I Don't Want to Be Here, But I Have Questions

I wondered if you came up with any diagnosis? I have nearly every symtpom you have and even had a strange spasm in my guts (upper stomache) which lead to gallbladder removal. The pathology report came back and it was normal...Not gallbladder disease, no stones, no sludge. Still dealing with symptoms. I am 35 year old female. Seven children. High blood pressure, but other wise healthy not counting the strange symptoms. Corner of eye "cob webs" in left eye. Left pinky on hand goes numb. Left foot goes numb, little man with an ice pick on the tip of my nose (thats what it feels like) and tons of forgetfulness. Really bad. I thought it was a "thirty something" sypmtom. But after 3 years and after surgery and tons of tests, I am beginning to wonder. Did you get tested?

I have the same kind of symptoms. My thumb and my index finger are numb right now on my right hand and my upper lip is numb, I also feel tightness from my shoulder down to my wrist. Ive been taking prednisone (not recommended cause of other major side-effects).
There is nothing worse than feeling better for several months and all of the sudden one morning you feel "something" happening again. I know i'm not going to let this get the best of me.....

I am still struggling with same thing...But wanted to post this as a possibility. I have found that my water has lead in it. We had our well pump replaced and it is regulations to have it tested. I had to have our kids (all seven) tested for poisoning. They were all negative thank the lord. However, before we had them tested I began looking up symptoms and some of these symptoms fall right in line with lead poisoning. I am not tested yet but will be soon. I will post the results when I do. Currently my symptoms are a tiny man picking on the tip of my nose with an ice pick...Strange but thats what it feels like. And also a sensation of warmth on my head that is wet. Numbness comes and goes. Its all very frustrating.

When I was a kid, I had a friend who's mom had ms. I always remember thinking to myself, man I feel terrible for her, I hope that never happens to me. Life is grand isnt it? What you said about the lead poisoning, I never thought of that before... It does make sense.. In high school someone poked me in the arm with a pencil and the lead is still in there... I wonder if that can be part of it too. I wish you the best of luck with your tests!!!

I am almost 57, I was just diagnosised in 2000. You need to have several testes done and sometimes that won't be enough. A catscan, an mri and other tests from a neuro. But, if you don't get a diagnosis right away don't give up. I may have had symptoms many years ago, but not until 2000 when half of my body went numb did a doctor put me in for tests. It can be many other auto-immune diseases, but you need to get tests done to rule all other auto-immune diseases. Do not give up. You know your own body, keep pushing for tests and answers. Good luck and god bless :wink:

I know, you're right. Right after the spinal tap (6 yrs ago) I lost my job and of course I had no more insurance. I had to make due with prednisone for a long time. Unfortunately the economy sucks and i've only been doing contract work. It's too expensive getting insurane on my own. I'm a newlywed for about a year and about to hop on my wife's insurance plan.. I will resume testing asap. But I am skeptic that they will not accept a pre-existing condition.

There must be a way for you to get some assistance from the state. Hospitals have ways for people to get care or even a free clinic. I will be thinking of you and keeping my fingers crossed. Don't give up.
Sandy :wink:

Thanks sandy, I appreciate that!!

Question, where does one get tested for vitamin d deficiency? Can I just go to the local hospital or medical center or can a family doctor run that test?

There are more than 80 autoimmune diseases, each with their own list of symptoms. I currently have 4 different autoimmune diseases - chronic fatigue, fibromyalgia, sjogren's and multiple chemical sensitivities. It took 13 years before they confirmed the sjogren's. Oftentimes autoimmune disease will go undetected forever because it comes and goes. It can be similar to taking your car to the mechanic because it's making a noise that is driving you nuts, then when the mechanic gets under the hood, s/he can't find anything wrong. It can be very frustrating and people oftentimes begin to feel as if they are hypochondriacs and that the symptoms are all in their head.

Each of you have listed symptoms that most certainly could be an autoimmune disease. Autoimmunity symptoms can be managed through dietary changes and nutritional supplements.

We host a free autoimmunity teleseminar every wednesday evening. My business partner has spent over 17 years researching autoimmune disease after being diagnosed with epstein-barr. She is a wealth of information and has assisted me greatly in managing my symptoms. If you would like to know more about the teleseminar, please visit http://healthydivas.Co m/teleseminar.Html. We do not promote products. This is an information seminar only.

If you have specific questions, please feel free to pm me. I will be happy to assist you and provide you with additional resources.

All the best,

kathy browning