Hi I myself have dmd its good that you help your son I understand its hard to cope so take your depresion times it by ten and thats what your son will feel like, he has to cope with his disability your depresion and life in a wheelchair i'm not seying your a bad mother for feeling that way but look at it from his point of view any questions just ask

Who cares for you? Because my son relys on me for everything. I was stating that it's very hard on me. He goes with the flow never really complains...

I have two adult children with MD...my daughter has been in a chair for about twenty years...her health is not good and we just spent a few weeks in the hospital because of breathing issues. My other child is in his twenties..really almost thirty..he still walks but falls alot...he has no muscles in in body really his arms are nothing but bone..and he has to use two hands to even raise a cup to his mouth. I am pretty old ...just turned sixty last year and I am a single mom ...their father decided over twenty five years ago...as he said...."It is my turn"...and he found another life that did not include his children in anyway. My children get child support,even at their age,because they are "adult disabled children" but the state I live in,(was forced here while still married)...Texas does not give any type of 'alimony" to the ex wife even after twenty-five years of marriage. I am the one who lived the "lean years" while their father got his great education that now gives him a large six figure income.
Our life is very difficult because I no longer work outside of the home....as all you moms know....we do "work" inside the home....being alone is not easy....and I guess I just don't allow my mind to digest that fact. I have no life outside of this house......I tried "groups" and it never works...there just are not people my age who have the responsiblities I do......they are "single"....children grown and on their own.....I am not. We have nothing in common and they just "don't get it" when it comes to my children.
I am confident I will live out the years I have left...alone...but my real concern is for my children when I die....then what??? That too I must NOT allow myself to think about.....I live one hour at a time....not even a "day at a time"....because as you all know....our "days" are not simple and at times "a day" can feel like a lifetime and like it will never end.
If you have someone in your life who loves and values you....and...your child or children....give them a Hug....you are very fortunate.
Just thought I would share....
My best to all of you....and ..if you too don't have someone in your life just know that I will be thinking of you and all you do for your child or children.

my sister lived 11 years with muscular distrophy. In those days there were known 2 types one dying ages 7-8 or before puberty and the other living 'til mid 20's. I was the older brother by 3 yrs. with a single mom and a younger healthy brother fraternal twin to my crippled sister. I've read all the blogs and can relate having been so directly involved in the caregiving. My mother and I had a special alliance to survive the caregiving. Mother age 85 is still alive having survived 2 knee replacements and breast cancer in recent years. I know these times of caregiving are most exhausting especially if you're most devoted but in hindsight they are the most meaningful if that can be of any consolation. Also this may be hard to believe but there are understanding people like me who would be glad to step in and bring occasional relief and would know how. Also try to forget and forgive the puniness of soul of anyone that should have helped you and walked away they missed out on a real blessing in disguise Love to you all