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MS is a relatively unpredictable disease of the central nervous system. Learn about the four types of multiple sclerosis here....
Early detection of MS symptoms and medical treatment may slow down its progression. Educate yourself about the signs and symptoms of MS here. ...
Diagnosing MS is fairly straightforward. Learn about the diagnostic tests and procedures neurologists use to confirm or exclude an MS diagnosis....
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Q: Seems Likely...
asked by: Ste on January 30th, 2005
New User
Hi

not sure why i'm posting probably just looking for a few words of support really.

Was diagnosed with optic neuritis seven months ago, moved to sydney this december - two weeks later after a manual job developed a loss of feeling in my feet that over a week creeped right up to my waist.

Have had sciatica so went to the doctor for a bad back. Had bloods (all clear), chest x-ray (also clear) and a ct scan that showed a disc bulge pressing onto my spinal cord - a good reason for numbness I thought. Given an appointment to see the nuerologist in mid-march "just to check".

Last thursday I develop a tingling in my fingers that has now spread up the outside of my right forearm (along with lack of all sensation)! I'm on the cancellation list to see the neurologist asap and they're looking into whether he can see me out of hours.

As you can imagine i'm shitting myself, i've been reading all the info on ms I can find and my two symptoms and age match exactly. I know that this could not be the case for me (and I apologise if anything I say seems at all demeaning, it's not), however I am finding today extremely hard to deal with, the wait combined with the knowledge of what seems very likely is unbearable. I'm alone out here right now and just need to know that if the diagnosis is positive that things can be ok.

Thanks all

ste
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Ste
replied on January 30th, 2005
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Part Two...
Seems like i've been lucky. Just had a call from the neurologist - he's managed to fit me in at 10.00am tomorrow morning.

Still scared as hell but I don't have to wait like some people.

Any messages still welcome.

Ste
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rockymntchica
replied on January 30th, 2005
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Well, I don't really have any wisdom for you. But I hope everything goes alright. Hang in there.
Christy
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Ste
replied on January 31st, 2005
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Part Three...
Hi

got a call just after the first asking me to go to the specialist straight away (yesterday). Was there by two. He seems of the opinion that it is ms but I have the mri tomorrow "to confirm" and get the results thursday evening - thank god for travel insurance!

Still, if what is suspected is correct I int gonna let it change anything - i'm still staying in australia for my full year and it aint gonna get me down. If this is going to be wih me for the rest of my life i'm not going to let it change what I do or who I am.

Does anyone know of any sites that tell it how it is though? I know wymptoms vary from person to person but everything that i've read so far is very fluffy adn optimistic and all I really want is the full score with nothing left out to save upsetting anyone. I'm an impatient bugger and I want to know everything I can, now!

Cheers

ste
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Ste
replied on February 3rd, 2005
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Result.
Well had the scan and been to see the neuro.

Have three lesions on my spine and three on my brian but they are all so small that you can hardly see them.

Start on avonex as soon as the nurse comes to show me how to self-inject. Not so worried now thoiugh, as many of you have said in other postings aint it a relief to find out that your not going mad or just a super hypochondriac!!!

Evrything else in my life is fantastic and this aint gonna change that and some people that I harldy expected to help have turned out to be what could be very good freinds. I'm a lucky chump really!

Sure i'll have more questions so i'll be back but for now have fun and speak later.

Ste x
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mommy7
replied on November 7th, 2005
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Seems Likely
I wondered if you could share what tests you had and if you had a spinal tap? I just am having a lot of your symptoms and am 35...I would like to know what I am in for if I proceed and see my physician. Thanks.
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fighter41
replied on January 19th, 2009
New User
keep your head up
Trust me you need all the people you can talk to about the Multiple Sclerosis disease, I was dignosed with it when I was 32, My Life went down hill they all said Tammy dont let this disease beat you you beat this disease. If there is a treatment called Tysabri out there get on it. I had 9 lesions on my brain and couldnt move from my waist down but now with the treatment I can move and walk a little, but am still in a wheelchair it doesnt give you back what you have lost but it slows down the progression of the M.S. and it heals the lesions on the brain, It is given by injection once a month I.V. at the Hospital check into that treatment the Avenox didnt do a thing for me nor did the other drugs. The Tysabri has no side effects that I can feel or have to deal with except getting stuck by an I.V. needle but now I have a port so it wont be so bad. But Hang in there. May God Be with you and Bless You.
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Ruthmurphy
replied on February 26th, 2009
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Good Luck Ste - Im glad you've got friends out there for support

did anyone get back on which websites to read up on? I too would like to know the bigger picture in life.

Ive not yet been dx-ed of MS, or of anything else for that matter, but I'm thinking more and more along the line that it is MS that I have - hopefully the neurologist I am seeing soon (for the 3rd time) will stop me wondering.

Good on you for such positive thoughts about life and I will remember that if I ever get a dx

Ruth
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