if i'm not in the right forum please let me know.
Around one year ago when I started working (i¬ím sitting a lot in front of the computer) I started having muscle twitches, which are distributed around the body. At the same time i¬íve started having brain fog symptoms, which only worsen during this year: i¬ím having problems concentrating, my memory and coordination are poor, sometimes I can¬ít find the right word, i¬ím confused. I feel fatigued all the time: even if I sleep 9 or 10 hours I don¬ít feel refreshed after the sleep. My blood pressure is usually around 110/70 but it drops to 105/62 when i¬ím at rest. My hands and feet are really cold, and I don¬ít tolerate cold as well as before. Sometimes I hear buzzing in my ears.
My mri is ok, cardiologist says that my heart is fine; neurologist also says that i¬ím ok, endocrinologist too. I did ultra sound of thyroid and adrenal glands, both of which were ok, as well as hormone tests. My blood tests were fine, except that I once had a higher level of monocytes (11.5% while upper limit is 10%).
I was repeatedly told by doctors that I need to relax, and that basically everything is in my head. It would be really helpful if someone had any idea about my condition.
I hear these symtoms at my clinic often. I believe your skeleton has changed position to a point that has caused these symptoms - especially your head has come w a y forward. (aka: posture)
go to the egoscue.Com forum and get help there. But, to get the best help, an egoscue clinic can help.
Have you seen a doctor about the possibility of chronic fatigue syndrome. Cfs is a neurological disorder the hallmarks of which are profound, bone crushing exhaustion that is not relived by rest, neurocognitive problems marked by memory problems, concentration problems, and problems with aphasia (wrong word).
Intolerance to cold, cold hands and feet, tinnunitus (buzzing) and coordination problems are also common symptoms of this disorder. Did you cardiologist do a tilt test? It sounds like you might want to check into the possibility of orthostatic intolerance.
It sounds like your doctors have looked into the most obvious areas which is good. Sounds like it is time to look at some other options.
It is very common for doctors who cannot find the obvious to tell a patient that their symptoms are all in their head (duh, this is a neurological disorder g.93) and suggest that you relax.
While relaxation and reduced stress are worthy goals for all of us incuding our doctors, they do not cure organic illness. If you aren't familiar with a good cfs doctor in your area, try the co-cure good doctor's list. The website below has far more information than I have given here. You may wish to take a look. There are many other good sites, but steer clear of any that suggest a psychological process is at work unless you need to hear more of what your doctors are already trying to suggest. Pamela hahn also has a good site at the about.Com sites.
p.S. Aphasia is pathological not a product of tenseness. :roll:
there is no cure for cfs, however, your symptoms can be managed.
Painfreeintx: I kind of have a bad posture, thin physiques, stooped spine, and narrow and flat chest, so some of the symptoms could be explained by this, but I also have other symptoms, like poor memory, bad concentration, brain fog, that I can¬ít explain by my bad posture.
Harmony58: i¬íve read something about cfs, but I couldn¬ít investigate any further because I don¬ít know any doctor who is familiar with cfs in my country. My fatigue is not disabling (thankfully), I can do things I did before, like driving a room bicycle for half an hour for a few consecutive days, but I can feel that i¬ím more tired than before.
I beleive cfids(chronic fatigue immune dysfunction syndrome) is related to posture. Stop and really think what you said. You have all those posture problems which means, all those nerves in the spine are compromised and no longer feeding the body in a healthy way. (you can have a sick nerve long before it's pinched). If you were to see where you have a stooped posture and compare what nerves feed that part of the body, you would find all of your symptoms in what those nerves are responsible for "feeding."
but I understand your path. I usually don't get patients until they have exhausted all other possibilites and then they come to me or are referred to me.
you don't say what country you live in. Give me a shout and perhaps I can steer you in a helpful direction.
In the us, the !**@! 1994 research criteria for cfs/me a.K.A. Cfids, mainly assumes at least a 50 percent drop in activity levels. So, where you end up depends on where you started. (for example: a world class athlete with cfs can drop 50% and still be more active than some healthy people, but it is still a 50% drop for that individual and that is what counts.)
i don't know how your riding fits with that, but you don't have to be bed bound to have cfs.
Also, cfs/me cannot be diagnosed by a single symptom, such as fatigue. It is the pattern of specific symptoms that determines whether you have cfs or not. Taken alone, fatigue is a common symptom of many illnesses big and small which is why it is good that your doctors have already eliminated many other possibilities.
One of the other reasons some doctors don't "like" cfs/me is because very few patients have the exact same presentation, although the overall pattern of specific symptoms (which you described in your original post) are common to all. Some people have a more gradual onset, where they slowly get worse instead of a sudden onset for instance.
Hope this helps clarify my original post. I never know whether my personal forecast for the day will be "foggy" or not. :))
i really can¬ít describe my drop in activity level in numbers: sometimes I can do 50 push-ups (which I could before), but sometimes I feel so tired while doing normal jobs like cleaning the car. Today I realized that when I eat sugary stuff I feel really tired afterwards. Also, when I stand up, during the next few minutes my blood pressure is normal (say 115/70), but my pulse rate increases as much as 25 ticks per minute, though once i¬íve tried to measure it after 10 minutes of standing, and there were no significant changes. My cardiologist didn¬ít do a tilt test.
I didn¬ít want to sound like i¬ím dismissing your suggestions; I guess that i¬ím not that well informed about consequences of bad posture. My ears are in level with hips, knees and ankles, and according to one definition I found on the web that should mean that my head is not moved forward. Also, i¬ím not sure how bad my posture really is. Do you think maybe you could evaluate it if I sent you photos of myself?
Hi there, I had the exact same symbols u had last year and need up in the hospital... They kept telling me that it was anxiety and that I needed to relax. One of the big symptoms was increased heart rate when I changed positions.. Especially going from sitting to standing.. I told the nurse and then she had a doc come in and watch the heart rate monitor when I stood up and I went from an 80 pulse sitting to 130 when I stood... My doctors said that somthing was wrong and that he was going to do some research... He came back a told me I have POSTURAL TACARDIA syndrome or POTS syndrome.. I did some research and sur enough that is what I had.. Your symptoms were exactly what I had.. But I was also getting anxiety attacks too. These symptoms went on for a year or so and then eventually almost went away. I was one of the lucky ones that it lasted a short time. They believe there is a link with cfs and pots syndrome and I still feel very tired all the time but no other symptoms. Suggest to your doc to do a tittle test this is how a doc can diagnose pots syndrome. Hope this helps.. I know before I got my diagnosis I thought I was going crazy! I finally found a doctor that really listened to me and thats how I found out about pots syndrome. Be hopeful that there is a chance most of these symptoms will go away
i'm just going through my mri results, and I found that my doctor found something that he thought was not really important (i'll do my best to translate it correctly), he wrote something like: ¬ďalong posterior aspect of lateral brain section we can see flair hyperintesity which indicates unfinished myelinisation¬Ē, and later he wrote that there¬ís megacisterna magna.
Is it possible that my doctor could have mixed up unfinished myelinisation and demyelinisation?
I still feel tired, my concentration is terrible, as well as my memory, sometimes I have problems with coordination; my limbs are dead cold (except before I get up from bed).
I¬ím kind of freaked out because of this, so any suggestions would be helpful.
Hi, my name is katie and I come from queensland australia. I was just searching on the internet for brain fog, fatigue, etc. When your post came up. I have for the past 10 weeks been experiencing the same sort of thing.
I was completely healthy before this happened. It started with an episode of severe weakness, then fatigue that comes and go's, then muscle twitches. Also my neck glands came up for 6 weeks and my joints ache some times. I have just started having severe brain fog. I feel so stupid. I have a baby and this is making life so difficult. I have had nearly every blood test available with no answer. I had a spinal tap, nothing there. I had a head ct: nothing there and an head and spinal mri: nothing there either. I am booked in to see a neurologist in a couple of weeks. I am worried its ms or motor neuron disease. But I have a feeling and I hope its chronic fatigue. Your not alone.
Me/cfs Is a Severe Neuro Immune Disorder More Info
what you are saying sounds like me/cfs could be a possibility. For your sake I pray that it is not. Me/cfs would not show up on the test you mention. However, you need to experience your symptoms for a least six months because as your doctors are investigating there are other possibilities. Ms is another neurological disorder.
Brainfog is most often in the areas of working memory, short term memory, word finding difficulty, easily distractability, math, and concentration. Severity depends on the level of postexertional exhaustion. No two days are the same.
I have a number of friends that you can talk to that are actually in ausralia. Millions of people are struck down by this horrible neurological disorder (icd 10) g93.3.
I just found this site and your message, and am heartened to know that others are in the same position that I am. The symptoms of brain fog, memory loss, twitching, that you mention started with me about 5 years ago. Eventually, I was diagnosed with sleep apnea. Although most apnea sufferers are overweight, it also can occur with average size people, like myself. You don't realize that you are waking up all night, so this may not have occurred to you, but it's something you should check into. Most doctors don't know how to recognize the symptoms - I found out by reading an article in men's health magazine. You need to find a reputable sleep clinic and go for an overnight sleep monitoring.
Unfortunately - for me, at least - the cpap machine I have to use has not solved the problem, so i'm still searching for answers. I did think that this is something which might be of import to you and your situation, though. Hope this helps.
Oh my god these are all the symptons I have as well as the flu feeling , tired even thou I get enuff sleep swollen gland in throat etc...Had ct scan today but do any of you have high white cell count as well? All 3 test have shown high white cell count ,my gp has no idea shes decided its time to send me to specialist after 4 months of ongoing bloodtests,which by the way I have a phobia of needles....
Sorry I also forgot to say that about 3 years ago I had labyrinthitis,which also affected my speech which it shouldnt ,but some of my friends seem to think it might have been a mini stroke.But any way I really havent felt 100% since that.Any clues whats going on?
This post is for zoran. I have similar symptoms - brain fog, muscle twitches, cold hands and feet, muscle fatigue with light exertion and general fatigue. I also discovered that I now have almost absent reflexes at my knees. Muscle twitches started shortly after starting synthroid in november 2001 for elevated tsh (thyroid test). I'm pretty sure I tested negative for lyme disease and lupus several years ago. I am no longer on synthroid because my tsh fluctuated. I also sit in front of a computer a lot (40 hours a week) and have poor posture. My chiropractor told me my head was forward. I also get severe muscle cramps in my legs and feet, especially at night. It's comforting to know that other people have the same problem. I was worried about ms or als and am afraid to go to a doctor now. I was wondering if zoran found an answer yet.
I started experiencing the same symptoms in mid 2013 which are continuing today. Doctors think it's lyme disease but I have not fully produced a positive test (band 18 and band 41 positive in the Western blot).
Curious to see if you were able to get this all resolved?
I'm still searching for a cure for my symptoms. When I find it, i'll post it on here. I'm currently trying homeopathy, potassium/magnesium, omega-3 and mega multivitamins. The multivitamin seems to help with the fatigue some but it has green tea extract in it, and I think that seems to make my muscle twitches and palpitations (another symptom I have) somewhat worse. My brain fog seems to be better on this regimen.
I have been feeling the same way as many of you have for the last 6 weeks or so. At the end of december I had a upper respiratory infection and one night just when I started feeling better I woke in this fog and had tinnitus in the right ear. I couldn't shake the brain fog and it gets worse when I don't get enough sleep. I also have experienced insomnia for the last several weeks as well. For a person who is as active as I (i work out with weights and run 3 miles 4 or 5 times a week) it is unbearable. Now when I work out I can't get through the workout without being fatigued. I've lost weight - due to depression because of this and can't get any relief. I can cope with the tinnitus but the fog sometimes is unbearable. I have to read and re-read e-mails and reports that I submit for my work - it is tough to concentrate at times. I do work in computing and sit in front of a computer for hours but I think this has to do with that. I have also had difficulty with my digestive tract that I have never experienced before. I have had all the tests that some of you mentioned: ct scan, mri, eye exams, gone to the neurologist, opthomologist, ent doctor - hearing tests etc. And am going to an alergist next week, oh and the blood work and everything checks out okay - oh except for a small arachnoid cyst that is benign (neuroligist, radiologist and ent report this). Is there any relief - help if you have it.