I had a dvt in my left leg so yes with medicine it will go down. Did they put you on warfrin ?

Hello,

just wanted to share my experiences with blood clots.

I was hospitalized for 3 weeks with 3 clots. One behind my knee, one in my inner thigh and one in my groin area (left side). So was my mom about 4 years prior....
September 2003 - I was exercising on the leg press machine at the gym. After I felt abnormally tired and nauseous I stopped and went home. The next day at work, I was coming back from lunch walking up the stairs and I experienced a tinged of pain in my inner thigh/groin area. I thought I must have pulled something and tried to sit down at my desk for the rest of the day thinking that would help. The next time I got up and walked down the hallway to my bosses office, the pain came back. Wasn't horrible pain, but enough to let me know somethings wrong. I left an hour early that day to go rest and put my feet up thinking I had did something wrong on that leg press machine at the gym.

The next day it still was tender and so I called my doctor and went in to be seen. The doctor did a x-ray of my leg and it "showed nothing".... I went home with some prednisome that my doctor had given me because I have lupus and he thought that it might be a flare.... The next day my leg began to hurt a little more and get a little heavier. As the day progressed, my leg became very swollen and I could hardly bend or straighten it out fully. By that evening my leg was twice it's normal size. I was hopping and I hopped into the er. In the er an ultrasound was done and the 3 clots were detected. I was in there for 3 weeks and I suffered through a staff infection, bed sores, lost 40 pounds - literally went through hell!!! But that's another story..... The doctor assured me that there was no need to do a follow-up ultrasound once I left the hospital.
I stayed on blood thinners up to my next episode.

A year later - august 2004 - the second bought with clots. I was hospitalized for 2 weeks.... How it began: I kept feeling a little pain in my inner thigh. Similar to where I had a clot before. No swelling at all just tenderness in that one spot. I went in to see my doctor and he sent me to have an ultrasound done. More clots were detected (old and new ones)!!!! They were described to me as a "string" of clots.... I had been on the blood thinners for a year and had normal pt/inr tests every month. What made this time so odd was that I was in no way near as much pain as I was in the first time and there was no swelling at all unless in was hidden under the layer of fat that I packed on from taking prednisome. Just a little tenderness and pain and it wasn't constant either.

After the last episode the doctor's decided that keeping my pt/inr level at 2 was not sufficient and so they now keep it at 3. I have been told that I would have to remain on coumadin for the rest of my life (i am currently 31) since I had two incidents. Although, I feel that I have technically had one incident since the old clots were still there with new ones the second time around. Strangely enough I am having some pain and tenderness in my thigh right now, but an ultrasound was done this past weekend and did nto detect any clots, only swollen nodes.....

Two things I learned from my experiences and want to share with others:

1. X-rays don't work in detecting clots

2. Follow-up ultrasounds are needed to make sure that the clots are
dissolving (even if you are on blood thinners and have been for a while)

has anyone ever had any similar experiences or heard of such a case? Or am I just special? Can lupus effect the blood in such a way to make it clot more and make it resistent to blood thinners?

Yes I had a similar experience but everytime I had the same pain in my left leg I went to get an ultrasound and they just saw the scarring from my original clot. I was also in the hospital for 2 weeks and had to get a blood transfusion. I was anemic. And yes you are correct I also got a chest xray because I had trouble breathing but they did not discover the clot in my lungs I had to go in the mri machine but I could not hold my breath so they put me in another type of big machine where you couldn't move. I was only on blood thinners for the 6 months. I had to come off because it was bothering my period. Did you experience anything like that ? As for the lupus I m not sure if it affects the medicine or not. My left leg still swells up to this day if I stand on it for along time so I always have to keep my leg elevated with a big pillow. Also the nerve endings still has not return to my leg I keep getting this sharp pain in my calf. I'm sorry to hear that you got the clots again. I will keep you in my prayers.

About 5 years ago I had surgery on my left knee and developed a clot in my calf as a result. I had an ultrasound to diagnos it and immediately went on blood thinners. After several weeks, I went off medication (as directed by my doctor) and felt fine for the next few years. I'm not an overly active person, no good exercise routine but in reasonable physical condition. About 2 years ago I had blood test and my doc said my cholesterol was high. I started biking and eating better and drop my cholesterol to normal levels. I continued to bike about 40-50 miles a week and did a 90 mile ride labor day 2004. After that my calf started hurting and my knee was flaring up, so I went to phys therapy in jan this year my calf was injured in pt and swelled up. It went down, but continued to bother me. After a couple of months I got an mri which showed nothing. So I kind of gave up, figuring that the long rid and pt injury were a result of the scare tissue from the past clot.
I recently heard that flying can cause clots and realized I took a trip for work the week before the long ride, and right before getting hurt in pt, and took a few trips during the time when my calf was bothering me the most.

I have not been back to the doctor, but am starting to believe that I may have small clots still that have not gone away and got worse from flying, I still have pain, but having been living with it. I still ride my bike, though not as much. I'm probably going to see my doctor again just to make sure. Is there any evidence that flying can cause old clots to come back?

Advice, thoughts. Oh, i'm 36 now, male.

Sorry to hear about your problem. I just wanted to let you know I have dealt with blood clots for almost 11 years when they found the first ones I was about to have a stroke . They were in my left leg and I could not walk I had to crawl so you should be fine. My leg was totally discolored and not getting hardly no blood...Just wanted to let you know to some how ease your mind and I do still have my legs for now

My legs have both been hurting pretty badly for about 2 weeks, mainly in the calves but a little in the thighs, too. I also had chest pain, cough, and back pain. So I went into the e.R. And they did blood tests (d-dimer, pt, ptt), I got a chest x-ray, chest angiography, and lung scan/ventilation-perfusion to rule out clots in the heart and lungs. Anyway, they said my d-dimer was slightly high and that's why they had to do those tests based on my complaints. However, they didn't do anything directly to my legs, so i'm still worried I could have clots or dvt in my legs. I asked the Dr. If I should do anything since my d-dimer was high, and he said no, that many of them come out high and he didn't seem concerned at all. So did the tests that I did have done rule out clots anywhere in my body??? My husband says that since they did an angiography it would have shown that I had a clot somewhere in my body. I'm not sure, so I thought I could ask people who have had experience with this. I'm 20 years old, normal weight, but not that active for about 2 months since we moved and I don't have a job. But before those two months I was fairly active. Sorry I keep going on and on, but i'm worried sick about this! Any help would be greatly appreciated!

My mother has blood clots she had them when she was about 16 or 17. She got surgery for her blood clots. After that she was better. And then when she became 19 they came back she was in the hospital for 3 to 4 months. And now she is about 40 to 45 and she has them again. Doctors are smart right? Then why can't they figure somethng out.? If it's this bad and it keeps on coming back, shouldn't they do something.!

If any one knows what to do for blood clots I would love your reply!

I am 43 yr old female and I went to hospital with chest pressure and breathlessness. Long story short, because of the low oxygen level in my blood, they gave me a ct which showed multiple pulmonary embolisms in the lower region of my lungs.
I don't smoke, not on birth controls, no swelling in legs, no history of clotting in family, no long trips...No reason for getting clots. They did an ultrasound on my legs...Normal. I was put on warfarin and it is now 4 weeks since it all happened and I still have chest pressure. My doctor doesn't seem to concerned about it, but I defintely am! I have been trying to find other people who have developed multiple blood clots on the lungs which didn't come from their legs. I hope to see replies from people who have had similiar experience. Anyone have multiple pulmonary embolisms and no explanation of why they developed them??

A number of folks seem mystified as to why they are getting blood clots in spite of no history, no leg swelling, no long trips, etc. Most likely, you have a problem with one of more of the 13 clotting factors we all carry. I know I have problems with three of them, and ,my Hemotologist believes that this is the reason for my problems, and causes a continuing (forever) risk of thrombosis, and hence PE's (I have had two, one while ON Coumadin -- so they raised my range 2.5-3.5 and even up to 4 is OK.)

What do I need to do during a 4 hour flight. I take 7.5 warfrin daily and have factor 5?

If you are on your warfarin and well anti coagulated, your risk is lower than other people for a clot while flying. But you MUST get up every hour and walk around. And drink plenty of water. My Coumadin Clinic also tells me to squeeze my buttocks together while sitting. Do not cross your legs either.

I am 19 years old, and am just going through recovery from 3 blood clots in my leg and a pulmonary embolism. I have been hospitalized twice, and have basically had my life put on hold for the last 6 months. I was told that the clots should be dissolved within 3- 6 months, but my leg is still at least 2 inches bigger than my "normal" one... My blood clots were caused by the birth control pill... My warning to all... GET TESTED FOR BLOOD DISORDERS BEFORE GOING ON BIRTH CONTROL!!!

In July of 2006, I had an episode of clots...I went to multiple doctors, basically diagnosing myself, and no one could seem to find a clot.

I finally found a capable hospital, and was hospitalized for 8 days with a clot in my left leg, from my knee, all the way up...a couple in my abdomin, and a couple in my right leg. I have been on Coumadin/Warfarin since. It was decided that this was caused by a genetic problem, birth control pills, and a long car ride.

I was told that my left leg would always be an inch or two bigger around than my right leg, and it is. However, I am experiencing quite a bit of swelling lately, in my left leg. I don't feel any warm spots, no visible color changes. I did have a long car ride, about a month ago (about 15 hours total) but learned my lesson with the last time...so I made sure to stop and get out and walk around often, and also spent the night halfway through the trip.

My left leg has always swelled since my first experience, but seems to swell alot faster lately, and i'm not really doing anything to make it swell.

Anyone know what the possibilites actually are, of getting another blood clot while on Coumadin? I have been on them for, going on 3 years, and my levels are always normal.

COuld there still be a chance of developing blood clots from that trauma I have not had any problems since except numness in the are and some leg pain. NOw it seems with in the last month or two I have been having alot of pain and tingling in my toes

I am 46 yrs. old and have PAD/PVD and have a stent placed in lower aorta. This was caused from smoking when I was younger, so I was told. I have been put on Plavix/81mg. asprin combo as blood thinners. The stent has been in for three years and I have developed a blood clot in my stent, and part broke off and traveled down to my foot. I am not sure when this happened as I have had many undetectable problems on and off since 1st stent. I have tingling, burning/itching feet when sitting upright. My feet and ankles only swelled up one day I drove long distance, one day in all these years. I dont have swelling, just clotting. This clotting was not detected by ultrasound as it is difficult to see in the stent. My toes were black and warm, not cold as they should be. The only reason I was sent to have a Cat scan to find clots was from my badly discolored toes. I now have had a stent graft put in and still have the blood clot in my right foot. This is excrutiatingly painful as I am on my feet working hard 8 hrs. daily. I can feel pressure in my leg as well. I can't seem to find anyone with this problem. My blood clot is in circulatory, not small veins. I was told this wont travel back up, and be harmful. I cant find out if it will ever be dissolved somehow, or if I will have to live with my foot pain. My little toe seems dead at times standing. My pain level is maxed out at work each day. Anyone out there with this problem? How do you manage working? Help?

hi
my husband is 24yrs old and is very healthy and fit, back in january i took him to A&E with breathing problems, no pain just shortness of breath. they check his oxegen levels which were in the 70s very low as we should all be 100% when you dont smoke or drink! they did an xray which showed nothing and took bloods. they kept him in as they couldnt do a ct or mri and was worried it was a blood clot.
the following day they did both scans and found blood clots in both lungs they were shocked to see so many and that he wasnt in any pain they put him straight on waffarin but after a few days he started to have trouble with his liver so took him of it and put him on celxane and sent him home!
after 7 months of being on the drug and having no appoinments with the gp,dr or consultan as there procedure was to leave him on it for 6 months then test him but his consultan was away so we had to wait another month. a few days before his appointment his left leg started to hurt very badley we went to the gp and they said he pulled a muscle and sent him home to rest the next day he woke up and his leg was double the size of the other and was red and hot so i took him to A&E straight away.
once we got to see the dr it was so late that they wanted to do an ultra sound and couldnt so they sent him home with a suspected dvt they upped his celxane to 160mg instead of 130mg.
the next 2 days later he was called to come in for an ultra sound and as they suspected it was a blood clot. it was the whole of his thigh from hip to knee.
they sent us home and said they would get a emergancey hematology appoinment 4 weeks later and we havent heard a thing he is still in pain and still on the drugs we have called the hospital and the gp and they saud there sending us a date in the post asa! has anyone ever heard of such a problem with this????