I was diagnosed with cfids back in 1999
and have gone from crawling to the
bathroom, to now being able to work 30
hours per week and take college classes.
One of the things that helped me the most,
and still does, is keeping my magnesium
intake up. Magnesium helps regulate
blood pressure and muscle activitiy.
When I don't get enough magnesium my blood
pressure fluctuates, I get lightheaded,
and my muscles start "drawing up short",
not a quick sharp cramp, just a slow
tightening over several days or overnight.
Magnesium seems to help with the cold
intolerance as well, probably via the
blood pressure regulation. When blood
pressure drops the body's self-protective
mechanism sends blood where it's needed
most to maintain life (heart, brain, and
lungs) and reduces it where it's needed
less (hands, feet, arms, legs), resulting
in those extremities receiving less warm
blood and therefore feeling colder.
Surprisingly, I have to watch my calcium
intake. Calcium and magnesium need to
stay in proportion to each other and too
much calcium seems to cause more problems
than it helps. Also watch caffeine
intake in relation to muscle twitches:
caffeine is a known cause of restless legs
syndrome. I don't drink coffee, but I do
drink caffeinated sodas and love
chocolate, which contains caffeine. I've
noticed if I have anything containing
caffeine late in the evening I almost
always have restless legs before going to
bed that night.
Other nutritional aids that I find
indispensable are: gingko biloba (improves
my cognitive functioning), b-complex (in
the form of "b-50" tablets. Keeps me
from having a "short fuse" temper-wise
which aids all aspects of life :-), and
one naproxen sodium (aleve, etc) tablet
each morning. I'm not sure what the
aleve does, but it keeps me from "freezing
up" movement-wise and also seems to have
some beneficial effect on regulating my
blood pressure. At one point I was
taking 1800 mg. Of ibuprofen a day and
developed an allergy to it. My doctor
suggested trying the aleve and it's worked
great.
One nutritional element i've learned to
stay away from is ginseng. Really takes
me down. I've never noticed a problem
with green tea doing this, so the person
who's had a consistent problem with green
tea might want to check the ingredients
list: some teas add ginseng. I've
learned to check multi-vitamin labels
carefully and try to avoid those
containing ginseng, though I can now
tolerate a bit more than I used to.
Hope these tips help someone as they have
me. A family member was the one who
first thought of checking my magnesium
levels and i'm so glad he did! :-)
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RexRacer
New User, Becoming EHEALTHy
Joined: 14 Feb 2006 Posts: 3 Location: Dallas, Texas
Brain Fog Posted: 02-23-06 16:50pm
adambaum
wrote:
i have the same symptoms as
well. Has anyone explored barre-lieou
syndrome?
any luck with your symtoms?
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LSan159996
New User, Becoming EHEALTHy
Joined: 18 Feb 2006 Posts: 2
Classic Symptoms Posted: 02-25-06 00:28am
Rexracer, your symptoms for the last six
weeks echo my own chronic fatigue immune
dysfunction syndrome experience back in
98/99. All during 1998 my husband and I
were working out three days a week at a
hospital-connected gym. In december 1998
we both caught the flu. His ended, mine
never did. By march 1999 (three months
later) I was bedridden and crawling to the
bathroom, with brain fog, muscle pain and
weakness, and 25-point blood pressure
swings. Couldn't even use a pillow
without becoming dizzy.
I encourage all of you to check out the
chronic fatigue immune dysfunction
syndrome association of america website at
http://www.Cfids.Org/ for more
information, and, of course, search the
ehealthforum site as well .
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RexRacer
New User, Becoming EHEALTHy
Joined: 14 Feb 2006 Posts: 3 Location: Dallas, Texas
Classic Symthoms Posted: 02-27-06 11:50am
Thanks lsan159996 for the information, it
has been a great help.
|
LILAMY22
New User, Becoming EHEALTHy
Joined: 14 Mar 2006 Posts: 16 Location: SC
Posted: 03-29-06 15:37pm
Omg!!! I have all these symptoms
too...And i've been wondering what's wrong
w/ me...Do u wake up sometimes and feel
like your whole body is shaking?? I
do...It scares me....I've had panic
attacks, and I never had this
before....Until after I had my little
girl, i'm only 22 and I think all kinds of
stuff is wrong w/ me, I don't have
insurance.
|
funky
New User, Becoming EHEALTHy
Joined: 24 Sep 2005 Posts: 3 Location: West Virginia
Wilson's Temperature Syndrome Posted: 04-06-06 21:11pm
I was searching on the internet for
something called fibrocare for
fibromyalgia symptoms and came across a
web site that I found very interesting.
It was about something called wilson's
temperature syndrome. I thought maybe
others with my symptoms might also find it
interesting. I typed "fibrocare" into
the google search engine and that's how I
found it. Hope it helps someone.
Hi,
I am a 56 year old school teacher and
dance teacher. Many years ago I began
having spells that ranged from sinking
down the wall at school unable to walk,
becoming temporarily paralysed on the
right side of my face and unable to move,
times of being so tired that I am unable
to sit up, the worst time I had spasms on
my left side like a seisure. I have
Hoshimotos desease of the thyroid,
fibromyalsia, mytrol valve prolapse and a
miriad of other malades doctors have
tagged to my symptoms. But no doctor has
yet been able to determine exactly why I
have this problem or what it is. One
doctor in an emergency room when these
episodes first began happening told me I
was in for a roller coaster ride and boy
was he correct. For all of you who suffer
from this problem good luck and if by
chance you find a doctor who cares enough
to dig deep enough to find out what is
really wrong PLEASE let me know. Many
Thanks
