Epilepsy Forum - I Have Tried Them All.....

Conditions and Diseases > Epilepsy Forum > I Have Tried Them All.....

Click here to learn more about what causes epilepsy and the different types of epilepsy. Start here to learn about the basics of this type of brain disorder. ...

Q: I Have Tried Them All.....

asked by: MickeyFan on January 16th, 2005

Experienced User

Hi,
i haven't posted in a long time,( computers been down and so have i)
i have tried all the seizure meds and the combos the doc can come up with. Sometimes they work and sometimes they don't, but usually only for a sort period of time. As the doc keeps calling it the "honeymoon" period.

A couple of months ago I was at my wits end, ready just to have my whole brain removed,
when my doc suggested I try a "really" old med that noone uses any more.... Peganone.

Is anyone else on it???????

The pharmacy had to special order it for me even. I have slowly increased my dose i'm up to 2000mg a day, and i'm doing good.
(i'm also still on 100mg of topamax)
the side effects are not that bad, I have a hard time sleeping, mild headaches, and my muscles hurt a little. But nothing that I can't deal with.

Any input would be great,
thanks,
jill

Replies(2)

kayakmom

replied on January 17th, 2005

Experienced User

Hey jill, I have heard of others using some old school meds and having success! Great that you can deal with the side effects! I sure hope the peganon keeps doing ok for you!

Hang in there. You can talk to the neuro about melatonin to see if that would help you sleep. It is an otc thing. Some neuros love it, some do not. My son uses it and it really helps with sleep.

Sorry no experience with that med, though....

Hang in there! Hope this lasts much longer than the honeymoon phase!

MickeyFan

replied on January 17th, 2005

Experienced User

Thanks for the encouragement, when the meds are the only way to handle the seizures and you bounce around on them it gets to be a big pain.
I'll inquire about the melatonin.....And let you know.
Thanks again,
jill

Learn About Us

Get Help

Join In

Do More

We comply with the HONcode standard for trustworthy health
information:
verify here.

The site is not a replacement for professional medical opinion, examination, diagnosis or treatment. Always seek the advice of your medical doctor or other qualified health professional before starting any new treatment or making any changes to existing treatment. Do not delay seeking or disregard medical advice based on information written by any author on this site. No health questions and information on eHealth Forum is regulated or evaluated by the Food and Drug Administration and therefore the information should not be used to diagnose, treat, cure or prevent any disease without the supervision of a medical doctor. Posts made to these forums express the views and opinions of the author, and not the administrators, moderators, or editorial staff and hence eHealth Forum and its principals will accept no liabilities or responsibilities for the statements made. Schizophrenia health sitemap.
This page was last updated on January 1, 2009.
© 2008 eForums, Inc