Lupus Forum - Going Blind?

Conditions and Diseases > Lupus Forum > Going Blind?

Q: Going Blind?

asked by: Jen779 on January 18th, 2005

New User

I would appreciate anyone's thoughts on this topic. I just spent the majority of the weekend with my boyfriend (he is the one who has lupus) going to eye doctors. He was seeing "floaters" and color bursts in one of his eyes. One of the doctors seemed to be surprised that he could still see at all. We went to a specialist who seemed to think that his optic nerve was inflammed, so they increased his prednisone from 35mg up to 80mg (which is so depressing since his other doctors thought he was doing better and we were excited to have his prednisone reduced). Has anyone else experienced anything like this before. This disease is scary enough, I don't want to worry about him going blind now!
Help!

Replies(2)

cathyM

replied on January 29th, 2005

New User

Vision & Lupus

Hi,
my name is cathy. I have had lupus since early 80;s. Not diagnosed officailly till 1996. In 1999 I had my first time with optic neuritis . So I can realte to what yur boyfriend is dealing with. The pred will help,... But time only improves it . Usually whatever vision you loose & doesn;t return in first few weeks that is how yu remain. Optic neuritis from my experience is quite unpredictable & very painful... I wish you both well... Hugs, cathym

HangNguyen

replied on March 29th, 2005

New User

Vision & Lupus

Hmmm...My vision has been very unstable. I don't know if I have lupus or not. I have astigmatism and nearsighted, but lately at night times I see blure vision. Is that lupus or it's time to change prescription lenses ? I do have family history of lupus. I tested positive for ana. But i'm not sure if its flare up or not. Any suggestions? If I were to see a specialist in rheumatologist, would he/she know? Or should I see specialist in eyes doctor?

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