not sure why i'm posting probably just
looking for a few words of support
really.
Was diagnosed with optic neuritis seven
months ago, moved to sydney this december
- two weeks later after a manual job
developed a loss of feeling in my feet
that over a week creeped right up to my
waist.
Have had sciatica so went to the doctor
for a bad back. Had bloods (all clear),
chest x-ray (also clear) and a ct scan
that showed a disc bulge pressing onto my
spinal cord - a good reason for numbness I
thought. Given an appointment to see the
nuerologist in mid-march "just to
check".
Last thursday I develop a tingling in my
fingers that has now spread up the outside
of my right forearm (along with lack of
all sensation)! I'm on the cancellation
list to see the neurologist asap and
they're looking into whether he can see me
out of hours.
As you can imagine i'm shitting myself,
i've been reading all the info on ms I can
find and my two symptoms and age match
exactly. I know that this could not be
the case for me (and I apologise if
anything I say seems at all demeaning,
it's not), however I am finding today
extremely hard to deal with, the wait
combined with the knowledge of what seems
very likely is unbearable. I'm alone out
here right now and just need to know that
if the diagnosis is positive that things
can be ok.
Thanks all
ste
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Ste
New User, Becoming EHEALTHy
Joined: 30 Jan 2005 Posts: 12 Location: Sydney
Part Two... Posted: 01-30-05 20:02pm
Seems like i've been lucky. Just had a
call from the neurologist - he's managed
to fit me in at 10.00am tomorrow
morning.
Still scared as hell but I don't have to
wait like some people.
Any messages still welcome.
Ste
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rockymntchica
New User, Becoming EHEALTHy
Joined: 30 Jan 2005 Posts: 3
Posted: 01-30-05 21:43pm
Well, I don't really have any wisdom for
you. But I hope everything goes alright.
Hang in there.
Christy
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Ste
New User, Becoming EHEALTHy
Joined: 30 Jan 2005 Posts: 12 Location: Sydney
Part Three... Posted: 01-31-05 17:14pm
Hi
got a call just after the first asking me
to go to the specialist straight away
(yesterday). Was there by two. He
seems of the opinion that it is ms but I
have the mri tomorrow "to confirm" and get
the results thursday evening - thank god
for travel insurance!
Still, if what is suspected is correct I
int gonna let it change anything - i'm
still staying in australia for my full
year and it aint gonna get me down. If
this is going to be wih me for the rest of
my life i'm not going to let it change
what I do or who I am.
Does anyone know of any sites that tell it
how it is though? I know wymptoms vary
from person to person but everything that
i've read so far is very fluffy adn
optimistic and all I really want is the
full score with nothing left out to save
upsetting anyone. I'm an impatient
bugger and I want to know everything I
can, now!
Cheers
ste
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Ste
New User, Becoming EHEALTHy
Joined: 30 Jan 2005 Posts: 12 Location: Sydney
Result. Posted: 02-03-05 18:10pm
Well had the scan and been to see the
neuro.
Have three lesions on my spine and three
on my brian but they are all so small that
you can hardly see them.
Start on avonex as soon as the nurse comes
to show me how to self-inject. Not so
worried now thoiugh, as many of you have
said in other postings aint it a relief to
find out that your not going mad or just a
super hypochondriac!!!
Evrything else in my life is fantastic and
this aint gonna change that and some
people that I harldy expected to help have
turned out to be what could be very good
freinds. I'm a lucky chump really!
Sure i'll have more questions so i'll be
back but for now have fun and speak
later.
Ste x
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mommy7
New User, Becoming EHEALTHy
Joined: 16 Sep 2005 Posts: 21
Seems Likely Posted: 11-07-05 14:16pm
I wondered if you could share what tests
you had and if you had a spinal tap? I
just am having a lot of your symptoms and
am 35...I would like to know what I am in
for if I proceed and see my physician.
Thanks.
