), I swore I smelled smoke. No one else did, so I knew it was just me. I noticed it most when I was sitting down for a period of time - specifically, the couch at home and my computer at the office and home. When I was moving, I wasn't smelling it or aware of it. I took zinc, which might have helped, and I used a nasal spray of hydrogen peroxide and water. Let me take this moment to advise anyone against this sort of self medicating tomfoolery. It didn't help and burned as if hell itself had literally exploded into my nasal passages. If anything, get saline solution, or just water and salt.

Anyhow, this haunting smoke smell went on for about 6 days before I went to the doctor. He gave me clarinex and nasacort aq, and also said that it's a common thing. After about four days it subsided. It's still early but I hope that was just a sinus issue, because of course, I did a google search and read about brain tumors and all sorts of neurological possibilities and panicked. I'm happy not to be smelling the smoke. I will keep you posted, and let's hope we read more solution posts!
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Murbay
replied on October 22nd, 2006
New User
Same Again
It has now been a week since I started smelling smoke (again, the wood burning type) my symptoms started during the early hours of the morning and in a panic thinking the house was on fire, I got all the kids out of bed.

My girlfriend thought I was sleepwalking especially since I was babbling on about smelling smoke when there was nothing there.

In the past week I tried to book an emergency doctors appointment but was told by the nurse, that she had never heard of this before but since there were no other symptoms to do some menthol steam inhalations, take a couple of paracetamol and she didn't think it was important enough to bother the doctor with.

Since I work for the health service, I called in a few favours and spoke to another nurse later that day who luckily had heard of this before but never actually spoke to anyone suffering from "smelling smoke." I too am a sinus sufferer so after going over a brief medical history she came to the conclusion that this could be a chronic sinus infection which would need strong antibiotics over a longer period of time. But since she correctly assumed this could be anything from a tumour to a blocked sinus she felt it urgent enough to get me in to see a doctor straight away.

The doctor had to confess he had never come across this before and after explaining that I wasn't some nutcase seeking attention and that it was embarrassing enough for me to be in the doctors office with the only symptom being smelling smoke, he gave me a brief examination. Helped on by the fact my medical records show that I only see a doctor perhaps once a year and only if i'm at deaths door or severly injured and only if i've been dragged kicking and screaming)

the doctor found my throat was slightly red but not inflamed, my nasal cavaties were a little dry but not inflamed and my ears were fine. No temp, blood pressure and pulse fine. He admitted he was stumped because of the lack of other symptoms to point him in the right area and only prescribed nasonex which he said to try over the weekend, and if that failed I am to go back monday and he shall arrange further testing.

Although I had looked up my symptoms before going to see the doctor, I thought it best not to tell him I had done so. Firstly, doctors here in the uk can get upset if you walk into their office and tell them what is wrong with you (despite the fact I have 5 years medical training and medical background) because it takes the fun out of them making something up to baffle you with when they don't know what the problem is.

Secondly, and slightly related to the first, having regained their composure after being upset at you for telling them what you have, they focus on one part. I.E if you tell them it is sinus related, they treat the sinus and you could infact have the wrong diagnosis.

Instead, I have a doctor who admits when he doesn't know and i've not given anything away. This way I know the tests will be thorough (because we get healthcare free in the uk it means all possible angles can be looked at without ringing up a huge insurance bill) and hopefully at the end of the tests, treatment etc... I can get back to you and update you as to the findings.
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Suppers
replied on November 4th, 2006
New User
Smell Smoke
I just confessed to my sister that i've beening what I call a 'smell in my head' and she confessed that she has had it too. I've had this for years and have learned that it is often food related. If I have cereal with skim milk for breakfast it triggers the smell almost immediately. Sometimes cured meat products (bacon, sausage, salami) have the same effect. I'm curious if anyone else has noticed their smell to be food related. I had the new allergy blood test last year and i'm not allergic to milk, but I suspect that I do have an allergy to some kind of chemical food additive or preservative.
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smoklesslady
replied on November 6th, 2006
New User
Smelling Smoke Still
I started posting in january of this year, only posted a couple of times, never heard anything for a long time, then I find that my emails are not being delivered, I don't know why, but well that is secondary. I am still smelling smoke. It has been 11 months now, it doesn't always happen and I cannot find a common denominator as to why it comes and why it goes.

So I am asking any of you who would answer this question. Do any of you have herpes. I contacted herpes like others through a sexual act and have been living with it for a while. Now wonder if in some way it is not to blame, because I have had no break out for a long time but when I start smelling smoke my head feels inflamed. Like the tissue between my brain and cranium is on fire.

Any one else have these symptoms??


Smokeless lady Question
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m_egan
replied on November 7th, 2006
New User
Smoke
Well, I smelled smoked again about 2 weeks ago, went immediately back on the clarinex and nasacort. Saw an ent yesterday, who said its a common occurrence (whew) and symptom of a virus that may have passed through my symptom. The smell may come and go when I am in at a higher altitude, and not to stress about it. She didnt act like I was batty, and said it happens frequently.
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billielengal
replied on November 8th, 2006
New User
Re: Smelling Smoke
Phantosmia is the name of a disorder that causes you to smell smoke. I also live in maryland and thought my brakes on my truck were burning this morning because they are making a noise. However, when I got to work, about a half hour after I sat down, I smelled the same odor. Its really scary. I decided to go online and look into it and that is the disorder that describes what I am experiencing.
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ou812?
replied on November 12th, 2006
New User
Alot of people have posted on this site that they smell smoke, but not many come back to say what they have found out what it was or if went away or if they still have it.

I'll do the same!!!

Let me know!
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callie jo
replied on November 20th, 2006
New User
I Agree .....
ou812? wrote:
alot of people have posted on this site that they smell smoke, but not many come back to say what they have found out what it was or if went away or if they still have it.


I'll do the same!!!


Let me know!


new post here...... My name is shelly........ And....

Let's all just agree that we all have the same symptoms.. What I have noticed however is that many of you "seem" to have gotten over this phenomenon, and then forgotten the rest of us poor souls sitting here waiting! Come on people , let us know what it is we are experiencing.. Save some of us the cost of mri's cpt's, pet's which all end up to be iou's!!!!

Sorry, I am one of the un-insured americans suffering from phenominal medical fees.... Perhaps a move to canada is in order?
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hlrick
replied on November 30th, 2006
New User
Me Too
Hello. I too am smelling cigarette smoke. It started about two days ago and is driving me absolutely mad! I hate the smell of cigarettes as is, now I cannot even escape it. My eyes get dry, my throat gets dry, I am constantly naseous and have a mondo headache.

I am wondering if marbay had his results back yet? And yes, I was beginning to think that I was nuts, including my friends.



If someone has found a "cure", please please share it. I can't even get a breath of fresh air.


Sincerely,
h

Embarassed
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catlvr14
replied on December 10th, 2006
New User
ou812? wrote:
alot of people have posted on this site that they smell smoke, but not many come back to say what they have found out what it was or if went away or if they still have it.


I'll do the same!!!


Let me know!


after 2 rounds of different antibiotics and nasal sprays, I asked my doctor if the smell could be a fungus or mold. He said he had heard of it. He mixed some nystatin with some saline solution and I sprayed it in my nose twice a day for 2 weeks. I have been "smoke free" for 2 months. Hope this helps!
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ou812?
replied on December 30th, 2006
New User
Update!!
ou812? wrote:
alot of people have posted on this site that they smell smoke, but not many come back to say what they have found out what it was or if went away or if they still have it.


I'll do the same!!!


Let me know!


---update!!!!!

I went to my ent and they recommend that I take a 5 day steriod pack, and cipro (antibiotic) for 3 weeks and then get a ct scan. I've done this and the smoke smell is back again about 5 weeks later. My doctor called yesterday and said that the ct scan did reveal that I had sinus disease, (acute sinusitis). He recommeded more atibiotics, but I will find out for sure on jan 8th. I'll be sure to keep everybody updated!
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Rashdan
replied on January 4th, 2007
New User
Smoke Smell
Hello people,
i maybe too young for this since I am a student but recently i've been facing the same problem as you all. This smoke smell comes and goes continously with no ending. I smell it every where, when i'm in bed or in a car or even playing soccer. I've heard on a show that if a person have been smelling something funny like something burning it means that you have seizure which leads to brain tumor. If you don't believe check for yourselves. I still didn't check this problem with a doctor but i'm doinig it soon.
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ou812?
replied on January 14th, 2007
New User
Re: 2nd Update!!
ou812? wrote:
ou812? wrote:
alot of people have posted on this site that they smell smoke, but not many come back to say what they have found out what it was or if went away or if they still have it.




I'll do the same!!!




Let me know!


---update!!!!!



I went to my ent and they recommend that I take a 5 day steriod pack, and cipro (antibiotic) for 3 weeks and then get a ct scan. I've done this and the smoke smell is back again about 5 weeks later. My doctor called yesterday and said that the ct scan did reveal that I had sinus disease, (acute sinusitis). He recommeded more atibiotics, but I will find out for sure on jan 8th. I'll be sure to keep everybody updated!



2nd update!!!!!!!!!!!!!!!!!!


The atibiotics didn't knock it out, but when I went back to my doctor it seemed to be better. However a couple of days later the smoke smell came back. The doc didn't give me anymore atibiotics, but he did say he believed the smoke smell was from the infection and that most of it was in the right side of mis sinuses. I told him that I used saline water (ocean brand) to flush my sinuses about twice a day and use nasonex. He swapped me to flonaise becasue it was cheaper through my insurance. I do believe this is being caused by my sinuses and i'm going to keep using my saline spray and flonaise ?Spelling? Because it goes away after a couple of days using it.


I'm not a doctor..But an engineer (opposite of what bones on star track used to say.. Jim i'm an engineer...Not a doctor!!), but I recommend seeing your ent and using nasil saline solution if he doesn't have an idea of what it is until you can get a second opinion!


I hope others come back to update the site. It doesn't help unless you come back to tell everybody what your problem was!!!!

Good luck and may our saviour jesus christ be with you always!!!


Yes I said his name and i'm not ashamed!!!
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gailray
replied on January 21st, 2007
New User
Smelling Smoke
I have been smelling smoke now for 3 days.I quit smoking 8 years ago and I cannot understand why this is happening.This just started last year and this is the 3 time it's happened,very frustrating,is there anyone here that may know something ,anything that might help.Thanks
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michelepetersen
replied on January 25th, 2007
New User
Me Too!!
I have been smelling smoke for over a year now, off and on. Sometimes it is associated with vertigo and a couple of times I have experienced blurry vision. I almost always end up feeling nausea and after hours of smelling it, a headache. There doesn't seem to be any triggers that I can see.
I am seeing a neurologist today and am also being scheduled for an mri. I have always used flonase as I have year round mild allergies so I don't think it makes a difference. I take it every day and get these smoke smells all the time. Some times weeks go by smoke free and then some times I get it for two or three days in a row.
I will definately let you all know if I find anything new.
This has been a very informative forum and has really helped me see I am not alone and not crazy, which I did think I was until I read all the postings. It just so happens that I have been smelling smoke for 2 days now and my neuro appointment is today! What luck.

I will get back to you as soon as I know.
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RunningGirl
replied on January 31st, 2007
New User
Smell Smoke
I felt so much better when I found this forum. I really thought I was losing my mind. My problem began about a year ago. I smelled a wet wood burning smell. It began at work, and it seemed like I only smelled it there, but later it started at night too. For the last year I have been seeking answers, and I thought I had it beat last april when I had sinus surgery to remove sinus polyps. The smell stopped for about 2 months, and then came back. My ent now says he has no idea of why I am still smelling it - he kind of laughed me off. I have also seen a neurologist, who gave me a brain mri (looking for tumors) and several blood tests (looking for infection), both came back ok. Mri did show still some sinus problems, even after surgery. My neurologist also wants to do an eeg to test for epilepsy.

At this point, I am logging my "flare-ups", and am getting a second opinion from an ent. I have had so many antibiotics and steriod packs - it always comes back. I am hoping that my eeg will be ok, and also am hoping that my second opinion helps.
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Kathyfowler
replied on February 22nd, 2007
New User
Re: Smelling Smoke Too!
farrahmayleigh wrote:
Just spoke to a family member last night and she too has been strangely smelling smoke, started last friday and continues...She says it is constant. She went to her doctor and he checked her nasal passages thinking possible sinus infection but he says all is clear. He couldn't find anything wrong with her sinuses.


She is also experiencing pain in her joints, and a cough and last night was running a high fever...She may have a virus on top of this strange smell symptom.....Her doctor is sappose to have her take a ct scan to eliminate any problems in her brain.

I've been trying to do some research online and found a site that a lady posted with the same symptoms and she suffers from a thyroid problem. Any insight would help.

Thanks!
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Kathyfowler
replied on February 22nd, 2007
New User
Re: Smelling Smoke Too!
I see alot of messages regarding this problem of smelling smoke when smoke does not exist. Has anyone gotten a solution to the problem? KSF
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