I just found out a cousin of mine who I haven't seen in years has been suffering from muscular dystrophy....Sharko marie tooth. He had leg cramps as a kid and is only 23 now and has barely any muscle left in his leg. I've done a lot searches today and still feel like I know nothing. So if you could please let me know even just that basic facts that would be great! :) thank you!

i have sharko marie tooth disease. My father was diagnosed when he was in his 30s. After they found out he had it, I was tested. I found out I had it when I was 6 years old and I am now 32. I don't have good muscle strength in my legs, but I use my hands at work and I believe that has helped. I have researched this disease extensively. If you have questions, ask.

It is actually spelled charcot marie tooth

Hi there! You are a great person, please give yourself some credit! I have worked with md people before in special homes, they are such special people too! I am sure that it is rough on you! I do hope you have some in home help so you can have some time for yourself. Their are some good support groups that might be able to help you!
The best to you and yours!
Sincerely,
sandy

Hi I myself have dmd its good that you help your son I understand its hard to cope so take your depresion times it by ten and thats what your son will feel like, he has to cope with his disability your depresion and life in a wheelchair i'm not seying your a bad mother for feeling that way but look at it from his point of view any questions just ask

My father has md non of us got it except my sister has partial cerebal palsy. My father is now 43 and has done things the drs told him he would never be able to accomplish, he plays guitar, he walks and does other things thought not possible. I understand as me and my 5 sibling had to take care of my father on a bad day such as massages to stimulate muscles in his legs etc......

My father has a form of md only known to 5-6 other people and therefore no studies have been done. Be happy that your son is living, if it wasnt for my father I wouldnt be alive at this day, my father is exceptionally brilliant and a stay at home dad. I dont pity him but I give him my respect for doing the stuff he does

good luck!!
Jess