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Q: Pre-seizure, /make Threats & Not Know
asked by: bandit on January 7th, 2005
New User
I know this is a bit long, but I have no experience and am desperate for some advice from somone who has had a seizure.


I live with my boyfriend and he is epileptic. He hadn't had many seizures for while until christmas weekend. He had been on call for work, getting very little sleep and was playing video games for hours at a time. He said a few times during the weekend he was feeling "seizurey" and just wanted to get it over with. On sunday night he went out with his friend to the bars, didn't drink much and came home with him in an agitated state. I just assumed they were riled up from being out.


Sean (my bf) and i, my friend and sean's friend all went into the kitchen and started having a discussion about politics. My friend and I had been drinking quite a bit and watching movies, sean's friend drank quite a bit as well and came back with a $60 bar tab as opposed to sean's $7. Our roomate came home at that point and was not drinking at all, so I use most of his account of the situation as I was far from sober.


My roomate said sean started getting mad and talking non-sensablly, and then I remember his telling us all to get out of the house seemingly out of no where. There was no disagreement in the discussion to warrant this. We walked to the front of the house and sean's friend started trying to calm him down. I remember being in shock and just standing there and sean coming at me yelling, his friend getting in the way, and sean punching him a lot. This is not normal behavior for him.


The arguing went on for a while, sean went upstairs and his friend waited for him to come back down, he saw sean come down the stairs with a shotgun we keep loaded for protection and we all heard him yell "who wants to die?" and his friend yells out something about sean's having a gun as the rest of us cant see him. I tell my friend to leave and usher him out the backdoor. I don't know it but after he leaves and drives away he calls the police.


Sean's friend is still trying to talk him down and I wait in the kitchen, seemingly everytime I approach sean he becomes irate so I stay away. Our roomate realizes the severity of the situation and leaves out the backdoor also, after sean becomes irate again. Our roomate said that at the staircase, when he asked sean what he was doing, he said he didn't know and seemed very confused. He tried to get me to leave to but I stubbornly stayed.

I am alone in the kitchen and sean and his friend begin yelling in the front room again. From his friends account, sean kept pointing the loaded shotgun in his face and he kept moving it away. I don't remember much after that except sean chasing me into the backyard and locking the door behind me. After a few minutes outside with no shoes on I begin pounding on the door - sean's friend opens the door and said the police were there. They take him away and get video statements from us about what happened. Our roomate, the only sober person there, had left and the remainder of us never thought he had a seizure and were pretty shaken up and told the story as it happened.

Sean spent a few days in jail and is out on bond awaiting court. I am not supposed to see him because it is a domestic violence case, but after speaking with him I decided to come home after arranging to move. His account was convincing, he was medicated when he got out and very confused. He said he only remembered little bits of what happened and ended up having a seizure in the cop car that night and then when they called the ambulance he had a seizure there too.

He is being charged with felony menacing in a domestic violence category, even though I didn't press charges nor did anyone else. I care about him very much but also don't want to be a fool and have this happen again. He didn't take medication before but said he will now. He takes full responsibility and has remorse but he really dosent know what happened.


Finally my question, is this really a seizure? I can't find anything online that describes pre-seizure activity. His doctor said it might be aiws (alice in wonderland syndrome) but the description of that dosent seem consistent with his actions, plus it mainly happens to people who suffer from migrains.

Thank you.
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sami_1982
replied on January 9th, 2005
Experienced User
Hello
I have temporal lobe epilepsy and I am on heavy medication. I lived with my ex girlfriend and my girlfriend came to vist and my ex's girlfriend also came to stay, we all went out one night n we were out late, I decided because it was a nice dinner with nice music n everything that I would have 2 beers and a midori and lime alcoholic drink.

Shortly after I felt strange sleepy like, I remember that then when we got home, I started going off everyne says I was being normal then I was dribbling caca, like saying everyone was a this and a that all the sware words in the world were comming out of my mouth and I was getting verry angry.

I ended up having 3 seizures and being sick and being kicked out of my house later on. I was totally mean. But I cant remember much at all, the other ppl didnt realise and neither did I that when drinking alcohol it does something to epileptics on medication it makes them either get toxic from an overdose of medication or even if not on medication I would hate to see what could have happened, this wasnt the first time that I had done something like this either.

Anither time I had scratched myself to peices and then wondered how I ripped my shirt off n really had a psychotic episode, I thought that I was going mad, when I was good I was good but when I would have one of those episodes I never knew what was going on, all I know is I felt very paranoid at those times and very small, like my body was tiny and my hands and feet were huge and I was trying to protect myself, and everything that anyone said to me was scaring me, the more that they tried to help me the scareder I got because I wasnt incontroll.

Epilepsy is a very complex thing and it is very hard, but I would believe your boyfriend as similar things have happened to me, I no longer drink I cant handle even half a beer. Glasses of wine are the worst.

I hope that everything works out fine with you and your b/f and he really needs you most at this time in his life and I bet he can only say sorry to you so much and not know why he is saying sorry and it probbaly frustrates the hell out of you and I know its hard for you to be a partner to a person whom has seizures,

and that is what all the ppl that saw me go through that night no matter what they said it was like someone else took over me like in a scarey movie they said it was like a different personality.

Since I have seen psychologists and has evaluations and I am on new medication keppra and epilim and I am so far so good, I still feel strange at times and I still have seizures but I dont go round hurting ppl.

When I found out that I did all that I was so upset.

It really makes us ask why me.
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happiness
replied on February 5th, 2005
New User
Yes its very much possible to have this happen during or before or
after a seizure. There is something called a rage seizure, I don't
remember exactly which kind it is. Also read up on complex partial
seizures. It would constitute the fact he remembers nothing,
but the alcohol does that for him too. I would continue working
through this, and I personally would suggest you make sure he
isn't driving. If at all possible, reason if this kind of rage started
in a car, it would be considered road rage.

You can go to www.Epilepsyfoundationofamerica.Org gosh I
don't know the exact, but go to the answer place and read upon
it. Also go to the ecommunities there and read and post to
others. You will find lots of support.

Happiness
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kayakmom
replied on February 6th, 2005
Experienced User
Epilepsy.Com is also another great place to learn about seizures and how they can affect you....


Hoping you can figure it all out.
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bandit
replied on March 17th, 2005
New User
Thanks for all your relipes. I am now 100% sure his actions were caused by seizures, as opposed to about 95% sure before.

I thought the worst was over, but they are charging him with 3 counts of felony menacing with a deadly weapon - one for me, my friend and my roommate. We have all petitioned the da to drop the case but he will not. My poor boyfriend is looking at a minimum of 9-25 years if he is convicted, and it does not look good. I am so shocked I do not know what to do, they wont even acknowledge that he is epileptic and treat him like a common criminal.

Of course my video statement they had me do that night didn't help, because I didn't realize his actions were because of a seizure and he even said he didn't have a seizure while it was happening he was so out of it. I have tried to contact many epilepsy advocay groups, and no one will help because of the gun involved. If anyone is reading this and knows of anything I can do or anyone who could help please let me know. If I could get a well-known organization to petition the da for violations of the americans with disabilities act.... That might work.

It is so strange to see him everyday knowing that in a few months I will probably never see him again and there is nothing either of us can do about it. I feel like someone is about to die, and all because I didn't realize he was having a seizure. It is infuriating.

They have him on dilantin now, as he was not on anything before. He is like a zombie on it and the side effects are like that of being a heavy drinker. Any suggestions on good alternatives would be appreciated also.

Thank you for your support during this hard time....
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kayakmom
replied on March 17th, 2005
Experienced User
Try contacting the epilepsy foundation of america. They might be able to help.

I am so sorry!!

My son often would deny he was having a seizure at the time, as well. He would say later he did not know why he said he was not....He knew it was but was like he could not tell me.....
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roberto
replied on March 22nd, 2005
New User
Please Read This!
I just read a little of your meassage, or should I say pledge for help!

When I was reading it was as if you were talking about me!!!

Firstly what causes my seizures. The initial cause of my epilepsy is from an accident, but my seizures only started a year and a half later. My first seizure was when I went out for a couple of drinks (i didn't drink much, occasionally).

What bothers me: alchohol is at the top of the list. I also spend a lot of time on the computer and realized that if I have my monitor on in a dark room, it's not good. The same goes for tv, but with tv it's not so bad.
Now that I stoped drinking alcholhol, being in a stuffy room is at the top of the list. Being out in a heavy hot sunny day!

What helps me: dairy products (milk, yogurt, ...), being outside at least an hour a day, regular diet, ... And basically living a healthy life!

In conclusion, the issue about him accting 'wierd'. I also act wierd, especially after attacks. Sometimes I would also act wierd or say wierd things before attacks but not always!

I hope this woulf be of some comfort and help to you!

I would be very greatful if you could send me a mail, even if you simply say "got your message". It's always good to know that someone's read my words. Good luck,

robert from slovenia!
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